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no longer furtively reading posts here, joined Redemption trials 5 years 10 months ago #23897

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#love For more than a year I came as a guest to this site to read the posts. I couldn't see my way to actually getting the treatment. It took months to make up my mind to act. The greatest barrier was disclosing to having HCV. That is because I am a healthcare worker and have seen others with HVC (who like me have roles in which transmission is impossible) negatively discriminated against in our workplace.

After disclosing the HCV to my family doctor who urged me to see a specialist the hepatologist in turn organised a fibroscan. That fibroscan showed little cirrhosis and the liver function test (scan & tests all free thanks the New Zealand taxpayer-funded healthcare system) results within normal boundaries. Possibly these good results because of avoiding alcohol, smoking and other drugs as part of trying to maintain good health. Also genotype 2 is the most benign type of HCV. Maybe though I was just lucky.

Once I received all the test results I enrolled in Redemption trials. Now I am on treatment and wondering why it took me so long.
G2, infected maybe in 1971?
Diagnosed HVnon-A non-B 1980s, revised to HVC 1990's.
Treatment naive. Fibroscan & bloods all normal ranges.
Viral load 7million,
began Redemption trial4, 12-week generic Sof/Vel (Incepta) 2017. Week 4 UND, Week 12UND, SVR24
Thank-yous to my doctor for the script, to Jan at FixHepC for wrangling, and to Dr Freeman for courage.
Kia kaha e hoa ma!
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no longer furtively reading posts here, joined Redemption trials 5 years 10 months ago #23898

Welcome Mnem glad you made it and have started tx given your numbers you should have a successful outcome :)

cheers
Two time relapser.

SVR 4 achieved 12/16 at last
SVR 12 achieved 22/02/2017 The Bastard has been defeated :):):)

GT 3 - about 28 yrs with HCV
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no longer furtively reading posts here, joined Redemption trials 5 years 10 months ago #23899

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Welcome Mnem, best of luck with the treatment.
YMMV
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no longer furtively reading posts here, joined Redemption trials 5 years 10 months ago #23901

Hello Mnem,

Like you I am a healthcare worker from NZ who had hep c so I can truly appreciate and identify with the implications, stress and stigma you experienced when you first found out. For those of you that are unaware healthcare workers (in most instances) have to disclose their status of a communicable disease to their employer and worse still may face having to be stood down from their role. Stigma surrounding HCV in healthcare is as ever present as it is anywhere - and in some cases much worse.

In November 2015 I first found out about generic treatment and in December I flew to Tasmania to collect a 12 week course of sof/led. I finished treatment in Feb 2016 and I was still detectable however I went undetected 4 weeks post treatment and have remained that way since reaching SVR 24 in early August.

I want to wish you all the best and every success for your journey and go you for getting off the fence and taking matters into your own hands. I hope your hepatologist are being supportive with your choice...If not please refer them to the NZ Hepatitis Foundation as they endorse the use of generics sourced via Fix Hep C, there are also many articles/features in the Talking Hep C publication that take doctors and specialist through the generic pathway.
SVR 24
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no longer furtively reading posts here, joined Redemption trials 5 years 10 months ago #23905

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Great choice, you'll be HCV free in a few months. The stigma of HCV over rides the excitement of the cure, to other people. I had only shared it with wife of 26-7 years :) so it was bitter sweet. Keep on keep' n on you'll get it done
In good health to you.
Contracted HCV 1980's
Geno Type 1a
F3 ( doc says once treated I'll be F2 maybe F1)
Meds shipped 6/17/2016 arrived early 7/2016

Viral count - 3,471,080

4 week quantitative bloods: August 17, 2016. I have been diagnosed as <15 (told undetected)

8 week quantitative bloods: September 14th. I have been diagnosed as <15 (told undetected)

11 week PCR RNA Qualitative bloods: September 26th 2016 - Undetected

December 19th 2016: Cured!
Viral count: zero!!!
2018 viral count: still zero!
Cured!
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no longer furtively reading posts here, joined Redemption trials 5 years 10 months ago #23935

