Thanks to everyone who has posted about their experiences and journeys, especially with Twinvir. It's all inspiring stuff and compels me to do the same in case my story may inform others about getting affordable treatment for HepC. I have known that I had the virus since the mid-90s, but other than a miserable 48 weeks with interferon and ribavirin I have chosen to ignore the virus and get on with life as best as I can. With the new generics, however, coupled with the availability of information and assistance from sites and forums such as these, an opportunity to determine my future for the better is irresistible.
I live and work in the Middle-East, so my story may be of interest to others with Hep C in this region. Harvoni and AbbiVie are available but unless you have a top of the range insurance plan then these are prohibitively expensive to purchase. I sought out a gastroenterologist who ordered a full blood test, viral load reading and ultrasound (no fibroscan at this particular hospital). My VL was 1980000 IU/ml, ALT 257, AST 257, mild increase in liver echogenevity but no lesions were present and portal veins were normal.
Because I already knew my genotype (1b) and had sourced information on Twinvir, all I required for its importation was a medical report and prescription from my gastroenterologist, and these were provided last without fuss. I went to the national Ministry of Health, supplied a copy of the report and prescription, and then applied for a permit to import Twinvir for personal use. This was issued within the hour - again, no fuss.
My contact at Incepta in Dhaka, Bangladesh, was Leon Hasan Mahbubul. I emailed him a copy of the permit, report and prescription, along with a copy of my passport details page and local residence visa. Leon dispatched the Twinvir via DHL the next day and the drugs arrived last night via Bangkok and Hongkong. I took the first tablet on 20 January. From the date of the first test (30 Dec) to receiving the Twinvir took 20 days. Not sure how easy it is elsewhere, but the process for acquiring the Twinvir is not something I could ever complain about.
Did I mention that Leon sent the shipment before I had paid for it? I sent the US$1450 via Western Union to him payable in BTK. Regardless what happens with my treatment, Leon's generosity and Incepta's supply readiness are things I'll never forget.
I'm 10 days into the treatment. No adverse side effects. Am I imagining a sense of increased alertness and a sharper definition to the things I see around me? I won't be taking liver tests or checking for detection until around 8 weeks, so till then I'll continue not trying to thinking too far ahead and just pop that Twinvir tablet every morning.
To everyone else, thanks again for sharing your stories - truly moving and courageous stuff.
Gen 1b, F1-F2. Naive.
Started Twinvir tx on 2 nd of December 2015 for 12 weeks.
Starting VL 400000, Alt 49/AST 44
1 week VL 29, ALT 44/AST 30.
4 weeks VL 12, ALT 33, Platelets 145, all other tests normal.
7 weeks VL Detected, ALT 28, all other normal
8 weeks UND, 12 week UND, 24 week SVR UND
Thanks Diplomat for posting your story. It really confirms what we all believe: there are a lot of people visiting here and using the information they find to access affordable treatment from reliable sources.
Leon...shipped before payment..
Mahbub, you da man!!
Well done, Valenti, and good luck with the treatment. It's amazing how easy it has been for me where I am in the Middle-East to import the medicine. It seems as long as it's for personal use, no more than three months' supply, and supported by a prescription and medical report, then there's no impediment to the shipment. Add to that the willing cooperation of Incepta staff, then what could go wrong?
On a side note, it's well-known that Hep C is an impediment to working in many M-E countries, and it's screened for as part of the residency process. The UAE was like this three years ago but then changed policy and dropped HCV screening for foreigners. The Health Ministry also has promptly made available and affordable the likes of Harvoni and Viekira, but only for Emirati citizens - foreigners still need either an exceptional level of health insurance cover or recourse to treatments such as Twinvir. Thankfully, there exists a clear and easy process for obtaining generics, and this was the main reason I posted my story in the first instance. Thanks again, Valenti, for letting everyone know this can be done from Brazil, too.
I'm approaching the end of week 4. Absolutely no negative side effects other than possibly some insomnia. Benefits - possibly a feeling of increased alertness, and my eyes don't seem to be as tired as they late in the afternoon. Who knows. I'm not planning on having any tests other than at 8 weeks and then 8 weeks after the 12-week treatment Although I'm expecting to be UND, I've got a sanguine approach to monitoring viral loads, LFT, etc. I blame it on the disappointment of my first interferon treatment.
I hope it all goes well for you, sounds good so far.
They say that with the oral treatment , just 4 weeks post tx is the new SVR date.
So maybe get the test done then instead of waiting 8 weeks post tx (treatment)
All the best,
J the young dragon slayer is:
HepC 1a since birth
Male aged 15
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results....pending....
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!
Genotype 1 a & b
V/L 17 MILLION
Started Harvoni 11th Dec 2015 for 12 weeks
4 weeks VL UND
6 WEEKS ALT 32, AST 34
EOT 03/03 2016 ! UND
ALT 34, AST 26
04.04.2016 SVR 4
26.05.2016 SVR 12
16.08.2016 SVR 24
Stop saying 'I wish' and start saying 'I will'. :)
Thank you received: 423
diplomat wrote: I'm approaching the end of week 4. Absolutely no negative side effects other than possibly some insomnia. Benefits - possibly a feeling of increased alertness, and my eyes don't seem to be as tired as they late in the afternoon. Who knows. I'm not planning on having any tests other than at 8 weeks and then 8 weeks after the 12-week treatment Although I'm expecting to be UND, I've got a sanguine approach to monitoring viral loads, LFT, etc. I blame it on the disappointment of my first interferon treatment.
4 weeks already. Time pass quickly when you feel great.
Good luck with tx!
I am also on Twinvir, and also no side effects.
Countdown to EOT, 16 magic pills left for me!
Wish all the best and only UND.
HCV since I don't know. Diagnosed in 2010.
GT1b, F0/F1, VL 9M, ALT 44, AST 42, Tx naive,
started 12 wks Twinvir on 06.12.2015. Feeling great and grateful