Thought i´d introduce myself after spending some time on the forum and learing from all your experience.
First of all a big thanks to those setting up this site and all the helpful people in here! It is such a relief to find other people struggeling with the same thing all over the world and helping each other out. It has not been more than 10 days since I discovered fixhepc and within this week my meds will hopefully be on their way
My hep c was discovered after a routine check-up showed high ALT scores in 2011. I think I had to see about three doctors before one tested for hepc. To date I still don´t know where i contracted it and I´ll probably never find out.
The diagnose was a bit of a shock and I´ve only told some very close friends about it. The stigma that goes with the disease along with the fear of infecting my close family has been the worst part for me. I have been feelng tired over the last years, but I suspect that is mainly due to the sleeping habits of my now 3 and 5 year olds...
After seeing a couple of infectin specialists I ended up seeing a gastro specialist that was quite knowlegable about hepc. I was told that new medicines where just around the corner so I shouldn´t bother with the old treatment regime. In 2013 I was about to come one a trial of new medicines but, the trial was suspended.
Once the new medicines where starting to come out in 2014, the price tag was the showstopper. The norwegian healthcare system covers most treatments, but the Gilead pricing was too hefty. The current system requires a fibroscan at 7 kPa. My readings went from 4,6 - 4,9 - 5,4 - 6 and then down agian to 5,6... Last summer my good doc signed a prescription and an application for Viekirax/Exviera, but it vas denied.
Last week just days after I discovered this site my appeal was also denied.
I´ll keep you posted on how things move foreward with my quest to get genercis into the country and start my treatment.
That was a lot of words.... But I´d like to send a big thank you to LondonGirl for being extreemly helpul in the process so far!