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Hi Mnem,

The stigma of this disease can be such a burden and I can relate to the stress placed on people in healthcare and similar industries. Well done you for taking control and starting treatment. Good luck - things are lined up for a great outcome for you. #flower
G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back!
New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217.
SVR12 and SVR 24
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no longer furtively reading posts here, joined Redemption trials 5 years 10 months ago #24097

Could someone help me. I want to purchase the meds for hep c. I am very new at this and just want to be cured. I live in the us will they ship to the us

no longer furtively reading posts here, joined Redemption trials 5 years 10 months ago #24098

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Hi Margie, yes help is at hand. #flower Keep looking for the right threads on this site. There is a search function on one of the tabs at the top. Also the index tab. Take a look at the link in this piece (re.) posted by our fellow Forum member, Iain recently:

A nice article written by Lucinda Porter regarding importing generic HCV medication to the U.S.A, and FixHepC.

Apologies if this has already been posted previously.

hepatitisc.hcvadvocate.org/category/generic-harvoni
G2, infected maybe in 1971?
Diagnosed HVnon-A non-B 1980s, revised to HVC 1990's.
Treatment naive. Fibroscan & bloods all normal ranges.
Viral load 7million,
began Redemption trial4, 12-week generic Sof/Vel (Incepta) 2017. Week 4 UND, Week 12UND, SVR24
Thank-yous to my doctor for the script, to Jan at FixHepC for wrangling, and to Dr Freeman for courage.
Kia kaha e hoa ma!
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no longer furtively reading posts here, joined Redemption trials 5 years 10 months ago #24099

Thank you. I am just so confused on what to do

no longer furtively reading posts here, joined Redemption trials 5 years 10 months ago #24101

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Hello Margie,

Just go here on this site

fixhepc.com/home/redemption-etrials.html

And select the appropriate link for the medications you want and fill in the form.

It's that easy
YMMV
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no longer furtively reading posts here, joined Redemption trials 5 years 8 months ago #24375

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Feeling thrilled :woohoo: Here I am today with the results from my end of week 4 treatment - HVC rna UNDetected.

How fortunate I am, Next I keep on taking the pills until the end of week 12. More tests still to come, yet I am on my way to the holy grail of SVR12 and 24, and feeling hopeful. Thank you #flower to everyone on this forum for your kind words :+1: and encouragement #love
G2, infected maybe in 1971?
Diagnosed HVnon-A non-B 1980s, revised to HVC 1990's.
Treatment naive. Fibroscan & bloods all normal ranges.
Viral load 7million,
began Redemption trial4, 12-week generic Sof/Vel (Incepta) 2017. Week 4 UND, Week 12UND, SVR24
Thank-yous to my doctor for the script, to Jan at FixHepC for wrangling, and to Dr Freeman for courage.
Kia kaha e hoa ma!
The following user(s) said Thank You: DrJames, coral, mgalbrai, Gaj, Hazel, Iain

no longer furtively reading posts here, joined Redemption trials 5 years 8 months ago #24380

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Can't get better than that for week 4, Mnem! Think of all that dead virus you don't have to provide a home for, ever again.
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
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no longer furtively reading posts here, joined Redemption trials 5 years 8 months ago #24382

Congratulations Mnem! Undetected! :cheer: :+1:
Gt 1a, F0, VL 6.5 million, AST 59, ALT 62
Started Twinvir 1/15/16
6 wk. labs VL UND, AST 27, ALT 20
EOT labs VL UND, AST 23, ALT 19
SVR 16, VL UND, AST 28, ALT 17
SVR 24 , VL UND, 10/8/16
SVR 125, VL UND, 9/22/18
SVR 230, VL UND, 10/3/20
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no longer furtively reading posts here, joined Redemption trials 5 years 8 months ago #24390

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Quick work Mnem! You're off to a flying start.... :cheer: :cheer:
G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back!
New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217.
SVR12 and SVR 24
The following user(s) said Thank You: DrJames, Mnem

no longer furtively reading posts here, joined Redemption trials 5 years 8 months ago #24397

Congratulations M!
m
This email address is being protected from spambots. You need JavaScript enabled to view it.
forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
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