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Need advise for gt4 treatment 4 years 11 months ago #25581

  • kaju
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Hi,

Thank s alot for all your advices and information.

My doctor called me few days ago and he told me we can start with Harvoni or Sov/ Dak
He informed me about clinical trial which has made in Egypt ( as Dr Freeman said before ) but he is still thinking for Harvoni because for now Harvoni's trial history is more accepted in medicine sector. My english is not perfect hope ı can explain clearly. Also he told me it is possible to fiish treatment in 8 weeks if we go with Sov/Dak
I am sure about I will go with sov/dak .
Thank you again all yours support and replys to my comments.
Cheers.
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Need advise for gt4 treatment 4 years 11 months ago #25586

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Hi Kaju,

On the basis of what you've said previously sof/dac is probably going to be best for you but a 12 week course of treatment would be preferable. 8 weeks may well work for you but statistically a 12 week period carries an improved chance of cure.

If your doctor will only give you an eight week course, because of his budget, you may want to consider contacting Fixhepc and asking if they could just get you enough for the last 4 weeks.

I know English is not your first language, so if you don't understand please say you don't.
All best wishes,
RSF
G3a. Probably infected 40 years ago.
Diagnosed July 2015
7/7/2015: ALP 69, ALT 209, WBC 5.8, VL 40,000. Fibroscan 9.5 Kpa.
Commenced treatment Sof/Dac (Natco Pharma) 24 wks in Feb 16
VL UND @ 4 wks, 12 wks

EOT 6/7/16
SVR 12
SVR 24

PHEW! Thank you so much Dr James, Monkmeds and all at Fixhepc

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Need advise for gt4 treatment 4 years 11 months ago #25587

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Hi Kaju, 12 weeks is best, that is what people on this forum say, I think.

Best wishes for starting treatment. Mnem
G2, infected maybe in 1971?
Diagnosed HVnon-A non-B 1980s, revised to HVC 1990's.
Treatment naive. Fibroscan & bloods all normal ranges.
Viral load 7million,
began Redemption trial4, 12-week generic Sof/Vel (Incepta) 2017. Week 4 UND, Week 12UND, SVR24
Thank-yous to my doctor for the script, to Jan at FixHepC for wrangling, and to Dr Freeman for courage.
Kia kaha e hoa ma!

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Need advise for gt4 treatment 4 years 9 months ago #25908

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Finally I got prenscript and my doctor gave me harvoni for 12 weeks.

I have gt4 and still thinking to much about what İf I go with others. sof/ dac or epclusa
Hope every thing will be fine :)
Any advises during treatment for diet?
Like drink too much water, not to drink too much coffee ? Eat artichoke ?
Cheers.
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Need advise for gt4 treatment 4 years 9 months ago #25909

I kept a journal during my 12 week treatment with Harvoni. On the 16th day I experienced some dizziness. It passed after a few days. I also experienced a few headaches.
Drink plenty of water. I went for a walk every evening. It helped me sleep. I drank 2 cups of coffee a day. One after breakfast and one in the afternoon. I have never heard anything about eating artichokes during treatment.
G4
F0-F1
diagnosed in 2006
Tx naive
Treatment started 8/12/16, Ledipasvir/ Sofosbuvir (Harvoni) supplied by Monkmed
8/1/16 ALT 36 AST 40
1/4/17 ALT 17 AST 21
7/13/17 ALT 17 AST 25
12/28/17 ALT 22 AST26
2/22/18 ALT 19 AST 25
7/10/18 ALT 26 AST 32
1/8/19 ALT 16 AST 28
7/2/19 ALT 16 AST 26
Hcv Rna, Quantitative Real Time Pcr <15 NOT DETECTED (IU/mL) NOT DETECTED
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Need advise for gt4 treatment 4 years 9 months ago #25910

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Congratulations Kaju on starting your treatment, Harvoni is a really excellent medication for GT4. As for diet during treatment, you should eat a normal varied diet. As a general rule, provided you don't eat the same thing every single day, you are unlikely to run into any issues. Just be careful to not take antacids with Harvoni® or Epclusa® generics.
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Need advise for gt4 treatment 4 years 8 months ago #26042

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Thanks for all your support . My meds shipped from India today. Hope I will receive them soon and will start treatment and finally will be cured.
I am 35 years old I guess connected with HCV 5 years ago. Fibros 0 and hope harvoni will make me good too :)
I will share all my experience during treatment with generic Harvoni.
Cheers.
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Need advise for gt4 treatment 4 years 8 months ago #26043

I kept a journal in which I recorded side effects and how I was feeling each day during the 84 days of treatment. I have referred back to it many times.

