TOPIC:

Cured? We need a favour... 8 years 11 months ago #1853

DrJames
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Having Hep C is a deeply personal and private issue so not talking about it makes sense for most people and that is absolutely fine.

We have a number of media outlets wanting to feature a story on fixhepc but it is contingent on having patients who have used the service willing to speak to it.

If you are prepared to share your personal journey please drop us a line at This email address is being protected from spambots. You need JavaScript enabled to view it.

Telling your story just might save somebody else's life.

YMMV

The following user(s) said Thank You: Joy, WishIWasAWombat, Paul-Jarman-facebook

Cured? We need a favour... 8 years 11 months ago #1871

WishIWasAWombat Offline Junior Member Posts: 23 Thank you received: 40	I am going to write to the pollies, ask them to lobby to import from china and india. I'm happy to be personally named in any written thing like a newspaper. Diagnosed in the early 90's, geno 3, had Interferon 2006, currently on Sofosbuvir & Daclatasvir NO VIRUS @ 4 WEEKS of Sofosbuvir & C Daclatasvir Still free - SVR4 and at 8 weeks too Still free at 7 months, CURED!!

Cured? We need a favour... 8 years 11 months ago #1874

tweakmax Offline Elite Member Posts: 256 Karma: 2 Thank you received: 301	I don't think we can lobby for generics to come in. The governments killed this avenue with the signing of trade pacts and approving patents for big pharma.

Cured? We need a favour... 8 years 11 months ago #1878

Vicki Offline Senior Member Geno type 3b. On sof/dac for 12 weeks. Posts: 45 Karma: 2 Thank you received: 39	I've been thinking that it is important that the media now has the voice of the 'Generically Cured' to speak of the process and outcomes. Let me have a wee think about it and talk it over with my family.

Cured? We need a favour... 8 years 11 months ago #2076

emilio
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In the field of opportunity its ploughing time
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Hi James

I'm your man and happy to assist with this media initiative or anything that's going to help the cause. Happy to be named etc and talk about my journey and involvement with FixHepC. Em

Geno 1b F2/3 snce early 80s. Treated in 2008_9 for 63 weeks on INF/Riba. Commence Sof/Dac on 6 October 2015 and completed 18 weeks of tx. UND at 4-6 weeks, UND at EOT, SVR 2, SVR 6 and SVR 12 on 6 May 2016.

Cured? We need a favour... 8 years 11 months ago #2077

emilio Offline Moderator In the field of opportunity its ploughing time Posts: 382 Karma: 8 Thank you received: 475	Hi James Responded to the media team. Em Geno 1b F2/3 snce early 80s. Treated in 2008_9 for 63 weeks on INF/Riba. Commence Sof/Dac on 6 October 2015 and completed 18 weeks of tx. UND at 4-6 weeks, UND at EOT, SVR 2, SVR 6 and SVR 12 on 6 May 2016. The following user(s) said Thank You: Joy