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Hi Jolie , Thankyou,
I Think this will become more common, the NHS monitoring. I am glad that our beleaguered health system isn't having to pay the exhorbitant price tag for my meds.
How are you finding treatment these days?
Debs X

Debs wrote: Hi Jolie , Thankyou,
I Think this will become more common, the NHS monitoring. I am glad that our beleaguered health system isn't having to pay the exhorbitant price tag for my meds.
How are you finding treatment these days?
Debs X

I agree as to NHS, hopefully this year more people from the UK will decide to treat with generics, as the more people "make noise" about it the better, spreading the word.
I did point out to my doc that I just saved the hospital 80K by buying my own tx.

Thanks for asking, tx been going good, felt a little better each day until Xmas when I developed flu & have plummeted right down where I started; wooly/foggy head, exhausted, bit of fever, etc. so had to postpone my blood tests until I feel better.
I've been really pushing myself with work before tx & hitting out shops full of sneezing & coughing people, that was a mistake, but felt really well for few days & just wanted to "go out", so here we're…
I'm feeling a bit better today, so hopefully will be fine by next week.

Debs wrote: Ha Ha, LG, like it! Why not?
Yes, we will be looking out for that postman next week!
Thinking about it I will probably take mine after my appt. on the 12th. They may take some bloods etc. And you might not be able to wait that long!
Thanks everyone for the well wishes!
Alsdad, I am northern but I don't want to say anymore than that at the moment as I am very aware that my lovely consultant and nurse are going a bit out on a limb here and I dont want to land them in it so to speak. A few of us on here seem to have managed to get NHS monitoring though.
They do want to administer ribavirin though. I guess because NHS guidelines are 8 weeks Harvoni with ribavirin for non cirrhotics. I think they are re-considering as I am getting 12 weeks meds. I hope so!
Warm wishes to you all
Deb X

Sad state of affairs in our country, isn't it Debs? Consultants having to defy NHS managers and fly under the radar to make sick patients well. Hold out on the Riba. I doubt any Doc with good access to the new DAAs will be prescribing it in a year's time.

Great to meet you Debs and wishing you a bleedin brill result we are going to be tx buddies I start soon too as you saw
Thanks for the props and right back atcha xxx

Thanks Ariel, yes tx buddies!
A batch of us!

Alsdad, I know what you mean about sad state of affairs but I think it will change, albeit slowly. You were one of the first to go it alone in the u.k am I right? and that's got to be hard, I couldn't have done it. I have been lucky to have been able to push at what I sensed was a door that wasn't locked, and am so grateful.
Deb X

Hi Alsdad, I agree, it is a sad state of affairs. Read an article on a cancer specialist recently who said he felt he had to follow such strict protocol, that he felt he could not help terminally ill patients with any ideas relevant to their individual cases and therefore 'couldn't be a Dr' due to beaurocracy - Madness.

Good luck to you Debs with your NHS support, it's never easy when dealing with the NHS these days. My end, I'm still waiting on my new consultant referral, everything takes so long! Had to leave that *very unpleasant* (feel free to insert alt words) last consultant I was allocated when my previous lovely one left my hospital. Shame, as that hospital is such a good one. At the end of the day, if we are not receiving'appropriate care' from our consultants, it is our right to change under Patients Choice.

This seems to have got a bit long Sorry !
We're nearly there Debs

Hi LG, I know what you mean, we have got used to long waiting lists with the NHS and also varying standards of care.
Hope your new consultant gets a move on.

Yes we are nearly there LG!
Deb X

Hey Debs, I feel so much more cheery already ! The kindness I have experienced on this forum is something else, it really helps me to keep the faith that there are still good people in this world and now, the practical reality of help