LondonGirl wrote: Chejai said
He wanted to know what was my spiritual and moral standpoint
So totally shocked re this - Outrageous and if you had recorded him ,I 'm sure he would have been in trouble. Sounds like he though "female, upset....can be bullied" - Phew, look him up Chejai, can you remember his name? I wonder where he is now? (If he's still practising) At least you could advise others (especially females) not to go to him by whatever means.
like many when I'm stressed, upset and vulnerable I can't seem to protect myself at the time. I take awhile to process things, I need to go to my cave with no other incoming stimuli
I hear you there...I am the same. Now, I just keep very quiet when a specialist says something. I try to give my self some time to process and if necessary, I scribble it down in my large blue note book and ask them if it would be possible to think about his/her advise and get back to them re that.
As my lovely GP said ages ago - " You need to have faith in those who are treating you" - This has become more and more apparent as time has gone on.
HI girls, I am replying to you both and all these posts , I am same day as Chejai; at our Day 14 anniversary
Okay, re the way you were treated Chejai,, that is absolutely disgusting; the whole demeaning, down the nose rot about alcohol, about your spiritual wellbeing etc...can this person actually see inside your brain and heart and are they on your shoulder pitty patting around noosing into every corner of your life rating you on a 1-10 scale of their judgement!
LG when you get on the plane to come help me quietly and sweetly tar and feather my loud receptionist there's a room here for you hunny.
I have one last anecdote to add to the stigma list..(gosh it is good to be able to get this out) .
I am sitting in my initial interview to be eligible for the 'trialthattnevercame' and without even looking at my face the question "are you still using?" me: Yes, I am using panadiene and BP meds. PHFTTT!!! I am sitting there in my Zara pants my fancy sweater etc how rude!
I do not judge a book by it's cover, and am tired of having to present in this fancy groomed manner anyway, but I also do not care if people are users, are in trouble mental health wise, are drinkers, or anything all these are symptoms of something else anyway!...how rude though, what is wrong with realising I am a nice lady albeit an anxious one, in a rotten bind, seeking help and why not, when asking questions from that list they have at least it could be a softer delivery eg an intro along the lines of...'now the next question may be a tad confronting but we have to ask...." or similar!..Anyway next question from screening person (no names or hospitals mentioned but yes famous on our blog LG and buddy with said receptionist she of the 1000 decibels): "When did you stop using" and me: 'I am still using those meds thankyou'.
I just fight fire with water. It always works for me.
Now I think I will invest in the BLUE BOOK. What a brilliant foil for this rot we are all anecdoting here.
Clearly we are only about our health, our life, our regaining what we have had to lose to this bugger. Maybe I will draw a big evil face on the front of it too!
Seriously who the hell cares how anyone got HepC or B or anything for that matter...dementia, anything!
It reminds me of the many times I have had to go in for scans and so on to check my nodes and a few lumps and bumps that this pooey thing has caused with my immune system trashed...why are these places painted pink in general? Do we need to be reminded of why we are sitting there? Why are there yellow daffodils made of crepe and tissue paper stuck like a garden on the wall in the MRI place. Is this to assist us with our anxiety levels? NO
I am grumpy today, and I am not on my own blog, we had yet another drowning here at the surf yesterday and the only damned surf safety sign anywhere is one that I made and donated to the community after the last death and I am tired and sick of lobbying for just about everything. I was at the beach yesterday and right in the middle of it when it occurred. I am grumpy.
I also want to say on our case here re HCV that there does need to be a step up on what is happening in the States, that it is a disaster.
I am going to try to finish on a bright note...End of week two and still following you like a domino that wont fall down here LG.
One awesome thing from my Sunday..I dropped into a garage sale yesterday and met an amazing couple of Brits. The wife worked at the Speakeasy Club in the heyday 1966-late 70's in London!!! Oh the marvellous anecdotes she shared with me oh the wondrous tales off who she partied with, Hendrix, Bowie and all.... I had my David Bowie T shirt on yesterday. I purchased a lovely cane screen that they had brought over from their London home which she had used to do 'psychic readings' behind! How cool is that I am in love with it just for it's history. I paid the princely sum of $30AUS for this cane screen holder of secret shenanigans!
Now I have completely hijacked your thread I will bid you adieu and swim on over to my page to anecdote last night because I want to share about a few things medically speaking.
Lots of love from here in Oz
Ariel