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MtGoat USA/AUS Fix 6 years 8 months ago #8692

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I'm sharing my story because reading other posts got me to where I am now. All thanks to FixhepC & Hepmag & those who've taken the time to share information.
I've been living w/ hepc for 34 years, Dx in 96 3a. Treatment sounded bad so I've waited. Not with perfect behavior either. I initially never drank but have been drinking "socially" for the last 10 years. Always with the looming awareness of flirting with disaster. At the same time I started mountain biking and my blood work actually got better & better until my ALT & AST were in range & VL 11,000. I have felt good all these years. Last labs came up some though just as I caught wind of new meds.

So, I got online, found hepmag then fixhepc. Also made appt with a G.I. Who said he'd had no luck getting insurance co.s to approve Sof/Dac. The forums had warned me so I wasn't surprised. I asked the PA if he'd order labs if I got ahold of the meds. He said yes. He also encouraged me to wait on more meds to flood the market. I thought I'd wait for my first ins. denial then take action. But a few nights later I read a post by Splitdog in the US saying he'd received his meds from Australia. I asked how I could do that & Splitdog, CC2B, & Dr Freeman gave me the feedback I needed to place my order. All that can be seen on Splitdogs thread. So, package is on its way. It's time. Even though my labs have been pretty good, I have fatty liver & long term inflammation, and luck is bound to run out. I had a "Fibrosure" blood draw last week, but haven't seen the results yet.

I'm hoping to hear from & follow some you as we go through treatment together. I'll post milestones. Thanks again to those who paved the way. Best of luck to those embarking on the journey.
Cheers
3a for 35 years
Dx 1996, tx naive, ALT 46 AST 38 VL 140K
Started Sof/Dac 1/23/16
Kingswood generics AUS
2/19/16 4wk lab HCV Undetected ALT 14 AST 19
EOT 6/1/2016
TX was 18 wks (w/some 1/2 doses & 1 skip dose after 11 wks
while waiting for +6 wks to arrive)
SVR4 6/30/16
SVR12
SVR24 Redeemed

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MtGoat USA/AUS Fix 6 years 8 months ago #8701

Hey, good for you, Mt! Glad you got your meds, and hoping for great success for you. And thanks for sharing your story.

One way or another, I'm right behind you, though a bit farther behind than I'm comfortable with (TPP - trans pacific partnership BS). If not for waiting until next Friday to see my new GI (whom my PCP tells me knows all kinds of ways to get the meds I need), I'd be pulling the trigger now. Well that, and waiting on my pre-tx bloods.

And a fibro. There's a blood test for that?? Interesting. Maybe one of those 6 or more vials of blood I had drawn last week included that. Hmm...
Aand - but you were able to get your meds without that?

All the best,
Dude
The Dude is damn tired of abiding
Diagnosed 2001
Peg-int + Riba all of 2002, FAIL
Latest bloods 12/29/15:
Sodium, tad low
Glucose, way high
BUN, tad high
SGPT (ALT), 862 (15-78)
SGOT (AST), 283 (9-44)
ALP, 216 (37-127)
B/C ratio, 25.2 (10-20)
Cholesterol, tad low - HDL, good; LDL, 73 (80-130)
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MtGoat USA/AUS Fix 6 years 8 months ago #8705

Right on MtGoat. I am on day 7 now, and no SX. Keep us apprised! :)
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Genotype 3
VL 4,100,000
ALT 101 AST 71
Treatment Naive
Started Sof/Dac Jan 12, 2016
VL= <15 4 weeks in. AST/ALT normal.
VL=UNDETECTED 8 weeks in.
SVR4= Virus back. 3,300,000

Started generic Epclusa Sep. 23, 2017

4 weeks in <15 *Detected.
12 weeks in <15 *Not Detected.
16 weeks in <15 *Not Detected.
Finished 24 weeks treatment 3-17-18
SVR5 <15 Not Detected.
SVR 20 <15 Not Detected.
SVR 44 <15 Not Detected.

Thank you Jesus.
Thank you Dr. James
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MtGoat USA/AUS Fix 6 years 8 months ago #8716

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Hi Dude,

Fibrosure blood test can be used similar to fibroscan to determine level of fibrosis/cirrhosis and thus length of treatment required. But it only works pretreatment as once on these meds all the liver functions which it uses for diagnosis return to normal levels pretty quickly even though the fibrosis is still there.
Ideally you want to know your fibrosis level before ordering any meds but it is possible to order 12 weeks initial Tx then get your fibrosis levels checked while waiting for it to arrive so that you know if 12 weeks is enough or you will need to order a repeat script later. Most countries only allow 3 months meds to be imported at a time anyway.
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
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MtGoat USA/AUS Fix 6 years 8 months ago #8718

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:+1: way to go Mtgoat! So glad I could help.
Day #3 for me and feeling good :)
Soon you will join us, keep us updated and try not to get to anxious while waiting for the meds,like I did :woohoo:
GT2b diagnosed 10/2015
since: unknown
11/20/15 VL= 214,070
12/4/15 ALT=18 AST= 24
1/16/16 started sof/dac
2/13/16 @4wks VL=UND ALT=13 AST=22
3/12/16 @8wks VL=UND ALT=10 AST=18
4/9/16 EOT VL=UND ALT=11 AST=19
9/23/16 SVR24 ALT=11 AST=22
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MtGoat USA/AUS Fix 6 years 8 months ago #8723

Welcome MtGoat I will be interested to follow the progress of your experience.

