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TOPIC: Starting third week tx

Starting third week tx 2 years 9 months ago #23815

  • Grateful1
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Hi all. I've been reading here for 3 weeks. Greg Jefferys helped me get meds, and I started tx on Valentines Day. Love myself for a change.
I didn't get a fibroscan, and here they want to do a biopsy, I needed all $$ to go towards meds. I've been reading here and noticed my LFTs are very high compaired to most. AST 188 ALT 258
tested jan 25, 2017.
12wks sof/dac . I'm getting a little nervous about it not being enough.
Maybe it will be better at 4 weeks. Gotta have faith. 5 weeks ago I didn't even know there were generic hcv drugs.
I prayed for healing, and somehow I found fixhepc and Greg. Shocked!!! Sad most people in USA don't know that.
My gp hugged me when I told him I started tx, and believe me i was scared he may not see me again. So maybe 4wk lft will be better. Right? Right!
I'm really struggling with cigarettes. Really... any advice
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Starting third week tx 2 years 9 months ago #23821

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Greatful1
Sending you many loving thoughts and strength for you to be successful for you to be free hepatitis. Hope you can get by with 12 weeks of treatment.

Keep us updated on how it goes you

Can not help you with advice regarding weed since I have never smoked

Hug
Gert
Probably infected 30 years ago Genotype: 1a
Fibroscan 4,8 - 18 january 2017
Virus in the blood 18 January 2017 10.400000 / Alat 102
Started treatment January 19, 2017
Feb.15 - Alat 76 - virus: UNDETECTED
March 15 - Alat 34 - virus UNDETECTED
April 12 - Alat 40 Asat 34 - virus UNDETECTED / Taking the last pill
May 10 SVR4 - Alat 36 -virus UNDETECTED
July 5 SVR12 - Fibroscan 3,8 Alat 39 - virus UNDETECTED
Sep. 27 SVR24 - ALAT 24- virus UNDETECTED
Marts 14 - 2018 SVR48 - ALAT 26- virus UNDETECTED
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Starting third week tx 2 years 9 months ago #23823

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Still learning to get around here. Not sure how to get all the stuff at the bottom. I had to look up GGT, on my bloodwork its alb/glob i think. It is 1.8 with normal range being 1.3-2.5. So thats ok.
I am 58yo, and lived with this (unknowingly) for 34 years. Diagnosed 2 years ago, no insurance. I figured it would kill me. And we all gotta go sometime. :huh:
I'm not sure why i typed in generic hcv meds, but so very grateful i did. Today is my 15th dose. A little light sensativety the first couple of days..but so much energy. But the last 3 days i'm crying all the time. Idkw
Thank you all for sharing here, it has really helped me to know this can be beat. Bless you
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Starting third week tx 2 years 9 months ago #23824

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Welcome Grateful1, :)

Congratulations on finding out about generics and commencing treatment. Nice to see that your GP has proved to be supportive.

There are a series of grey tabs towards the top of the page which will allow you to navigate around the forum with Index and Recent Topics perhaps being the most useful for finding things. Here is a link to some instructions on how to add your signature panel fixhepc.com/forum/technical-support/977-...to-your-profile.html
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
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Starting third week tx 2 years 9 months ago #23825

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Welcome,

Gaj made some instructions for how to add your signature here: fixhepc.com/forum/technical-support/977-...to-your-profile.html

Essentially click on "You" to the left of your post to get to your profile. Click on Edit >> at the top middle right, then "Profile Information" tab and scroll down to your signature. Add and save and it's done.
YMMV
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Starting third week tx 2 years 9 months ago #23826

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Being tearful, a bit buzzy, is really common, I had it and heard it a lot- it feels like a thinner skin. There is so much going on, when you have had it for ages, I know what that is like- a whole new normal is going on in our bodies. I look at it as the fight going on, us winning it, as we shed virus in those first amazing weeks. But overall for me, those effects were more interesting than really a problem. Other people get none, and then worry it is not working. Good luck! sounds like yours is working.
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
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Starting third week tx 2 years 9 months ago #23827

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Hi Grateful1,

Maybe you are crying because your subconscious knows that this is it, you are on the way to being cured! If you have a lot of energy, chances are very good for a cure :cheer: :+1:

It's sad most people in USA don't know they can import 3 months of any medication they need. I blame it on the corporate controlled media. They never mention this fact, which just proves that we don't have an investigative media anymore. We have propaganda in the USA, not news. I posted on the New York Craigslist about FixHepC, and was blocked very quickly. Congratulations on finding this opportunity, and saving your life.
Gt 1a, F0, VL 6.5 million, AST 59, ALT 62
Started Twinvir 1/15/16
6 wk. labs, VL UND, AST 27, ALT 20
EOT labs, VL UND, AST 23, ALT 19
SVR 16, VL UND, AST 28, ALT 17
SVR 24, VL UND, 10/8/16
SVR 125, VL UND, 9/22/18
Last Edit: 2 years 9 months ago by Greedfighter.
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Starting third week tx 2 years 9 months ago #23834

