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Beaches Treatment - Harvoni (Aus PBS)

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Beaches Treatment - Harvoni (Aus PBS) 8 years 5 months ago #13101

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Got my script today :cheer:
. Went to my local pharmacy only to find out I'd missed the delivery cut-off for the next day by 30 minutes. :ohmy:
My fault, I went home and fluffed about for a while instead of going straight to the pharmacy.
The pharmacist decided to call the supply organisation to find out if they had any in stock (the answer was yes :woohoo: ) and learned that it can only be ordered by phone.
So, if the dogs are smiling on me and the tablets arrive I will start my treatment tomorrow (pharmacist asked really nicely if they could deliver).
The doctor reckons I won't have many side effects apart from tiredness.
Being Genotype 1, I opted not to go on interferon treatment when I was first diagnosed in 2004 so this is my first (and hopefully only) treatment .
I'm not happy that the funding for the Hep C meds have come at the expense of other funding. I think that is all kinds of wrong, but I am grateful for it.
The script is for 28 tablets, with 2 repeats. Each script costs me $28 and some cents, but it costs the pharmacist 22 GRAND!!! Yes they get almost all of it back from the govt but it's still an expensive drug.
I've been instructed to cut out all supplements apart from vitamin D. Naturally I'll do what I'm told. I want those little orange buggers to work.


Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
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The following user(s) said Thank You: LondonGirl, mgalbrai, Ariel, Gaj, zhuk, Meg

Beaches Treatment - Harvoni (Aus PBS) 8 years 5 months ago #13106

Yay!!! all the best for treatment
SVR 24
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Beaches Treatment - Harvoni (Aus PBS) 8 years 5 months ago #13113

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Well done Beaches
Looking forward to supporting your tx
Xxx
Love from Ariel
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
The following user(s) said Thank You: beaches

Beaches Treatment - Harvoni (Aus PBS) 8 years 5 months ago #13116

Great news - Good luck Beaches

Somewhat different to the UK - When Australia says the medicines are approved, they really are - Here they are still delaying, a commissioning group have to have meetings re every patient before they can prescribe, then more waiting etc etc

I wish you every success for your treatment and future good health :)
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

Beaches Treatment - Harvoni (Aus PBS) 8 years 5 months ago #13182

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Picked my by meds today and took the first pill right away.
It begins.
Apologies in advance ;) :P
Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
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The following user(s) said Thank You: LondonGirl, 2b, Lynne-Francis-facebook, Tina-Hill-facebook, zhuk, IRMA88, Hazel

Beaches Treatment - Harvoni (Aus PBS) 8 years 5 months ago #13183

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Oh LondonGirl, that sucks.
Hope you get yours really soon
Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby

Beaches Treatment - Harvoni (Aus PBS) 8 years 5 months ago #13184

Lol Beaches! re aka greedy cnuts
SVR 24

Beaches Treatment - Harvoni (Aus PBS) 8 years 5 months ago #13186

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I'm fully expecting a slap on the wrist from an admin
Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby

Beaches Treatment - Harvoni (Aus PBS) 8 years 5 months ago #13187

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Hi beaches, yes, you definitely deserve a slap on the wrist. You've mis-spelt the word!
YMMV
The following user(s) said Thank You: LondonGirl, 2b, beaches

Beaches Treatment - Harvoni (Aus PBS) 8 years 5 months ago #13188

Nah they are probably going to cut and paste it as its freakin awesome!
SVR 24
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Beaches Treatment - Harvoni (Aus PBS) 8 years 5 months ago #13189

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BAHAHAHAHAHAHA!
Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby

Beaches Treatment - Harvoni (Aus PBS) 8 years 5 months ago #13190

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Why thank you :)
Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby

Beaches Treatment - Harvoni (Aus PBS) 8 years 5 months ago #13191

No - thank you beaches I loved it xx
SVR 24

Beaches Treatment - Harvoni (Aus PBS) 8 years 5 months ago #13194

Hi Mohammad you need to get approval from one of our admin team to post about supply, once you have that then we have a "Pharma's Market" section for you to post.

Kind Regards
Tina
SVR 24
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Beaches Treatment - Harvoni (Aus PBS) 8 years 5 months ago #13204

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beaches wrote: Picked my by meds today and took the first pill right away.
It begins.
Apologies in advance ;) :P



So this is the HARVONI from Gilead! Famous and pricey but wanted by so many people all over the world! Nice package! :huh: :silly: B)
Yay! I wish you easy tx and UND soon!
#duck #love #flower
HCV since I don't know. Diagnosed in 2010.
GT1b, F0/F1, VL 9M, ALT 44, AST 42, Tx naive,
started 12 wks Twinvir on 06.12.2015. Feeling great and grateful :)
virus not detected 06.02.2016 & SVR24
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