Sometimes when I had trouble sleeping I re-watched this video about G4 treatments. G4 is very sensitive to DDA.
hosted.medipix.com/scourge/player.html?program=scourge4.mp4

You can DM if you have any questions.
G4
F0-F1
diagnosed in 2006
Tx naive
Treatment started 8/12/16, Ledipasvir/ Sofosbuvir (Harvoni) supplied by Monkmed
8/1/16 ALT 36 AST 40
1/4/17 ALT 17 AST 21
7/13/17 ALT 17 AST 25
12/28/17 ALT 22 AST26
2/22/18 ALT 19 AST 25
7/10/18 ALT 26 AST 32
1/8/19 ALT 16 AST 28
7/2/19 ALT 16 AST 26
Hcv Rna, Quantitative Real Time Pcr <15 NOT DETECTED (IU/mL) NOT DETECTED
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Need advise for gt4 treatment 4 years 8 months ago #26049

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Hi kaju,

It's great news that your meds are on their way. I remember being really impatient to get them and start treatment. It's a bit of a mantra but drinking lots of water, eating healthy and well, exercising and being a bit kinder to ourselves certainly helped me.

Good luck. May the postie deliver your precious cargo very soon.
G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back!
New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217.
SVR12 and SVR 24
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Need advise for gt4 treatment 4 years 8 months ago #26050

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Thank you guys .
I am just wondering , I have business trip in june and meeting at another country , should I wait for end of trip for start to take meds or should I start as soon as possible . I am little nerwous about side effects and another point is can it be problem at the control point in the airport even I have carrying prenscript. It s generic you know .
Cheers.
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Need advise for gt4 treatment 4 years 8 months ago #26053

If you get your meds next week then you should finish treatment by mid June. I experienced a bit of dizziness and lightheadedness on my 16 and 17 day of treatment per my journal. That faded in a few days. The last 30 days of treatment went quite smoothly.
Traveling with medication is a question I can't answer.
G4
F0-F1
diagnosed in 2006
Tx naive
Treatment started 8/12/16, Ledipasvir/ Sofosbuvir (Harvoni) supplied by Monkmed
8/1/16 ALT 36 AST 40
1/4/17 ALT 17 AST 21
7/13/17 ALT 17 AST 25
12/28/17 ALT 22 AST26
2/22/18 ALT 19 AST 25
7/10/18 ALT 26 AST 32
1/8/19 ALT 16 AST 28
7/2/19 ALT 16 AST 26
Hcv Rna, Quantitative Real Time Pcr <15 NOT DETECTED (IU/mL) NOT DETECTED
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Need advise for gt4 treatment 4 years 8 months ago #26057

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Hi Kaju, as Beahavan mentioned, for most people, side effects in the last month of treatment aren't usually an issue. Regarding traveling with generic medications, which country are you traveling to? Traveling with just 1 bottle is not a problem in a lot of countries, especially if you have a prescription with you.
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Need advise for gt4 treatment 4 years 8 months ago #26062

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The treatment is unlikely to make you unwell so you could start now without a high probability of having any issues.

The only way to have a 100% probability is to start after your trip but chances are treatment will make you feel better rather than worse.
YMMV
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Need advise for gt4 treatment 4 years 8 months ago #26067

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Beahavan you are right,

I guess I will receive my meds in 10days. I hope ...
Trip date is middle of June , I will be in end of treatment and I will stay just 1 week. Maybe I can put them in suitcase with presciription and there will be no problem. Maybe they will not check ..In my old travels sometimes I put painkiller and havent got any trouble with that before. I will go Netherlands.
I dont want to wait for 3 months more , because if I do that , it will be totally 6 months delay for complete the treatment.
Thank you guys.. I am very excited and cant wait for start.
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Need advise for gt4 treatment 4 years 8 months ago #26069

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Hi Kaju, you're allowed to bring your medication with you into the Netherlands if you have your prescription according to the Netherlands Tax and Customs Administration website www.belastingdienst.nl/wps/wcm/connect/b...medicines1/medicines
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