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TOPIC: Joy To the World

Joy To the World 3 years 10 months ago #1275

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Hi everyone, I just want to add my story to encourage others who are undecided about FixHepC. Not that I've cleared yet, but I hope to be one of the 95% who do. :cheer:

I started treatment for the first time 3 days ago - after 30+ years with the virus. I refused interferon last year, waiting and waiting for the PBS to list the new cures here in Australia. But I'm tired of being tired, and jumped for joy when I saw Greg Jefferys' story on the 7:30 Report. The Lismore Liver Clinic said no doctor they knew would help with a script. My Indian GP was shocked at my plan to go to India. Then Greg's blog led me to this site. After a consultation with the trailblazing Dr Freeman on GP2U, the Sof/Dac was delivered to my door 3 weeks later.

I had slight nausea the first day but nothing reportable since. Taking meds at nighttime now as advised in the FAQs.

As Greg says on his blog:
Maybe your insurance will cover it next year, maybe it won't.
Maybe the treatment will get listed on the PBS next year, maybe it won't.
Maybe there will be better drugs available next year, maybe there won't.
Maybe all these generic options will be gone next year, shut down by the power of billions of dollars of Big Pharma influence.
How would you feel then?
Highly effective and affordable generic treatment options are out there NOW!
Take control of your health, find the treatment option that suits you best and do it now. You could be Hep C free by Christmas.
hepatitisctreatment.homestead.com/generic-harvoni.html

MAY ALL OF US HEPPERS BECOME HEPLESS. (Not helpless)

Thanks to everyone on this forum for the sharing and the support.
NSW Australia. Genotype 1b 30+ years, F0-F1, VL 91,000 Feb 2015 (740,000 in 2010), Tx naive.
Ordered Sof/Dac from Buyers Club 21 Sept, received 14 Oct.
Virus UNDETECTED at 3 weeks AND 12 weeks (EOT) AND SVR4 AND SVR12 AND SVR24. :-)
A thousand thankyous to Dr James and the amazing FixHepC team.
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Joy To the World 3 years 10 months ago #1302

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Hi Joy

I'm so pleased to hear that you've started the journey and I wish you all the best, no sides, clearance at week 4 and svr 12 weeks post. Look forward to watching you become hepless. Now that's a spin on Crosby, Stills, Nash and Young's song ....hepless, hepless, hep.....less! Em
Geno 1b F2/3 snce early 80s. Treated in 2008_9 for 63 weeks on INF/Riba. Commence Sof/Dac on 6 October 2015 and completed 18 weeks of tx. UND at 4-6 weeks, UND at EOT, SVR 2, SVR 6 and SVR 12 on 6 May 2016.
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Joy To the World 3 years 10 months ago #1305

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Joy wrote:
MAY ALL OF US HEPPERS BECOME HEPLESS.
Amen!
Good luck, Joy!
Virus not detected from 14.10.2015
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Joy To the World 3 years 10 months ago #1307

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David Crosby has hep c.

en.m.wikipedia.org/wiki/List_of_people_with_hepatitis_C#Music

He had a liver transplant in 1994 paid for by Phil Collins.

en.m.wikipedia.org/wiki/David_Crosby#Medical_problems
Huon Valley, Tasmania
Hep C+ since 1980s
Genotype 1b
F3/4
VL 480,000
Started Indian Sof and Riba, BMS Dac (comp access) 28 August 2015
UND at 4 weeks
Finished treatment 19 November 2015
12 February 2016 UND SVR12
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Joy To the World 3 years 10 months ago #1310

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It may be helpful for you to read fixhepc.com/blog/item/17-lismore-liver-c...to-see-patients.html

The Lismore Liver Clinic nurses have been given official permission to monitor patients on treatment.

It's great to see government stepping up on this.
YMMV
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Joy To the World 3 years 10 months ago #1315

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Thanks Dr James, that is really good news. Guess I was a month too early. Do you know if the Gold Coast University Hospital Liver Clinic is also willing to monitor? I'm due for a Fibroscan there next week, and not sure whether to mention generics. Bloods in August were all normal.

Thanks Em and Nadia, and Chester - what an interesting list of celebrity heppers...from Linda Lovelace to Gomer Pyle. :)
NSW Australia. Genotype 1b 30+ years, F0-F1, VL 91,000 Feb 2015 (740,000 in 2010), Tx naive.
Ordered Sof/Dac from Buyers Club 21 Sept, received 14 Oct.
Virus UNDETECTED at 3 weeks AND 12 weeks (EOT) AND SVR4 AND SVR12 AND SVR24. :-)
A thousand thankyous to Dr James and the amazing FixHepC team.
Last Edit: 3 years 10 months ago by Joy.
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Joy To the World 3 years 10 months ago #1319

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At last we are seeing some commonsense creeping in.Just hope it spreads.
Gen 1b 40yrs,tx naive, f3/f4.VL too high to quantify.
Started tx 12Oct.sof and riba India via greg.Dac from Mesochem.
4wk result virus not detected,all liver functions in normal ranges.
Only SE intermittent insomnia.Feel great and grateful otherwise
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Joy To the World 3 years 9 months ago #1411

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Yes it's remarkable news really - NSW Health and ASHM (Australian Society of HIV/HBV/HCV Medicine) have joined forces concerning the importation of generics, endorsing the FixHepC Buyers Club as an option.

fixhepc.com/blog/item/18-ashm-position-s...sthash.BUzjjAZX.dpuf

Hope other states follow suit.

