emo HepC from India

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6 years 1 week ago #20210

hello all.

myself from Mumbai, India.

finishing three months of sofo plus dacla.

have been following keenly the stories and expiriences on this forum.

hope to contribute mine.

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6 years 1 week ago #20211

Hi Warrior from Mumbai
How was your treatment experience? How is it for people in India generally? Very interested to learn.


Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
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6 years 1 week ago #20213

Welcome!


YMMV
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6 years 1 week ago #20217

the medication scenario offered to me by my doctors focused on peg interferone and ribavarin initially. in india none of this is on insurance or co pay. so all was out of pocket expenditure.

was lucky that the new oral drugs hit the market when i was contemplating therapy. so was put on Natco's Hepcinat with ribavarin initially.
but developed severe reactions to ribavarin with hemoglobin dropping and severe vomiting. so was shifeted to a longer combo of Hepcinat and NatDac. doing great on the same.

due to super competition among generic companies, the costs were dirt cheap for meds as compared to printed pricing. my doc contacted the distributors of most top companies and we found out the cheapest costs for me. my docs letter of recommending concessions for me helped me a lot. he says he does it routinely for his patients local and abroad.

hepcinat rs 19900 (US$ 300) then cost me rs 9400 (US$145) per month NatDac rs 6000 (US$ 90) cost me rs 3800 (US$ 57). the costs of some good indian generics are way lesser than these. a friend i made during doc visits was on Hepcinat LP which too is a widely used combo which he used to get at rs 12000 (US$180).

the price of drugs is low according to him because few states in India have started providing fully free hepc meds to all patients and hence the costs of meds in distributors has dropped too low levels.

i am doing ok thanks to my familys support encouragement and my docs help in getting me cheap yet quality meds.

now waiting for my results next month. thank you for including me here.

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6 years 1 week ago #20218

Thanks for sharing your story warrior and look forward to hearing of your results.

cheers


Two time relapser.

SVR 4 achieved 12/16 at last
SVR 12 achieved 22/02/2017 The Bastard has been defeated :):):)

GT 3 - about 28 yrs with HCV
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6 years 1 week ago #20219

Thank you, Warrior for your very interesting post.
I am guessing the cost of the drugs in India would be out of reach of many people - is that right?


Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
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6 years 1 week ago #20220

yes. for many the price is high if their docs do not inform them about the concessional costs of drugs at distributors.
many get duped by distributors who retain a lot of margin as profit.
the competition has driven costs very low, so many foreigners too buy from Mumbai provided they are lucky to get a distributor who gives them same concessions.
for people with absolutely no money, few state governments especially in areas of high prevalence run free med programs. in such patients get fully free treatment.
beaches wrote:

Thank you, Warrior for your very interesting post.
I am guessing the cost of the drugs in India would be out of reach of many people - is that right?

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6 years 1 week ago #20230

Welcome to the forum Warrior! I like hearing about tx from other countries, it's interesting stuff! :cheer:


Attachments:

G1a dx'd in 1992, Biopsy F2 VL 8mill +. Tried tx with Interferon/Riba, back in 2008 didn't last long it felt horribly ugly!! I stopped tx, after 5 weeks!!
Started tx 6/1/16 with Harvoni.
12 Month Labs= UND
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