TOPIC:

Hi all ,
I've just started my treatment 4 days ago.
Only early days but no side effects to date.
Is there anyone on here doing this same treatment ?

Wow u started! Great!

I still waiting for my twinvir

Hamilton--- Don't get it.What is the logic behind 24wks sof led,and only 12wks riba.Curious!

I'm geno type 1a, treatment experienced, fibrosis 3-4 bridging cirrhosis .
So being Gt1a is 24 weeks & early cirrhosis my doctor told me to be sure to be sure, we've included 12 weeks of Ribavirin

So where is the Twinvir coming from ?
Are you doing your own importing or is it through Greg geofferey ?
Is Twinvir Sof & Dac ?

Twinvir is Sofosbuvir plus ledispavir,ie Harvoni.
I am on sof plus declatasvir plus riba.

Miko 3 , what is your geno, fibrosis , past treatment ?

I am 1b,treatment naive,vl off the scale,enzymes not far above top of normal range,positive for, as far as I can quess ,38yrs ,fibroscan 14.1.fibrosis unknown but assumed to be f3/f4.no sign of cirrohsis when ultrasound done 3yrs ago . when I was told to wait,but probably there now.3 wks into tx with no side effects worth mentioning,and feeling better than I have for donks.I can really feel this stuff killing off the virus day by day.Cant wait to see what the 4wk test results produce.

Hi Miko, Do you mind me asking, are you well-built? It would be interesting to know which patients have no/more side effects according to weight, although I understand that not all may wish to share, but I would find it interesting as I am very tiny. LG

London Girl,Im 70kg5'9" slim and like to think I"m very fit,which I'm determined to maintain,whatever,and which I think is the real key as to why my journey so far has been easy.I know a lot of you out there are suffering.I just keep telling myself every time I down some of those pills I hear the dying virus scream in rage.Its been said before on these forums that except for riba,dosages are one size fits all.Probably as more and more info on dosages appears that will change.But that is Dr Freemans area of expertise.

Hi Miko, thanks for that, It is very interesting to me and I feel of interest to others here too, possibly in paticular female patients.

You are 6' 9" ? -Smiles, I am 5' 2"

Doing my own little 'research ' here

So if anyone would like to PM me their height, build, weight & sides if they don't want them on the forum for public scrutiny, please feel free

Ps Alsdad has a separate thred on here 'weight & patient dosing'

Sorry London Girl,I made a typo,I'm actually only 5'9"

He he I did wonder, thought you were joining the 'Too damn skinny club' along with me for a min

Hi Hamilton

We tried to chat the other day but the system was clunky. I'm emilio, geno 1b and currently day 20 of sof/dac and only doing 12 weeks at this stage. F2/3 approximate. Treated before with IFN/Riba and polymerase inhibitor in 2008 for 63 weeks. While F3/4 doesn't quite make you cirrhotic it's getting up there and I can see the need to hit this longer and harder maybe. What's your VL? starting. I was considering extending to 24 weeks but will make that decision in a week or so, just see how my body responds. In regard to the ribavirin, if it were me I wouldn't use again as a geno 1 but I do see the benefits in leading out with Rbv and leading in for that matter. I believe riba is still a must with geno 3 and moderate damage and extension. Em