emo Waiting game

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6 years 5 months ago #9242

Yup, MrMumbai was me :) :) . My first plan was to go to india to get meds. It´s still a plan B if the Redemption medication for some reason don´t get through to the UK adress.


Genotype 1b - Tx naive
Pre Tx Vl 8 900 000, Alt 52
2 weeks VL160
4 weeks VL 43
7 weeks VL UND
EOT UND
SVR 12 UND

Startet Tx 6. feb 2016 Hepcivir-L (Generic Harvoni from Cipla)
(REDEMPTION trial)

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6 years 4 months ago #9562

Good news tonight: payment has cleared and meds will be shipped :) :) :)

If no hold up at customs they will arrive by next weekend. Looking foreward to get the tracking number so i can follow the journey


Genotype 1b - Tx naive
Pre Tx Vl 8 900 000, Alt 52
2 weeks VL160
4 weeks VL 43
7 weeks VL UND
EOT UND
SVR 12 UND

Startet Tx 6. feb 2016 Hepcivir-L (Generic Harvoni from Cipla)
(REDEMPTION trial)
The following user(s) said Thank You: Chejai, Ariel, Gaj

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6 years 4 months ago #9564

Hi PauliNo,
It is an exciting time waiting for the medicine, I was often standing at my mailbox and had to check myself to stop doing that ha! I burst into tears when they arrived...it was like a miracle had happened. I wish I had found this place earlier but no regrets, only looking forward now. As others say, this site is a refuge, a support and a place where you can say as much or as little as you feel. Sometimes I just read others stories and check up on Dr James's posts rather than write out how I am doing, or just go over to the music party we have and listen to all the great music that people post from YouTube. Wishing you a great tx, a positive outcome and welcome from Ariel in Australia. I love your beautiful snowy picture.


Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
Last Edit: 6 years 4 months ago by Ariel.

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6 years 4 months ago #9627

Hi P,
Welcome!
Glad you found us.
Waiting is hard, buts its almost over.
Good luck!
Mike


This email address is being protected from spambots. You need JavaScript enabled to view it.
forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24

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6 years 4 months ago #9637

Hi P,

So happy for you.
wishing you all the best.

Frankie j. X

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6 years 4 months ago #9705

Things are moving in the right direction :) :)

Yesterday I met up with a new specialist and had a great experience. He did two rounds of Fibroscan, but no results high enough for putting in a new application for meds from NHS. Then I told him that I was waiting for generic medication organised through FixHepC buyers club. He was quite excited about this, as he had heard of buyers clubs but didn´t know of any patients that had tried it in Norway. He was very supportive about my choice and agreed to let me be followed by the hospital during treatment. As he said "you´ll take the medicines anyway, and it would be unethical not to follow you during treatment".

I let him have a copy of the concent form from the Redemption trial and told him that he could let other patients curios about genercis contact me. Interesting to see if others will follow.

He also confirmed that once the meds arrive I can start taking them and that there is no danger associated with taking sof/led. I got an updated VL above 9000 and my others results seemed fine.

Today I recieved the tracker code from monkmed and my meds are on their way from India :cheer: :cheer: Keeping fingers crossed they will get trhough customs without any trouble. Must say I´m very impressed with how well organised the Redemption operation is. Both monkmed and fixhepC reply to e-mails quickly and give good info all the way.

It´s been a good week :)


Genotype 1b - Tx naive
Pre Tx Vl 8 900 000, Alt 52
2 weeks VL160
4 weeks VL 43
7 weeks VL UND
EOT UND
SVR 12 UND

Startet Tx 6. feb 2016 Hepcivir-L (Generic Harvoni from Cipla)
(REDEMPTION trial)
The following user(s) said Thank You: Joy, LondonGirl, mgalbrai, Chejai, Lynne-Francis-facebook, MonkMed, splitdog

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6 years 4 months ago #9706

Welcome PauliNO
The waiting is the hardest, each morning, noon and night I'd check for the tracking number in my inbox. For me no tracking numbers ever arrived- just the meds. First Ribavirin then a week later the others.
I almost cried!
I wish you well in your journey.


