Welcome, Guest
Username: Password: Remember me

TOPIC: Joan Started treatment

Joan Started treatment 3 years 11 months ago #3597

  • Joan
  • Joan's Avatar
  • Offline
  • Senior Member
  • Posts: 71
  • Thank you received: 95
  • Karma: 1
Hi Lynne

good to hear your managing work and that no 2 days are the same. Thankfully. I have heard that the insomnia can shift and last night I had a reasonably normal sleep. Woke up but went straight back to sleep without the vivid dreams.

I look forward to hearing your 4 week results. Thank you for your well wishes.

All the best for you too.
GT2B Diagnosed 1989
Started Tx 6.Nov.2015
F3 Fibroscan 17: April.2015
Alt PreTx: 186 Ast PreTx: 157 VL PreTx: 733,000 27.10.2015
Alt Week 4: 14 Ast Week 4: 28 VL Week 4: UND 7.12.2015
The administrator has disabled public write access.
The following user(s) said Thank You: Lynne-Francis-facebook

Joan Started treatment 3 years 11 months ago #3622

  • Chejai
  • Chejai's Avatar
  • Offline
  • Elite Member
  • G3a 35yrsHCV
  • Posts: 272
  • Thank you received: 289
  • Karma: 1
Thank you very much for sharing your experience Joan. Your description of your insomnia pattern is exactly what I've had forever! For many years the struggle to fall asleep but always waking around 4 am and then unable to get back to sleep until about 7am, very deeply and full of lively dreams! But I've been on an antidepressant for years that I take before bed because it's sedating - so fall asleep easily (most nights) BUT still wake at 4 am etc.
I only have coffee in the morning and if I have tea at night it's herbal. Careful with diet, don't tolerate a lot of things especially sweet/sugary things. I drink lots of water though.
As you say it's going to be different for everyone just as our experience of living with Hep C has been.
Wishing you well :)
QLD Australia ☀️
G3a HCV 35 yrs Tx naive
Started Sof/Dac 13/01/16

Dec '15
AST 70
ALT 89
GGT 124
Fibroscore 8.5
F1-F2
13 Feb'16 VL UND #woohoo!
AST 24
ALT 26
GGT 50H
The administrator has disabled public write access.

Joan Started treatment 3 years 11 months ago #3734

  • Joan
  • Joan's Avatar
  • Offline
  • Senior Member
  • Posts: 71
  • Thank you received: 95
  • Karma: 1
Hello

Today is day 23. All going along ok. Happily my sleep patterns are starting to get back to normal. The past few nights I have still woken up after 3 hours but I go straight back into a normal sleep. Not this hovering not asleep not awake state. What a relief.
Hope it keeps up as when I have a good nights sleep I definitely feel better.
GT2B Diagnosed 1989
Started Tx 6.Nov.2015
F3 Fibroscan 17: April.2015
Alt PreTx: 186 Ast PreTx: 157 VL PreTx: 733,000 27.10.2015
Alt Week 4: 14 Ast Week 4: 28 VL Week 4: UND 7.12.2015
The administrator has disabled public write access.
The following user(s) said Thank You: Chejai, Lynne-Francis-facebook

Joan Started treatment 3 years 11 months ago #3736

  • zhuk
  • zhuk's Avatar
  • Offline
  • Platinum Member
  • Posts: 551
  • Thank you received: 502
  • Karma: 3
Great to hear you're going so well Joan, with few sx and very positive that your sleep patterns seem to be normalising. Good stuff :)

Curious as to what mine will be, since I have fairly broken sleep anyway. Ironic that after so many years of having the virus and just putting it out of my mind, that I'm so impatient now lol
GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 - 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 - 6 weeks UNDETECTED
AST 26
ALT 26
The administrator has disabled public write access.

Joan Started treatment 3 years 11 months ago #3904

  • Life
  • Life's Avatar
  • Offline
  • Elite Member
  • Geno 3, started TX 15th october 2015. Mesochem
  • Posts: 174
  • Thank you received: 186
  • Karma: 3
Thanks, Joan, I feel the same...not into socialising, and not really talking about treatment...vulnerable is a side I have aswell at the moment...It feels like the past is catching up or something....bizarre...but besides that I feel ok...no other sides...thanks for your posts....
The administrator has disabled public write access.

Joan Started treatment 3 years 11 months ago #5664

  • Joan
  • Joan's Avatar
  • Offline
  • Senior Member
  • Posts: 71
  • Thank you received: 95
  • Karma: 1
Hello

I have been absent for a couple of weeks…I have currently passed the 6 weeks mark of treatment and am on the downhill run…at week 4 I had my bloods done and I am HCV free…with normal liver function tests…great news as I have had hep C for 40 years…sleeping patterns still interrupted but getting used to it. I am doing so much at the moment..without the normal dragging myself around..I have much more energy…For the first time in years I have a clear head, no brain fog, I have no nausea, no tightness in my liver and more energy…

Have just turned on the TV and seen the news about the announcement of the new drugs on PBS..fantastic!!! It gives so many people the chance of a cure.
I thought for a moment... should I have waited for the announcement and not purchased the drugs? And the answer is NO!! I have absolutely no regrets or doubts that paying for the drugs was a mistake. It has been incredibly empowering for me to value my life and take it into my own hands without waiting or stalling, being able to make my own decisions and not getting any sicker has been one of the best things I have done. As soon as I started treatment the anxiety of waiting left me.
.
GT2B Diagnosed 1989
Started Tx 6.Nov.2015
F3 Fibroscan 17: April.2015
Alt PreTx: 186 Ast PreTx: 157 VL PreTx: 733,000 27.10.2015
Alt Week 4: 14 Ast Week 4: 28 VL Week 4: UND 7.12.2015
The administrator has disabled public write access.
The following user(s) said Thank You: Archer, Life, Joy, LondonGirl, Chejai, Lynne-Francis-facebook, zhuk, IRMA88, MtGoat

Joan Started treatment 3 years 11 months ago #5667

  • zhuk
  • zhuk's Avatar
  • Offline
  • Platinum Member
  • Posts: 551
  • Thank you received: 502
  • Karma: 3
Couldn't agree more, Joan...we have been given the remarkable chance at a cure, and now your waiting for that is over. Great to hear, congrats :)
GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 - 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 - 6 weeks UNDETECTED
AST 26
ALT 26
The administrator has disabled public write access.