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Thank you all. I think it worked.
As you can see, the lack of testing made me unable to get meds here. I filled out the e-trial form twice but couldn't give test results I didn't have. They e-mailed me to see if I was having problems completing the forms.. I told them I just couldn't afford the program, but that the forum was very helpful. I hope you all don't mind me being here. I thank God you are here. :)
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Starting third week tx 2 years 9 months ago #23836

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Hello G1,

You're welcome to be here.

Checking your LFTs at week 4 will provide reassurance that things are working, but won't actually change the outcome of treatment so can be skipped if the money needs to go elsewhere. You should be able to feel things working in terms of feeling better.

The "big test" is the one for viral load 12 weeks after you finish.
YMMV
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Starting third week tx 2 years 9 months ago #23844

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Hi Grateful - Welcome and Happy Valentine's Day!

Well done for weighing up the options and taking the leap into generics and your treatment. Your best decision ever!
It sounds like you are having some pretty common side effects which shows that the meds are doing their job.
It's a bit of a roller coaster so expect to feel a bit up and down. Often it takes time to adapt to the changes both physically and emotionally.

As Dr F said you should start to feel better as the medication works. In my experience I knew very clearly when the virus was with me and when it was gone. This will give you a bit of an indicator if testing is not available.

Keep posting and we'll be with you while you fight this. Coral #flower #flower
G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back!
New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217.
SVR12 and SVR 24...
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Starting third week tx 2 years 9 months ago #23848

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Thank you. I have been trying to read everything here. So much great info, so many inspiring stories. Of course I cry, I laugh and I go oops. Oops been taking vit C. Thats done. :P
Begging my sister to get tx. She says after me.. so she may be here in a few months. Until then I told her to come and read the forum. And she told me to watch Dallas Buyers Club. So Sunday I'm going up to help paint and watch.
When I found this wonderful place I wanted to paint it on a railroad car. Lol. Lots of exposure. I asked my gp to tell others like me about it, but he didn't act like that was gunna happen. But he is monitoring me and asked what I needed him to do. The meds were not in his data base, but they are now. I have the lft order for the 4wk check. I'm hoping it's good not just for me, but for him. The interest is there and I think he might at least tell someone if all goes well.
Again, and again, I thank you..
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Starting third week tx 2 years 9 months ago #23853

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Hi G1,

Of course you're welcome here and we look forward to hearing your progress (& pix of the railroad car :lol: :lol: :lol: ) and just ask if you have any questions, that's how we all learn more and share that knowledge. :+1:

As you are on daclatasvir/Daklinza which can interact with some foods here are a couple of dietary warnings you should be aware of:

fixhepc.com/forum/drug-interactions/611-...ts.html?limitstart=0

fixhepc.com/forum/drug-interactions/108-...ractions-cyp3a4.html


For other drug interactions you and your doctor can use the Liverpool University interactions tool below, just select Daclatasvir + Sofosbuvir in the first column and then any medications you use in the second column::

www.hep-druginteractions.org
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
Last Edit: 2 years 9 months ago by Gaj.
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Starting third week tx 2 years 9 months ago #23855

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Welcome Grateful 1, the comments here are bang on regarding regarding the journey your on. In my case it was quite an interesting trip without many side effects.
Most people seem to go complete treatment without too many issues a common one is the emotional roller coaster Coral and Hazel alluded to and insomnia.
I found taking the meds in the morning worked best for me and drinking extra water also helps the side effects a bit .

Nicotine Replacement Therapy worked for the smokes.

Enjoy the trip.

cheers
Two time relapser.

SVR 4 achieved 12/16 at last
SVR 12 achieved 22/02/2017 The Bastard has been defeated :):):)

GT 3 - about 28 yrs with HCV
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Starting third week tx 2 years 9 months ago #23859

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When I found this wonderful place I wanted to paint it on a railroad car

Believe it or not, on the rainy Sunday afternoon when I was designing the logo one of the thoughts was to make something you could actually paint on the side of a building/railroad car using a spray can and paint brush.


YMMV
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Starting third week tx 2 years 9 months ago #23877

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Ooo, I didn't know I could use patch or gum. I thought it was the nicotine itself.
On a quite similar note, I have kept my coffee to 2-3 cups a day but have started drinking black tea. Is it the caffeine in the coffee or something else? If its the caffeine (which I tried to check but dosen't seem to be in drug interactions), then the tea is just as bad as the coffee?
I really do want to do this right. :)
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