Cheers
Two time relapser.

SVR 4 achieved 12/16 at last
SVR 12 achieved 22/02/2017 The Bastard has been defeated :):):)

GT 3 - about 28 yrs with HCV
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MtGoat USA/AUS Fix 6 years 8 months ago #8733

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Following your initial post on Splitdog's thread, great that you have the ball rolling now MtGoat. That's an impressively low VL too, I don't think you'll have any issues. Looking forward to hearing of your progress.
GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 - 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 - 6 weeks UNDETECTED
AST 26
ALT 26
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MtGoat USA/AUS Fix 6 years 8 months ago #8778

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Good on you for taking control and getting tx organised. You came to the right place!

Looking forward to following your journey :)
3a F0 TX Naive
Started Tx 12/12/2015 Kingswood Sof/Dac

Pre Tx - ALT 71 AST 40 V/L 9 million
Day 11 - ALT 12 AST 15
4 week - LFTs normal - detected (same sample sent for v/l showed undetected) :/
6 week - UND
12 week EOT - UND
SVR4
SVR12
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MtGoat USA/AUS Fix 6 years 8 months ago #8784

Very happy for you!
As Zhuk said: "You got good numbers".
He has probably told a Sheila or two the same thing...
Paving the way, my man.
You've got this!
Mike
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forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
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MtGoat USA/AUS Fix 6 years 8 months ago #8832

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Thanks guys. Nice to come home to these posts. I m curious...does anyone know if it comes USPS, or some other way? I've been unable to track the package so far even tho there is a tracking #.
Cheers
3a for 35 years
Dx 1996, tx naive, ALT 46 AST 38 VL 140K
Started Sof/Dac 1/23/16
Kingswood generics AUS
2/19/16 4wk lab HCV Undetected ALT 14 AST 19
EOT 6/1/2016
TX was 18 wks (w/some 1/2 doses & 1 skip dose after 11 wks
while waiting for +6 wks to arrive)
SVR4 6/30/16
SVR12
SVR24 Redeemed

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MtGoat USA/AUS Fix 6 years 8 months ago #8834

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Hey Dude, yeah, GAJ had the answers. I'll be watching for you. G' luck. Let's get it done.
Cheers
3a for 35 years
Dx 1996, tx naive, ALT 46 AST 38 VL 140K
Started Sof/Dac 1/23/16
Kingswood generics AUS
2/19/16 4wk lab HCV Undetected ALT 14 AST 19
EOT 6/1/2016
TX was 18 wks (w/some 1/2 doses & 1 skip dose after 11 wks
while waiting for +6 wks to arrive)
SVR4 6/30/16
SVR12
SVR24 Redeemed
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MtGoat USA/AUS Fix 6 years 8 months ago #8845

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Hey Mtgoat I was able to track it only till it got to the US and that only took 2days. It took another week before it was delivered to my house with my regular mail through the postal service for a total of 10 days from which I placed my order.
Kingswood uses an Australian postal service. The web for tracking is www.auspost.com.au/track
Never could track once in the US, so got a little anxious but all was good eventually. We all know all to well how much we hate waiting, but it will be there soon. Keep us posted.
GT2b diagnosed 10/2015
since: unknown
11/20/15 VL= 214,070
12/4/15 ALT=18 AST= 24
1/16/16 started sof/dac
2/13/16 @4wks VL=UND ALT=13 AST=22
3/12/16 @8wks VL=UND ALT=10 AST=18
4/9/16 EOT VL=UND ALT=11 AST=19
9/23/16 SVR24 ALT=11 AST=22
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MtGoat USA/AUS Fix 6 years 8 months ago #8847

Lol. Yeah, there is definitely 'pre-med receiving anxiety'. As soon as they arrive, you'll feel the pressure gone. Really.
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Genotype 3
VL 4,100,000
ALT 101 AST 71
Treatment Naive
Started Sof/Dac Jan 12, 2016
VL= <15 4 weeks in. AST/ALT normal.
VL=UNDETECTED 8 weeks in.
SVR4= Virus back. 3,300,000

Started generic Epclusa Sep. 23, 2017

4 weeks in <15 *Detected.
12 weeks in <15 *Not Detected.
16 weeks in <15 *Not Detected.
Finished 24 weeks treatment 3-17-18
SVR5 <15 Not Detected.
SVR 20 <15 Not Detected.
SVR 44 <15 Not Detected.

Thank you Jesus.
Thank you Dr. James
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MtGoat USA/AUS Fix 6 years 8 months ago #9196

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Welp, got the package. I thought I'd have time to do a baseline draw for VL AST ALT. But, I had them done this summer so...now that I'm holding these in my hand, I just want to get started. I'll find out what the Fibrosure score is Monday. Plus I got an US Thursday for what it's worth. Anyway, the war is on.
Cheers
3a for 35 years
Dx 1996, tx naive, ALT 46 AST 38 VL 140K
Started Sof/Dac 1/23/16
Kingswood generics AUS
2/19/16 4wk lab HCV Undetected ALT 14 AST 19
EOT 6/1/2016
TX was 18 wks (w/some 1/2 doses & 1 skip dose after 11 wks
while waiting for +6 wks to arrive)
SVR4 6/30/16
SVR12
SVR24 Redeemed
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MtGoat USA/AUS Fix 6 years 8 months ago #9201

Good for you!
Another score for the home team!
Prepare for some viral mass destruction!!
Game on!!
Mike
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forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
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