Joan Started treatment 3 years 11 months ago #5668

  • CJ
  • CJ's Avatar
  • Offline
  • Platinum Member
  • Posts: 373
  • Thank you received: 419
  • Karma: 4
Congrats Joan! :cheer:

I didn't hear the news about the orals??!
is that here in Oz?
J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results....pending....
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!
Last Edit: 3 years 11 months ago by CJ.
The administrator has disabled public write access.

Joan Started treatment 3 years 11 months ago #5669

  • zhuk
  • zhuk's Avatar
  • Offline
  • Platinum Member
  • Posts: 551
  • Thank you received: 502
  • Karma: 3
GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 - 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 - 6 weeks UNDETECTED
AST 26
ALT 26
The administrator has disabled public write access.

Joan Started treatment 3 years 11 months ago #5670

  • CJ
  • CJ's Avatar
  • Offline
  • Platinum Member
  • Posts: 373
  • Thank you received: 419
  • Karma: 4
OH! yes, just saw Doc James post!
Amazing!!!!
Must admit I'm surprised, but i'll believe it when I see it, ....will a billion cover it for everyone?
Hope so?
x
J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results....pending....
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!
The administrator has disabled public write access.

Joan Started treatment 3 years 11 months ago #5673

  • zhuk
  • zhuk's Avatar
  • Offline
  • Platinum Member
  • Posts: 551
  • Thank you received: 502
  • Karma: 3
If they're talking about a billion/year, then it will take (thanks for the number-crunching Vororo!) just over 11 years for the currently infected population.

Although the article doesn't mention a lump sum or yearly expenditure :unsure:
GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 - 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 - 6 weeks UNDETECTED
AST 26
ALT 26
The administrator has disabled public write access.

Joan Started treatment 3 years 11 months ago #5679

  • Joy
  • Joy's Avatar
  • Offline
  • Elite Member
  • Posts: 218
  • Thank you received: 265
  • Karma: 0
It's a billion over 5 years according to ABC news:

www.abc.net.au/news/2015-12-20/federal-g...-c-treatment/7043624
NSW Australia. Genotype 1b 30+ years, F0-F1, VL 91,000 Feb 2015 (740,000 in 2010), Tx naive.
Ordered Sof/Dac from Buyers Club 21 Sept, received 14 Oct.
Virus UNDETECTED at 3 weeks AND 12 weeks (EOT) AND SVR4 AND SVR12 AND SVR24. :-)
A thousand thankyous to Dr James and the amazing FixHepC team.
The administrator has disabled public write access.

Joan Started treatment 3 years 11 months ago #5680

  • zhuk
  • zhuk's Avatar
  • Offline
  • Platinum Member
  • Posts: 551
  • Thank you received: 502
  • Karma: 3
Thanks for the clarification Joy.

So that's 11.000-odd of the sickest patients over 5 years - great that they will get help so badly needed. However this is still a triage-due-to-cost and will be by no means available for all. And after that 5 years, another billion?
GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 - 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 - 6 weeks UNDETECTED
AST 26
ALT 26
The administrator has disabled public write access.

Joan Started treatment 3 years 11 months ago #5690

  • coral
  • coral's Avatar
  • Offline
  • Platinum Member
  • Posts: 579
  • Thank you received: 1718
  • Karma: 32
That's great news Joan! Congratulations!
I agree with you - I am also really pleased that I didn't wait. It will take quite a few years to treat everyone and we now have those extra years back and the government can treat more people in the meantime. :cheer:
G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back!
New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217.
SVR12 and SVR 24...
The administrator has disabled public write access.

Joan Started treatment 3 years 11 months ago #5694

  • Joy
  • Joy's Avatar
  • Offline
  • Elite Member
  • Posts: 218
  • Thank you received: 265
  • Karma: 0
Joan wrote:
I have absolutely no regrets, or doubts that paying for the drugs was a mistake. It has been incredibly empowering for me to value my life and take it into my own hands without waiting or stalling, being able to make my own decisions and not getting any sicker has been one of the best things I have done. As soon as I started treatment the anxiety of waiting left me.

I totally agree Joan!

Thanks to Dr James and the fixhepc team we have been given the gift of taking control of our own health. A huge hand up.

As we look ahead into the next century, leaders will be those who empower others. Bill Gates
NSW Australia. Genotype 1b 30+ years, F0-F1, VL 91,000 Feb 2015 (740,000 in 2010), Tx naive.
Ordered Sof/Dac from Buyers Club 21 Sept, received 14 Oct.
Virus UNDETECTED at 3 weeks AND 12 weeks (EOT) AND SVR4 AND SVR12 AND SVR24. :-)
A thousand thankyous to Dr James and the amazing FixHepC team.
The administrator has disabled public write access.
Time to create page: 0.151 seconds

Copyright © 2015-2019 FixHepC

Back to Top