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TOPIC: hubby finally started meds

hubby finally started meds 3 years 9 months ago #9100

  • mrsklg67
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Hi everyone, I do not have hep c, but the love of my life does, ( 1a) he has had it for approx. 30 years, after he was in a gas pipeline explosion in Texas, 1983.. and received blood with the numerous head surgeries he needed during the 2 years in the hospital, it was 1999 when he gave blood to Red Cross, a week later we received a letter from them not to give blood again, and to go see his Dr. So we went to see Dr and was dx with Hep C, we at the time didn't really gave it much thought since it was new at the time, a few years later he was feeling poor so we had blood test ran his viral load was 6 million, since we had our own private health insurance and they was covering the treatment so he started jan 2003 for 52 weeks, pegylated interferon and ribavirin, suffered terrible side effects, was undectable within 2 months,, finished treatment, and it came back.. Dr told us sorry nothing more they can do, So her I am googling the latest treatments and so forth after seeing the Harvoni commercials, even called them for paperwork to apply for coverage since Obama took our health insurance, our plan wasn't good enough,then was told by Gilead we make too much money ..... I've been getting Hepatitis Central's Newsletter, and came across the one from 12/16/15 and the article of FixHepC Club started for those in need...and here I am .....I wired the money, and faxed all the paperwork, had a hell of a fight with customs, finally they released hubby's meds 2 days ago with a wonderful letter from Andrew @ fixhepc with the link of the clinical trials, and he started taking his pill yesterday.. so far so good, he is just a little tired... me I am relieved to finally get him the meds he needed.. his last bloodwork levels were ALT ..77 AST...51 VIRAL LOAD 8163914 I will be updating along the way.. thank you again to everyone that works endlessly for those who suffer with Hep C, but a huge thank you to Dr. Freeman you are making a difference ...
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hubby finally started meds 3 years 9 months ago #9102

  • hopeful
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Welcome! Great decision and good luck!
Can you please tell us more about the customs issue? I'm assuming you are in US? What happened , how long and what made the difference so that they released medications to you?
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hubby finally started meds 3 years 9 months ago #9103

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What a story!
Thank you for posting it!
What a wife!
What a loving person!
You go girl!
Mike
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G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
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hubby finally started meds 3 years 9 months ago #9105

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I am in Michigan, I was suppose to get delivery 2 weeks ago yesterday, 1/8/16 , this was one response I got ...Thank you for the information. I fully understand your situation, a serious medical condition and expensive treatment options. But, I must address your case in accordance to applicable U.S. laws and regulations.



First, the imported medication is an unapproved foreign version of an U.S. approved medication. This foreign medication does not have an U.S. approved drug application and a valid drug listing.



Secondly, there are no availability issues with the U.S. approved medication, other than its high cost.



Lastly, the purported clinical trial, REDEMPTION-3, does not appear to be a viable clinical trial in the U.S., Europe, or Australia/New Zealand, according to the clinical trial registries.

I sent that response to Andrew@fix hep c and he wrote them stating the Redemption trials was registered and sent them the link, within hours my FedEx package was released, and no response from them stating my package was released .. lol.. so it took exactly 2 weeks..
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hubby finally started meds 3 years 9 months ago #9106

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Welcome mrsklg67! That is awesome what you have done for the LOYL -hubbie. Great news you have the meds now and wish him all the best on his Tx :)
QLD Australia ☀️
G3a HCV 35 yrs Tx naive
Started Sof/Dac 13/01/16

Dec '15
AST 70
ALT 89
GGT 124
Fibroscore 8.5
F1-F2
13 Feb'16 VL UND #woohoo!
AST 24
ALT 26
GGT 50H
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hubby finally started meds 3 years 9 months ago #9107

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Hey Hopeful,
Those are great questions. I am very aware of her situation, but want her to tell her tale.
Its pretty amazing.
Feel free to email or PM me if you have other questions.
Mike
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forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
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hubby finally started meds 3 years 9 months ago #9115

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Hi Mrsklg,

Very happy for you.

I wish your lucky hubby lots of luck.
He'll get better & better now. :cheer:

Cindi x
J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results....pending....
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!
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hubby finally started meds 3 years 9 months ago #9135

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Welcome Mrsklg,

I am so very happy that you found this site, ordered the meds and jumped those hurdles. What a great partnership.
Good luck to your husband and his treatement. Things can only get better now. :cheer:
Coral
G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back!
New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217.
SVR12 and SVR 24...
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