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Thank-you so much Magpie - 'The Way' is quite the best film I have seen in ages.

It does start sadly & is very sad in parts, but the parts that brought a tear to my eye were the uplifting scenes about non-judgement and friendship between people who would not usually meet and the film leaves a very positive feeling.

I recognised some of the route from the books, really enjoyed this and it certainly relates to our journey.
Perfect for Sunday viewing. I highly recommend it.

Hi Ariel DT, Changed my mind, now feel this is some sort of an infection.
Immune kicking in and low back pain, itchy shins have now appeared/
Am totally blocked up, room spinning on waking early hours, chesty cough etc.
Boring !

I feel so very isolated, abandoned - my family and friends back 'home', haven't contacted me to see how I'm doing - and very alone on this journey. It still amazes me how no-one wants to talk about this 'virus' and they'd rather ignore me than confront it.

Chejai,

Know exactly what you mean, I think everyone here would know how you feel.

That's why this forum is so good, everyone "gets" you.

If you ever want to chat, please PM me, I can give you my mobile.
Always good to talk when you feel down.

Hugs,
Cindi xo

If you ever want to chat, please PM me

Yes,I am here too Chejai if you ever want a chat, although I can't offer phone number as wouldn't want to add a giant phone bill to your situation

you can phone via viber or whatsapp to anyone anywhere as long as you have a wifi connection. it doesn't cost anything it's a free app for your cell phone. you just both have to have the same app downloaded onto your cell and a wifi connection. you can also text on it for free if you choose.
hope you are in better spirits soon

Chejai wrote:

magpie wrote: London girl your tests are great, so happy for you and thankyou for the post.
Sharing helps everyone.
I find walking is the best thing for back pain and sadness.
If you get an opportunity watch a movie called The Way. Its about the Camino de Santiago in Spain. My daughter is walking it in June so I was interested in the movie. Might even consider walking it myself!

Great Movie Magpie, it was very profound - although some could watch it and not take in the soul-searching aspects - it was such a beautiful and honourable journey the father took. It made me wish I could go and do it! It was reminiscent of the movie, 'Eat, Pray, Love,' taking a physical journey in order to make a spiritual one.

Congrats LG on your latest blood results
Well LG, I could quote you again and Debs and Ariel - OMG! You described EXACTLY how I'm feeling. Hey, if ever you want to discuss GI probs (gotta love autocorrect trying to put the word 'probe' after GI ) re your 'stools' I'm not too embarrassed
Alternating diarrhoea, constipation and pale 'floating' stools
I take Inner Health Probiotics daily to help with these issues. Constipation - I eat extra fibre e.g. fruit, greens; if that fails I take 'Super Greens', tablets - they contain Spirulina, Chlorella, Barley Grass and Wheat Grass - also comes in powder forms to mix in smoothies etc. Great source of protein and heaps of vitamins, excellent for vegans. I'm not taking it daily, only for constipation, 3-4 tablets and plenty of water.

Of course you could try the old remedy of drinking Epsom Salts in water but only if you can control the gag reflex!
I have continued with the Magnesium through Tx because the lower back pain, muscle spasms, leg cramps at night etc., are all improved by taking it. When I've not had enough money and gone without I really notice these symptoms hit back.

As you say, travelling about and eating out can mess you up, so try and take probiotics with you. Many have to be kept in the fridge but there are varieties for travelling.

I'm also finding walking is very therapeutic lately. I've noticed I'm able to walk 2x p/d now, whereas previously I was in so much pain and fatigue in the am, I couldn't do a walk.
I had a massive meltdown yesterday and was stressed out and crying - haven't been this bad for awhile, all my emotional stuff catching up with me - so, I stopped what I was doing and took my son and our dog off. Even though it was wild weather, strong gusty winds and spitting rain, we've had storms on and off for 1 1/2 weeks now.

Wow, it was so cleansing and emotionally I was a lot calmer when I got back. Totally weird because I HATE the Wind - it usually makes me very cranky and irritable.

Yes, things are changing within...a lot of soul-searching, reassessing my life, reviewing regrets, trying to just 'let shit go'! It is hard there's a lot to forgive and I'm really beating myself up with a lot of 'what ifs.'
It is a grieving process, finally having a chance to be virus free and 'healed' and looking at how its affected my life - 35 years having this. I feel so very isolated, abandoned - my family and friends back 'home', haven't contacted me to see how I'm doing - and very alone on this journey. It still amazes me how no-one wants to talk about this 'virus' and they'd rather ignore me than confront it.