And I hope Dr James can cope. 3 weeks ago this site had 4000 hits. Now it's over 1.8 million.
NSW Australia. Genotype 1b 30+ years, F0-F1, VL 91,000 Feb 2015 (740,000 in 2010), Tx naive.
Ordered Sof/Dac from Buyers Club 21 Sept, received 14 Oct.
Virus UNDETECTED at 3 weeks AND 12 weeks (EOT) AND SVR4 AND SVR12 AND SVR24. :-)
A thousand thankyous to Dr James and the amazing FixHepC team.
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Joy To the World 3 years 9 months ago #1537

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Day 7 report:
  • more energy - HOORAY
  • need 1-2 less hours sleep each night
  • eyes have stopped itching (dry-eye symptoms before, using drops a few times daily, now not at all)
  • less trips to the loo at night, sometimes not at all (& I thought that was old age)
  • feels like I've been plugged back in to life's electrical circuit - or is that a coffee buzz? (only 1 shot a day)
  • mild brain fog sometimes - scoring lower on lumosity :ohmy:
  • But
overall feeling excited and empowered :woohoo: :woohoo: :woohoo:
And very grateful.
NSW Australia. Genotype 1b 30+ years, F0-F1, VL 91,000 Feb 2015 (740,000 in 2010), Tx naive.
Ordered Sof/Dac from Buyers Club 21 Sept, received 14 Oct.
Virus UNDETECTED at 3 weeks AND 12 weeks (EOT) AND SVR4 AND SVR12 AND SVR24. :-)
A thousand thankyous to Dr James and the amazing FixHepC team.
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Joy To the World 3 years 9 months ago #1539

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I play lumosity too! 3 games a day keeps senility away.
Huon Valley, Tasmania
Hep C+ since 1980s
Genotype 1b
F3/4
VL 480,000
Started Indian Sof and Riba, BMS Dac (comp access) 28 August 2015
UND at 4 weeks
Finished treatment 19 November 2015
12 February 2016 UND SVR12
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Joy To the World 3 years 9 months ago #1553

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:) Same here on day 7, Joy! :woohoo:
Joy wrote:
Day 7 report:
  • more energy - HOORAY
  • need 1-2 less hours sleep each night
  • eyes have stopped itching (dry-eye symptoms before, using drops a few times daily, now not at all)
  • less trips to the loo at night, sometimes not at all (& I thought that was old age)
  • feels like I've been plugged back in to life's electrical circuit - or is that a coffee buzz? (only 1 shot a day)
  • mild brain fog sometimes - scoring lower on lumosity :ohmy:
  • But
overall feeling excited and empowered :woohoo: :woohoo: :woohoo:
And very grateful.
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Joy To the World 3 years 9 months ago #1611

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Oops, spoke too soon.

Nausea again yesterday, and an angry red itchy rash on shin, thought it was a sandfly bite at first but it's grown to about 3" diameter & turning purple today. A 'fixed drug eruption' I guess.

But this too shall pass.

6 day blood tests showed my ALT and AST have dropped significantly (since last bloods in August). So something is happening. Looking forward to the viral load at 4 weeks.
NSW Australia. Genotype 1b 30+ years, F0-F1, VL 91,000 Feb 2015 (740,000 in 2010), Tx naive.
Ordered Sof/Dac from Buyers Club 21 Sept, received 14 Oct.
Virus UNDETECTED at 3 weeks AND 12 weeks (EOT) AND SVR4 AND SVR12 AND SVR24. :-)
A thousand thankyous to Dr James and the amazing FixHepC team.
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Joy To the World 3 years 9 months ago #1634

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Ohw...ok...!Joy wrote:
Oops, spoke too soon.

Nausea again yesterday, and an angry red itchy rash on shin, thought it was a sandfly bite at first but it's grown to about 3" diameter & turning purple today. A 'fixed drug eruption' I guess.

But this too shall pass.

6 day blood tests showed my ALT and AST have dropped significantly (since last bloods in August). So something is happening. Looking forward to the viral load at 4 weeks.
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Joy To the World 3 years 9 months ago #2543

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Bloods taken on day 20.

And the result is:

UNDETECTED!!!

WHOOOPPPEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEE

Can't stop smiling :woohoo:
NSW Australia. Genotype 1b 30+ years, F0-F1, VL 91,000 Feb 2015 (740,000 in 2010), Tx naive.
Ordered Sof/Dac from Buyers Club 21 Sept, received 14 Oct.
Virus UNDETECTED at 3 weeks AND 12 weeks (EOT) AND SVR4 AND SVR12 AND SVR24. :-)
A thousand thankyous to Dr James and the amazing FixHepC team.
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Joy To the World 3 years 9 months ago #2544

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That's fantastic Joy. So happy for you. Joy to the world indeed. :)
Huon Valley, Tasmania
Hep C+ since 1980s
Genotype 1b
F3/4
VL 480,000
Started Indian Sof and Riba, BMS Dac (comp access) 28 August 2015
UND at 4 weeks
Finished treatment 19 November 2015
12 February 2016 UND SVR12
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