EOT UNDETECTED
Week 8 all bloods within normal limits
Week 4 Undetected
2016 - 28 January started Harvoni & Riba treatment
VL pretreatment 639,000 alt- 77
2015 fibroscan - 6.6
2 x non responder peg interferon & riba
geno 1a

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6 years 4 months ago #9714

Hey Paulino - That's great news :cheer:

So pleased to read of your consultants response too - I have at last found a great consultant who is supporting me this way too - It really does help to restore the faith doesn't it :) and

it would be unethical not to follow you during treatment
seems to be the magic phrase that Drs who genuinely care about their patients wellbeing are using to help get their patients 'duty of care' - Good for him.

MonkMed are so organised regarding the tracking and keeping in touch, although a little nervous, I also found it kind of fun watching my little package make its way across the world, In fact Debs and I were having a little race !
Today I received the tracker code from monkmed and my meds are on their way from India
#woohoo! - Mine took 4 days - Customs no problem, as you know.

Delighted for you Paulino. Yep MonkMed &FixHepC definitely rock !

Here's to your good health :+1:


GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
The following user(s) said Thank You: MonkMed

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6 years 4 months ago #9725

Great news Pauli!

Both from Monkmed and your specialist. :cheer:


G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
The following user(s) said Thank You: MonkMed

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6 years 4 months ago #9737

Great News Paulino, this is the start of the rest of your Life! Good Luck on Tx :)


QLD Australia ☀️
G3a HCV 35 yrs Tx naive
Started Sof/Dac 13/01/16

Dec '15
AST 70
ALT 89
GGT 124
Fibroscore 8.5
F1-F2
13 Feb'16 VL UND #woohoo!
AST 24
ALT 26
GGT 50H

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6 years 4 months ago #9772

I am planning to order the Generic of Harvoni from MonkMed ITrial 3) but while checking on MonkMed Pvt Ltd in the directory of the Ministry of Corporate Affairs of India, I was really surprised to know tthat this company is not registered.

I had a very bad experience with online services and goods, I am twice shy (as you may understand).Please let me know your views on this. I really need the medication and won't like to see myself as a victim of my choice to buy or not buy.

I am not a rich man to spend US$ 1,600 for false hope.

Thanks for your reply

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6 years 4 months ago #9773

I can personally vouch for Monkmed as being totally reliable, a great service and they even go the extra mile beyond the call of duty in their care of patients / buyers. After all, Dr Freeman is partnered with them for Redemption Trials. I haven't read one bad thing about MonkMed unless maybe someone who wishes to discredit them somehow, but I haven't even read anything like that.

Hope this helps.

ps you can see my progress so far from their meds in my profile below my post


GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
Last Edit: 6 years 4 months ago by LondonGirl.
The following user(s) said Thank You: Gerges, MonkMed

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6 years 4 months ago #9774

Hi G,
MonkMed is the Real Deal. You can email me at the below address if you like. There are several really good options right now.
Shams and scams don't survive here.
Other than me, there's too many very smart and very wary people here for them to practice their vile sport.
Good Luck!
Mike


This email address is being protected from spambots. You need JavaScript enabled to view it.
forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
The following user(s) said Thank You: LondonGirl, MonkMed, Hazel

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6 years 4 months ago #9785

Hi Gerges,

This may also give you additional confidence in Monkmed. It is the U.S. govt's NIH listing of the Redemption trials.

www.clinicaltrials.gov/ct2/show/NCT02657...rm=redemption&rank=1

FixHepC is the sponsor and Monkmed is effectively the international coordinator.


G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
The following user(s) said Thank You: LondonGirl, mgalbrai, Gerges, MonkMed

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6 years 4 months ago #9788

I sent Monk Med my paperwork, did the phone call once my order was released by FixHepC
it was in London within the week.

They are excellent in communicating with you as you go through the process I honestly can't
say enough good things about them.

FixHepC uses Monk Med to process the orders you have nothing to worry about.

Order and get well.

I have also bought from FixhepC before the trials I had to extend treatment.


Sob/Dac from Oct 29 2015
Geno 1b
Fiberscan 9.9 Pre treatment
Fiberscan 7.4 week 10
VL 1.3 million pre treatment
Week 2.5 VL 96
Week 5.5 VL 17
Week 10 VL UD
SVR 3 UD
SVR 16 UD
Cured:
All liver functions in normal ranges.
Last Edit: 6 years 4 months ago by Sirchinenge.
The following user(s) said Thank You: LondonGirl, Gerges

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