As I've said before I couldn't do this without the support and opportunity to vent anything and everything here and not 'feel' judged.
Thank you all and I feel so much better knowing others are feeling the same - although I don't mean I'm glad others are feeling alone and depressed etc
Lots of to you all

Well here's a huge hug Chejai
We are dealing with purging a lot of grief and real stuff and yep being dumped by family is a sharp knife but I still believe family doesn't need to be blood (mine don't want anything to do with my blood either lol) jokes aside, yep it's important to just be warts and all here. I'm stoked we are here together
The support here is real isn't it
All the stories we share from our silence are so healing
Big love Chejai
I know that the feeling of being able to talk without fear is a release
Love from Ariel

LG if its a proper cold or sinus infection that totally sucks while on tx
I'm sure my grotty nose and slightly grotty throat is a sx fortunately
Snuggle in
The short days and cold of London wont be helpng
Xxx hugs A

Yes !! You are always welcome I will!! traval to london this summer!!!!

Life your optimistic sunny nature is pure inspiration

Agree!

I know a medical herbalist with scientific degrees etc etc They say you shouldn't take Probiotics 'willy nilly' and you have to get the right ones, balance them correctly and for you as an individual and add with other things. They also do the poop test and send it to Germany for a thorough diagnostic. Think I'm going to go for this EOT. The Germans are so up on bowel and digestive function, apparently some even having 'see trough loos' so you can keep a eye on your poop!

LG, I certainly agree not taking things "willy nilly", I take a specific kind for IBS and my son also has a specific kind. I know they work, I know the results happen quickly, I know the difference when I have run out. So, by all means get your scientist friend to advise but given the problems during Tx I'd suggest doing it now and not at the EOT. That's right we need 'probiotics and prebiotics' - different forms and finding what works for you. If you have someone to do that for you then take the opportunity.

Wow, the Germans - I know people call them 'anal' but that is literal!! "See-through loos"
Apparently the Japanese have quite an obsession with their 'loos' and digestion etc.

Certainly true if our intestines are toxic so is the rest of us. It's well known, the cognitive impairment that occurs in severe cirrhotics is due to their liver not detoxifying everything as it should and sending this into the small intestine where the toxins get absorbed and sent to the brain.

We might be on opposite sides of the world LG but I'm also very blocked up in sinuses, phlegm and irritated dry cough, headache, dizzy spells - I thought it was the weather but you've got me thinking now.
I have had a few brief episodes of this 'fluey' feeling so far.

"Well here's a huge hug Chejai
We are dealing with purging a lot of grief and real stuff and yep being dumped by family is a sharp knife but I still believe family doesn't need to be blood (mine don't want anything to do with my blood either lol) jokes aside, yep it's important to just be warts and all here. I'm stoked we are here together
The support here is real isn't it
All the stories we share from our silence are so healing
Big love Chejai
I know that the feeling of being able to talk without fear is a release
Love from Ariel"

Thanks Ariel! Yes, purging indeed, even this 'gunk' from throat and sinuses is symbolic as is the GI stuff we're referring to.
LG, I really hope you're feeling better soon

Thanks again, Love to you all

Thank you, soon-be cleaners!

Off out into the cold to get bloods done today.
Still suffering.
Chest infection responding to antibiotics very slowly each day only have 2 days left, hope they do the trick.
but the worst of it is the Sinusitis, this is a pain... in the head, eyes , teeth, nose and eyes!
Very bored of it , two weeks now.
I feel very toxic from drugs, bad taste in mouth & throat.
Hey ho, hopefully bloods will cheer me up a bit.
Missing my 'Harvoni High' at this point!
to all.

ps Ariel, my BP is up too, but Dr said not too bad and probably a good thiing and better than low, keeping an eye on it, hope you get yours sorted xx

Good luck with those bloods LG
Keeping everything crossed for you!

Ty beautiful girl yes thanks to Dr James and my GP my ridiculous BP has dropped to a diastolic that is not too stupid to write up here
I was a rocket about to blast off lol
Still sleepy here too but a pro-active day ahead
Thinking of you and your results
Both of us need to see that UND printed on our next results