×

Notice

The forum is in read only mode.
Welcome, Guest
Username: Password: Remember me
  • Page:
  • 1
  • 2

TOPIC:

Defeat is on the path! 7 years 11 months ago #15183

I got my meds today! What a relief. Heartfelt thanks to Mike, Greedfighter, and 2b for your guidance, support and the kick that I needed to get going.Dr James your brilliance is only surpassed by you compassion to help all of us in need. Tim at Monkmed was wonderful and kept me informed. I could go on and on , my heart is full of gratitude. As for that Dr. To follow me, they are still elusive,I will sort that out later!
G1a
Fibrosure F3
VL 6.6mil
Alt151 Ast111
All labs/Nov 2015
May 5th tx started Hepcvir L. Redemption 2 trial
May 19 2 week labs VL 27, Alt 25 Ast 24

Defeat is on the path! 7 years 11 months ago #15186

Hi Defeat10, glad to hear you got your meds! I would agree with you, just start taking the meds! I had NO side effects. Just go to a doctor after 4 or 6 weeks and ask for Viral load and Liver panel test. Why tell them you are taking generics? They did not prescribe them, and may be reluctant to become involved in your treatment for fear of a lawsuit. Just get the tests.....you are on you way to your cure! :cheer: :+1:
Gt 1a, F0, VL 6.5 million, AST 59, ALT 62
Started Twinvir 1/15/16
6 wk. labs VL UND, AST 27, ALT 20
EOT labs VL UND, AST 23, ALT 19
SVR 16, VL UND, AST 28, ALT 17
SVR 24 , VL UND, 10/8/16
SVR 125, VL UND, 9/22/18
SVR 230, VL UND, 10/3/20
The following user(s) said Thank You: mgalbrai, Matt-Kenney-google, Defeat10

Defeat is on the path! 7 years 11 months ago #15187

Hey Defeat 10 from a soon to be joining you on the path bro.
I can't say it any better than you have.
Looking fwd to watching your progress.

Best wishes,
Matt
GT1a; Got it some time in the 70's; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA "NOT DETECTED"
AS OF 3/20/2017 ,Hep C RNA PCR "NOT DETECTED" THAT'S SVR24!
The following user(s) said Thank You: mgalbrai, Ariel, isaing4, Greedfighter, Defeat10

Defeat is on the path! 7 years 11 months ago #15189

U shld change your nick to victory
The following user(s) said Thank You: mgalbrai, Matt-Kenney-google

Defeat is on the path! 7 years 11 months ago #15190

  • Ariel
  • Ariel's Avatar
  • Offline
  • Platinum Member
  • Platinum Member
  • Cured, SVR 24
  • Posts: 1064
  • Karma: 31
  • Thank you received: 3084
Fantastic news Defeat
Now for the good stuff bring it on
Good luck with everything
Cheers and congrats on starting your tx
From Ariel #flower
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
The following user(s) said Thank You: Matt-Kenney-google, Defeat10

Defeat is on the path! 7 years 11 months ago #15191

Hi Defeat. Some of us are on the tail end of our journey, others, like you, just the beginning, I had virtually no side effects from Sof/Led other than a bit of insomnia. Good luck with your treatment, you are in good hands. :)
Lives in Bendigo, Victoria
No prior treatment Genotype 1b Fibroscan 0 (only showed a bit of a fatty liver) Diagnosed in February 2015 Currently on my last week of treatment taking led/sof Last LFT normal
Insomnia the only side effect
Undetected at 4 weeks
SVR4 - undetected - all bloods good and GP very happy
SVR12 bloods to be done at end of April 2016
SVR12 - undetected!!!
The following user(s) said Thank You: mgalbrai, Matt-Kenney-google, Defeat10

Defeat is on the path! 7 years 11 months ago #15193

  • beaches
  • beaches's Avatar
  • Offline
  • Platinum Member
  • Platinum Member
  • The life you save will be your own. START TREATMENT
  • Posts: 760
  • Karma: 25
  • Thank you received: 2254
Hi Defeat
Good luck in your journey to restored health.
I started on Harvoni (non generic, one of the first on the PBS drug) on 18 March and have no negative Sx although I have been feeling a bit tired the past few days. Possibly overdoing it a tad with the new found energy, or maybe a build-up of the drug.

The other changes have been more subtle but all positive. A persistent toenail fungus has disappeared. Brain is sharper. I'm swimming faster. Body perceptions in Yoga practice have definitely changed. Food preferences have also changed.

You will be amazed by how unwell you have been feeling and maybe not realised in comparison to your new altered state.

