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'In which LG seeks Redemption & makes new friends' 6 years 6 months ago #19059

  • CC2B
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Finally almost to EOT :+1: and still UND :woohoo:
Great News :) #flower #love
GT2b diagnosed 10/2015
since: unknown
11/20/15 VL= 214,070
12/4/15 ALT=18 AST= 24
1/16/16 started sof/dac
2/13/16 @4wks VL=UND ALT=13 AST=22
3/12/16 @8wks VL=UND ALT=10 AST=18
4/9/16 EOT VL=UND ALT=11 AST=19
9/23/16 SVR24 ALT=11 AST=22
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'In which LG seeks Redemption & makes new friends' 6 years 6 months ago #19060

LG,
You've had a long haul but staying und to this point is truly exciting. It inspires hope for the rest of us looking ahead to the same results. Thanks for posting. Sorry to hear about your other ailments. So, you're saying your "old self" was tired, grumpy and prone to nightmares??? :woohoo: Welcome to my world! :lol:
Hang in there LG. :+1:

MK
GT1a; Got it some time in the 70's; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA "NOT DETECTED"
AS OF 3/20/2017 ,Hep C RNA PCR "NOT DETECTED" THAT'S SVR24!
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'In which LG seeks Redemption & makes new friends' 6 years 6 months ago #19080

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MK said ...

So, you're saying your "old self" was tired, grumpy and prone to nightmares???


Ha ha ....
No!! :P

I knew I had worded that one wrong! :silly:

I guess, more inspired .... more interested in life, maybe?
When I think to how ill I was a year ago too and severely lacking in energy....You know?

Thank-you all for your good wishes, helps to keep the heebee jeebees away :+1:

Mrs GrumpButt...I mean Mrs Hopeful and grateful ;)
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
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'In which LG seeks Redemption & makes new friends' 6 years 6 months ago #19175

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Hi lovely lady
I'm so happy for your continued UND it's great how hard you have worked at this and hung in there for much longer than originally expected and managed less than ideal conditions at times in care locally especially path and so on plus the exorbitant costs of labs in the UK. I'm sure you have inspired a lot of people who are looking for their cure to go for it. Commitment even when you were crook early on and trail blazing generics in the UK with your blog and lobbying that you do so quietly and for all others benefit.
You so deserve a great EOT and to get your SVR LG
big splashes
Ariel #flower #flower #love
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
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'In which LG seeks Redemption & makes new friends' 6 years 6 months ago #19229

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BIG #love Sista xxx
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
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'In which LG seeks Redemption & makes new friends' 6 years 6 months ago #19238

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Hi LG
so strong
so kind
congratulations from me
#woohoo!

gt 1a VL 6m
F2/3 FibroScan - 9KPa in 2011 and 7KPa in 2015
sof/dac 10 December for 12 weeks
pre tx alt 85 ast 51
4 wk alt 34 ast 31 UND <35
8 wk alt 29 ast 32 UND <15
12wk alt 25 ast 25 EOT 3.3.16
SVR24 UND KPa5.3 F0 in normal range
I am well
.forever grateful to fixhepc
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'In which LG seeks Redemption & makes new friends' 6 years 6 months ago #19259

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Thanks Pat, there's alot of kind people around here :-)
#love
LG
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
The following user(s) said Thank You: pat1, fitz

'In which LG seeks Redemption & makes new friends' 6 years 6 months ago #19307

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Hi all,
OK, So most bloods are in range and Alt is good (13).
Neuts are a bit low, but not 'concerning'

I have stopped my VitB12 since starting the Sunprevir, does anyone know if I can take that with Sofo/Dac /Sunprev?
I only have 3 days meds left.

LG
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
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'In which LG seeks Redemption & makes new friends' 6 years 6 months ago #19311

That ALT is looking mighty fine LG - I reckon you have this in the bag, its Saturday morning here so its now 2 days left for meds? Hope you have something special planned to celebrate your EOT. #flower
SVR 24
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'In which LG seeks Redemption & makes new friends' 6 years 6 months ago #19336

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Hi LG

Congrats on the UND #flower #flower

Being new on the forum I quickly saw you are a little Dynamo. :+1:

They say that what does not kill you will make you stronger.

So you may want to think about a new moniker name. May I suggest SG (Super Girl) #flower #flower

Thanks for your boundless energy and inspiration. #love
GT 1a
VL 4.9M
F0-1
Since Late 60's
Meds Cipla SOF/LED
Start June 7, 2016
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'In which LG seeks Redemption & makes new friends' 6 years 6 months ago #19352

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Thank-you Cheese (cool moniker yourself, what would we do without you!)

Not sure about the SG tag ! I have received such kindness from the people connected to this forum and will never forget this, It's has inspired me and others on here to try to help those in the same boat in small ways. I have always got frustrated about injustice and believe HepC patients have been conveniently discriminated against, especially in England where they want to keep us stigmatised to save money , don't seem to have the 'will' to change things and where patient care for those with this condition is appalingly bad. Things are slowly improving thanks to all involved in the good fight, but we must care for each other in all corners of the world, very few others will..

I see you are a fellow 1a, wishing you all the very best for your treatment mate, keep us posted and ride on (see your bike pic) :+1:

ps 2 tomorrow is last day of tx !
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
The following user(s) said Thank You: Ariel, Tina-Hill-facebook, fitz

'In which LG seeks Redemption & makes new friends' 6 years 6 months ago #19353

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Fingers crossed for continuing UND, and go Andy Murray
Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
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'In which LG seeks Redemption & makes new friends' 6 years 6 months ago #19354

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Hey Beaches, how you doin' ?
Hope you're keeping yourself occupied, will be joining you in the waiting room soon !
#love
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
The following user(s) said Thank You: fitz

'In which LG seeks Redemption & makes new friends' 6 years 6 months ago #19356

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Hey LG,
Don't know if 'occupied' is the word for it today (Sunday)
7am ocean swim #love

remainder of morning coffee n chill with mates :+1:
slept ALL afternoon in preparation for Wimbledon men's final zzzzzzzzzz

But seriously - doing great post EOT thanks for asking. So happy to have cleared this nasty POS thing

Not too stressed about SVR because I know there are tolerable plan Bs if I do relapse.

Counting down to week of ocean swimming and humpback whale encounters in Tonga next month

Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
Attachments:
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'In which LG seeks Redemption & makes new friends' 6 years 6 months ago #19358

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7 am ocean swim


I am not the jealous type, but with this I'm turning a paler shade of green!
Summer hasn't started here ... Rain, wind, grey skies rool, worst in years.Something's gotta change.
I am looking for air tickets this afternoon! Swimming in a warm sea is just so healing.

Good to read your positive take on it, thanks Beaches :+1:
After " waking and taking " for over 6 months, it is a little daunting.

Great photo #love
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
The following user(s) said Thank You: beaches, cheese, fitz
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