emo Beaches Treatment - Harvoni (Aus PBS)

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5 years 11 months ago #21452

Thank you Sven and Meg.
Fitz you are very kind.

Pamela Anderson is one of my heroes. She is a passionate champion of ocean wildlife preservation, something close to my heart. Maybe even closer to my heart than my liver is :lol: #love


Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
Last Edit: 5 years 11 months ago by beaches.
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5 years 11 months ago #21482

Hey b,
Sorry, been outta the loop for a bit ... dealing with family crisis. :( Sure needed some "good news" and here YOU are giving me just what I needed. Those vids and pics you shared, as well as the congratulatory ones others posted, just made me smile and give a shout of thanks for such a beautiful place to call home and such beauties as you and the rest of the creatures of the sea we all share it with .... Thanks beaches, GREAT NEWS! :cheer: :+1: #love #flower :lol:

Matt


GT1a; Got it some time in the 70's; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA "NOT DETECTED"
AS OF 3/20/2017 ,Hep C RNA PCR "NOT DETECTED" THAT'S SVR24!
Last Edit: 5 years 11 months ago by Matt-Kenney-google.
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5 years 11 months ago #21487

Thanks m8
Hope all is well with you now
Fishy smiles from me


Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
The following user(s) said Thank You: Matt-Kenney-google, fitz

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5 years 11 months ago #21490

Yay Beaches!!! So glad to see this great news!


Cheers
3a for 35 years
Dx 1996, tx naive, ALT 46 AST 38 VL 140K
Started Sof/Dac 1/23/16
Kingswood generics AUS
2/19/16 4wk lab HCV Undetected ALT 14 AST 19
EOT 6/1/2016
TX was 18 wks (w/some 1/2 doses & 1 skip dose after 11 wks
while waiting for +6 wks to arrive)
SVR4 6/30/16
SVR12
SVR24 Redeemed
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5 years 10 months ago #21653

Congratulations Beaches on your SVR 12! Such great news! :cheer:


HCV since 35-40yrs., GT 1a , Dx 2004; VL 4-5 mil, F2-3
Tx sof/led started 3/4/16
4wks VL <15
9 weeks VL UND, ; Alt-15,Ast-13
16 weeks VL UND Alt-20, Ast-22;
EOT 24 wks UND
SVR 4 UND
SVR 12 UND, Alt.15, Ast. 17
SVR 24 UND
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5 years 10 months ago #22161

Finally got to see the doc last Friday,
I had my 12 weeks post treatment bloods pulled at the end of August but the wait was due to my having an unexpected work commitment on the date of my original appintment.
The HepC nurse told me my results by email, but it was good to get a hard copy of everything. She said I could get retested in 6 months or so but she didn't see the need and neither do I.

I'll get my liver functions tested every year as part of a general health check and if anything looks strange I'll gt it checked.

I feel like the effects of coming off the treatment have truly gone and that's pretty cool.
A couple of observations:

The doc thought I was pretty healthy prior to starting Tx. That was probably because I generally presented that way, plus she knows I have a fairly active lifestyle. I explained that I really didn't know that I was unwell until I got well.
It probably took 2 months to feel normal after EOT. Atter I'd finished it my resting HR went up by about 10 BPM, but now it's back to normal. That was the most noticeable thing.

I feel very lucky. Lucky that I managed to hang in until these drugs became available, and lucky that I have come into contact with this awesome, diverse, global tribe. I hope that everyone has the easy time and success with the treatment that I have had.


Attachments:

Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
The following user(s) said Thank You: LondonGirl, coral, mgalbrai, Ariel, Gaj, rohcvfighter, fitz, Murr, Donna

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5 years 10 months ago #22164

Life's a beach!!
Go forth and enjoy!!
Happy for you!
m


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forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
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5 years 10 months ago #22167

mgalbrai wrote:

Life's a beach!!
Go forth and enjoy!!
Happy for you!
m

Thank you mgalbrai
Going forth and enjoying life is exactly what I plan to do.
In a bit under a year's time I'm planning to be swimming and moochiing around the Costa Brava, and checking out some other parts of Europe, yet to be decided.


Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
The following user(s) said Thank You: LondonGirl, mgalbrai, rohcvfighter, fitz

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5 years 10 months ago #22168

You've earned it. That's a lot of goodness you've spread around.
This will be my last year in the salt mine.
Then, look out world...
m


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forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
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5 years 10 months ago #22170

beaches wrote:

I feel very lucky. Lucky that I managed to hang in until these drugs became available, and lucky that I have come into contact with this awesome, diverse, global tribe. I hope that everyone has the easy time and success with the treatment that I have had.

It really feels wonderful to have those results in hand doesn't it? "Closure". There's nothing like it!

So happy for you, pal!


Failed Interferon 96', G1a, VL = 9 - 5.5 Million, F3/A3, AST 111, ALT 190, Generic DAA treatment Sof/Led (Mylan - India MYHEP LVIR) - 8 June, 2016
2 Week Results 20 June, 2016 AST 19, ALT 32
4 Week Results 06 July, 2016 AST 22, ALT 30, VL = 35
6 Week Results 20, July 2016 VL only = HCV RNA Detected, Non-Quantifiable <15
8 Week Results 04 August 2016, Labs, LFTs Normal, VL = UND
12 Week Results 31 August, 2016 LFTs Normal, VL = UND
EOT + 4 Weeks, LFTs Normal, VL = UND, "SVR4"
SVR12, 21 Nov 2016. CURED!!!
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5 years 10 months ago #22172

Ahhhh freedom...


Congrats sis,
#love Matt

Attachments:

GT1a; Got it some time in the 70's; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA "NOT DETECTED"
AS OF 3/20/2017 ,Hep C RNA PCR "NOT DETECTED" THAT'S SVR24!
The following user(s) said Thank You: LondonGirl, Ariel, beaches, rohcvfighter, fitz

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5 years 10 months ago #22182

Such great news Beaches. I know what you mean about not knowing how unwell you are until you are well. You now have a fantastic new normal. Swimming and mooching around the Costa Brava sounds damn fine too. #flower #flower


G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back!
New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217.
SVR12 and SVR 24...
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5 years 10 months ago #22192

The mooching will include a couple more locations in Europe, not sure which, but if there is any way I can meet up with any fellow fighters in that neck of the woods and swap stories over a meal, I would definitely be up for that, just saying. August or September next year


Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
The following user(s) said Thank You: LondonGirl, coral, Ariel, fitz

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5 years 10 months ago #22248

Doesn't get more official than this...

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Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
The following user(s) said Thank You: coral, Ariel, Gaj, Hieupham, Matt-Kenney-google, fitz, Murr

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5 years 10 months ago #22249

Congratulations Beaches! :) :) :)


:+1: :+1: :+1: :+1: :+1:

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Nishkama Karma
Cùng nhau loại bỏ Viêm gan C trên khắp thế giới!
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