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New to forum 6 years 11 months ago #4580

Hello folks I'm geno type 3 :( and I only found out about this site on Sunday after seeing the interview on sunrise so glad I didn't change channels, any way I saw my gp yesterday and he couldn't/wouldn't sign the authorisation form or fill out a script I've just call the number on the main page a a lovely lady is sending me info and hopefully I can get the ball rolling to get rid of this condition that has consumed my life for the last 19 years.

I had my specialist co worker call me today and talk to me and I mentioned the club and they hadn't heard of it or interested in it and said I should wait as the meds will be available sometime in the new year I asked when and she couldn't give me an answer.
So hopefully I'll hear from someone here soon .
g3 since 96 :( 2 rounds of interferon in 2010 and again in 2012 and that was hell
4 week bloods <15
Undetected at 12 weeks :)

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New to forum 6 years 11 months ago #4582

  • Gaj
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Hi AA,

Welcome. Your experience with your specialist isn't unexpected around here....assuming that their coworker has something vaguely to do with gastroenterology or hepatology and hasn't heard of this site and then says they are not interested in finding out more, perhaps they should contemplate a career change?

But there are other clinicians who are supportive, you just have to find them. What state are you in?

Anyway enough rant from me. While waiting for more info have a look round starting with the "getting treated" tab. If you have any questions fire away and someone will try to answer them or point you to someone who can.

G
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
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Last edit: by Gaj.

New to forum 6 years 11 months ago #4584

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Welcome Another Attempt. You've found yourself at a wonderful place here, it's very informative and supportive. If you're like me you may take awhile to navigate around and keep discovering sections and stories accidentally - it's great!

I am trying to get the ball rolling with GP2U but not getting it right it seems...
Maybe I should call the number you said you did!

Good Luck :)
QLD Australia ☀️
G3a HCV 35 yrs Tx naive
Started Sof/Dac 13/01/16

Dec '15
AST 70
ALT 89
GGT 124
Fibroscore 8.5
F1-F2
13 Feb'16 VL UND #woohoo!
AST 24
ALT 26
GGT 50H
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New to forum 6 years 11 months ago #4585

Hi AA WELCOME!!!! you have come to the right place, heaps of support and information here for your journey to getting well.

Tina
x0x0
SVR 24
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New to forum 6 years 11 months ago #4588

Thank you for the welcome folks hopefully 3rd time lucky if I can get this happening and it works
g3 since 96 :( 2 rounds of interferon in 2010 and again in 2012 and that was hell
4 week bloods <15
Undetected at 12 weeks :)

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New to forum 6 years 11 months ago #4589

Go for it and don't look back :) this place is the real deal.
I got my meds the other week.
SVR 24
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New to forum 6 years 11 months ago #4617

Welcome AA!
While you will get tons of support and understanding here, the main thing you will get is well. Cured. Free of this crap. This is where the keys are to release us from our HCV prison.
Your sentence will be commuted.
Mike
This email address is being protected from spambots. You need JavaScript enabled to view it.
forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24

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New to forum 6 years 11 months ago #4628

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Welcome AA!, PBS listing may come as early as April, or it might not, shit happens!

GL 2 U

Sean
GT 3, F3, Contracted 1993 Tx Naive
V/L 1,267,000 AST 67 ALT 65 6/10/15
commence Sof/Dac (Mesochem) 6/11/15
AST ALT normal 24/11 *
*V/L UNDETECTED 24/11*

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New to forum 6 years 11 months ago #4825

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Hi AA, finding this place is the first step, I'm from a little ways out of town, but I went to Sydney, got my meds a few weeks ago from the pharmacy, and now 4 weeks later im undetected. Its all good, get well soon, best of luck. Driving around Sydney was a bit of a challenge though but I made it in and out and in again when i needed to...damn left hand turn roundabouts though!
GT 2b; since 80's, no prior tx, sofosbuvir and daclatasvir compounded from API's at Kingswood Pharmacy in Sydney, started tx nov 6,2015, undetected at 4 wks, UND at 8 weeks, UND at 1 week after EOT, UND at 4 weeks after EOT and UND at 8 weeks after EOT. " I feel GOOD!! I knew that I WOULD!"

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New to forum 6 years 11 months ago #4826

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Welcome AA, great to have you here. Have a look round the site and feel free to ask any question...as Mike said, this is where you will find the keys to a life free of this scourge. Hear you on the clueless and/or unhelpful specialists telling you to wait - hey we've all been there - if by some miracle the meds do get Cabinet approval at their exhorbitant pricetag, you can bet it won't be universal availability. So if you're not almost out for the count with fibrosis (but not too far!), you'll have to get at the back of a very, very long queue.

All the best :)
GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 - 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 - 6 weeks UNDETECTED
AST 26
ALT 26

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Last edit: by zhuk.

New to forum 6 years 11 months ago #4832

Another Attempt and Chejai if your having troubles getting the ball rolling message and let me know where your up to please.

Cheers
Two time relapser.

SVR 4 achieved 12/16 at last
SVR 12 achieved 22/02/2017 The Bastard has been defeated :):):)

GT 3 - about 28 yrs with HCV
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Last edit: by Paul-Jarman-facebook.

New to forum 6 years 11 months ago #4955

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Hi AA & welcome.

Hope you can get your generics soon & start treating.

I got them for my son, he's now clear of hep that he's had since birth after 4 weeks!!!!
he's had NO side affects either!

These drugs are miraculous

Good luck :)

Cindi x
J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results....pending....
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!

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New to forum 6 years 9 months ago #10555

You need to set up a video (skype) interview with a Dr. On this site an they will be able to help you

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New to forum 6 years 9 months ago #10557

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Hi Jade this is a great place to read other peoples experiences and follow their Journeys great to see your on your way to being cured. :cheer:
Genotype 1b 42 years.
2007 48 Weeks Interferon + Ribavirin Relapsed.
2015 6 Weeks same as above + Sempivir Too many sides stopped.
7/11/15 started Sof / Dac + Riba 24 Weeks. Kingswood Pharmacy.
VL Before tx 3 million.
1st bloods 8 weeks undetected
.

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