Although I may not be a direct recipient of Dr Freeman's compassion and persistence (and I knowthis is open for discussion), I am extremely grateful with the way his great workhas impacted the HCV landscape
Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
The following user(s) said Thank You: DrJames, mgalbrai, Ariel, Gaj, Lynne-Francis-facebook, Matt-Kenney-google, Defeat10

Defeat is on the path! 7 years 11 months ago #15224

  • Ariel
  • Ariel's Avatar
  • Offline
  • Platinum Member
  • Platinum Member
  • Cured, SVR 24
  • Posts: 1064
  • Karma: 31
  • Thank you received: 3084
It's lovely having you around Beaches x
Good morning from me
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18

Defeat is on the path! 7 years 11 months ago #15232

  • pat1
  • pat1's Avatar
  • Offline
  • Platinum Member
  • Platinum Member
  • Posts: 340
  • Karma: 15
  • Thank you received: 977
good news for you
I remember how excited I felt when I received my meds
so excited for an opportunity to cure & recover
best wishes to defeat #flower
gt 1a VL 6m
F2/3 FibroScan - 9KPa in 2011 and 7KPa in 2015
sof/dac 10 December for 12 weeks
pre tx alt 85 ast 51
4 wk alt 34 ast 31 UND <35
8 wk alt 29 ast 32 UND <15
12wk alt 25 ast 25 EOT 3.3.16
SVR24 UND KPa5.3 F0 in normal range
I am well
.forever grateful to fixhepc
The following user(s) said Thank You: mgalbrai, Ariel, beaches, Defeat10

Defeat is on the path! 7 years 11 months ago #15244

  • beaches
  • beaches's Avatar
  • Offline
  • Platinum Member
  • Platinum Member
  • The life you save will be your own. START TREATMENT
  • Posts: 760
  • Karma: 25
  • Thank you received: 2254
You will be firing on more cylinders than you have been. For you that will be a good thing. Others may find it hard to handle :lol:
Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
The following user(s) said Thank You: Defeat10

Defeat is on the path! 7 years 11 months ago #15259

Thanks Beaches I am so looking forward to that day. My family used to reference me as a human doing not a human being,not so much the last few years.How freeing my mind will become when I no longer have to limit joyful activities, if I go for that 5 mile hike how long will it wipe me out? It certainly will be a joyful day when I can replace the word chronic with cured!
G1a
Fibrosure F3
VL 6.6mil
Alt151 Ast111
All labs/Nov 2015
May 5th tx started Hepcvir L. Redemption 2 trial
May 19 2 week labs VL 27, Alt 25 Ast 24
The following user(s) said Thank You: Gaj, beaches

Defeat is on the path! 7 years 10 months ago #15361

  • coral
  • coral's Avatar
  • Offline
  • Platinum Member
  • Platinum Member
  • Posts: 606
  • Karma: 38
  • Thank you received: 1812
Great to see you striding down that path to a cure Defeat. I have just come to the end of 24 weeks treatment and for me it has been all good. Very few side effects and much improvement in thought clarity, physical energy and general mood. Although there was a continuous improvement very early on I still think I can pin point a noticeable improvement around 10/11 weeks.

Love your term "human doing"!

Coral
G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back!
New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217.
SVR12 and SVR 24
The following user(s) said Thank You: Gaj, Lynne-Francis-facebook, Defeat10

Defeat is on the path! 7 years 10 months ago #15380

  • isaing4
  • isaing4's Avatar
  • Offline
  • Elite Member
  • Elite Member
  • Stop saying 'I wish' and start saying 'I will'. :)
  • Posts: 239
  • Karma: 5
  • Thank you received: 423
Welcome Defeat 10!
Those little bastards have no chance with the DAA medication.

I wish you easy treatment and UND soon!
Keep us posted with your successful journey!
#love #love #love
HCV since I don't know. Diagnosed in 2010.
GT1b, F0/F1, VL 9M, ALT 44, AST 42, Tx naive,
started 12 wks Twinvir on 06.12.2015. Feeling great and grateful :)
virus not detected 06.02.2016 & SVR24
This email address is being protected from spambots. You need JavaScript enabled to view it.
The following user(s) said Thank You: Defeat10, Meg

Defeat is on the path! 7 years 10 months ago #15383

Happy for you. Did one of us "rescue" you from She Who Will Not Be Named?? I've lost track which is great!! Too many names and stories to keep straight. A very pleasing feeling. I want to be more confused......
Your enzymes and v/l are about to take a huge nosedive. I don't know your doc situation, but it seems like anyone who swore to "do no harm" would have a hard time looking in a mirror if you simply asked to have some blood tests done and they refused to order them.
Win410!!!
This email address is being protected from spambots. You need JavaScript enabled to view it.
forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
The following user(s) said Thank You: Gaj, isaing4, Defeat10, Meg

Defeat is on the path! 7 years 9 months ago #17049

I started tx on May 5Th. Just received my 2 week lab work. Alt is 25, Ast 24 and my viral load. drum roll please, 27. Yes that is 27 no 00000. Woot Woot! That Dr. that finally agreed to follow me is insisant that I have blood work q 2 weeks so I will be posting often. I am hopeful that he will start believing in generics, and will be on board to help others in this manner. So thankful to all that have offered support and words of encouragement. Oh and no sides except the first couple of days, just tired and a little spacey in the morning. I have more energy, and the brain fog is lifting. Yeah!
G1a
Fibrosure F3
VL 6.6mil
Alt151 Ast111
All labs/Nov 2015
May 5th tx started Hepcvir L. Redemption 2 trial
May 19 2 week labs VL 27, Alt 25 Ast 24
  • Page:
  • 1
  • 2
Time to create page: 0.165 seconds

Copyright © 2015-2020 FixHepC

Back to Top