English
×

Notice

The forum is in read only mode.
Welcome, Guest
Username: Password: Remember me
Forgot your password? Forgot your username? Create an account
Support Forum
Main Forum
Patient Stories
SVR
Coral's SVR12
  • Page:
  • 1
  • 2

TOPIC:

Coral's SVR12 5 years 8 months ago #24526

  • coral
  • coral's Avatar Topic Author
  • Offline
  • Platinum Member
  • Platinum Member
  • Posts: 606
  • Karma: 38
  • Thank you received: 1812
Well it took longer than some and shorter than others but I had a phone call today from Dr James to say that I am SVR12. Yay!

For me this started with a newspaper cutting from a friend about Dr Freeman and FixHepC in September 2015. After a Skype appointment with Dr Freeman at GP2U (easiest thing ever) I ordered the medication through FixHepC and started treatment a few short weeks later on 12/11/15. My virus fought harder than most and after 12 weeks of Sof/Led I continued with another 12 weeks of Sof/Dac. And still it hung on……

After relapsing at around the 8th week after EOT I recommenced treatment with the Viekira Pak, Solvadi, Ribavirin on 3/9/16. The Ribavirin made things a little tougher (I’d had minimal side effects on the other medications) but it did a fine job. I was just unlucky as it is only a very small percentage of people that do relapse.

I know that some people think that the low cost generic medication is too good to be true but I have seen so many people on this site that have been cured by taking a few simple steps. You have nothing to lose and everything to gain. I’m happy for you to private message me if you have any questions or concerns.

The support from Dr Freeman, FixhepC, Monkmed and everyone on this forum has been nothing short of amazing. Next stop SVR24.

I’m waiting for my little group of relapse friends to catch up… #flower #flower
G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back!
New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217.
SVR12 and SVR 24
The following user(s) said Thank You: DrJames, klhilde, LondonGirl, mgalbrai, Paul-Jarman-facebook, sabrecat, Gaj, Lynne-Francis-facebook, Hazel, Greedfighter, J. Eugene, rohcvfighter, Sven, Iain, Mnem

Coral's SVR12 5 years 8 months ago #24528

  • Gaj
  • Gaj's Avatar
  • Offline
  • Moderator
  • Moderator
  • Optimist :-)
  • Posts: 1436
  • Karma: 32
  • Thank you received: 3082

coral wrote: .....I had a phone call today from Dr James to say that I am SVR12





Coral, that is wonderful news! So happy to hear it. :) #flower
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
The following user(s) said Thank You: DrJames, coral

Coral's SVR12 5 years 8 months ago #24529

That's fabulous news Coral :+1: :)
Lives in Bendigo, Victoria
No prior treatment Genotype 1b Fibroscan 0 (only showed a bit of a fatty liver) Diagnosed in February 2015 Currently on my last week of treatment taking led/sof Last LFT normal
Insomnia the only side effect
Undetected at 4 weeks
SVR4 - undetected - all bloods good and GP very happy
SVR12 bloods to be done at end of April 2016
SVR12 - undetected!!!
The following user(s) said Thank You: DrJames, coral, Gaj

Coral's SVR12 5 years 8 months ago #24532

  • rohcvfighter
  • rohcvfighter's Avatar
  • Offline
  • Platinum Member
  • Platinum Member
  • Vindecat de HCV cu med. generice. Cured with generics HCV drugs.
  • Posts: 389
  • Karma: 15
  • Thank you received: 1594
Hi Coral,

this is a really great news !!!! Congratulations.
Wow, what a trip you made... I am so glad you reached the SVR12 finish line.

Enjoy the life free of HCV (it is quite excellent ;-) )

Cheers,
RHF
In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
HCV kills more than 500000 people every year. HCV generic drugs work. Don't become a statistic.
By sharing this Youtube video you might save someone’s life!
My TX: HEPCVIR-L[generic Harvoni]-India
SVR52 achieved
The following user(s) said Thank You: DrJames, coral, Gaj, Lynne-Francis-facebook

Coral's SVR12 5 years 8 months ago #24534

Tremendous news Coral! SVR 12! :cheer: :+1:

Congratulations!!
Gt 1a, F0, VL 6.5 million, AST 59, ALT 62
Started Twinvir 1/15/16
6 wk. labs VL UND, AST 27, ALT 20
EOT labs VL UND, AST 23, ALT 19
SVR 16, VL UND, AST 28, ALT 17
SVR 24 , VL UND, 10/8/16
SVR 125, VL UND, 9/22/18
SVR 230, VL UND, 10/3/20
The following user(s) said Thank You: DrJames, coral, Gaj

Coral's SVR12 5 years 8 months ago #24599

  • Sven
  • Sven's Avatar
  • Offline
  • Platinum Member
  • Platinum Member
  • Posts: 333
  • Karma: 24
  • Thank you received: 1213
WooHoo, SVR 12!
Awesome awesome news!
Contracted HCV 1980's
Geno Type 1a
F3 ( doc says once treated I'll be F2 maybe F1)
Meds shipped 6/17/2016 arrived early 7/2016

Viral count - 3,471,080

4 week quantitative bloods: August 17, 2016. I have been diagnosed as <15 (told undetected)

8 week quantitative bloods: September 14th. I have been diagnosed as <15 (told undetected)

11 week PCR RNA Qualitative bloods: September 26th 2016 - Undetected

December 19th 2016: Cured!
Viral count: zero!!!
2018 viral count: still zero!
Cured!
The following user(s) said Thank You: DrJames, coral, Gaj

Coral's SVR12 5 years 8 months ago #24602

  • Hazel
  • Hazel's Avatar
  • Offline
  • Platinum Member
  • Platinum Member
  • Posts: 414
  • Karma: 39
  • Thank you received: 1699
Coral! How did I miss this thread, and your wonderful news. I have been so looking forward to seeing this- you are so consistently kind, and realistic, you really toughed it out. I 'm sure it wasn't always like that, but you took both stages in your stride, another kindness to share with others coming behind, #magic #magic
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
The following user(s) said Thank You: DrJames, LondonGirl, coral, Gaj, Lynne-Francis-facebook

Coral's SVR12 5 years 8 months ago #24603

  • Hazel
  • Hazel's Avatar
  • Offline
  • Platinum Member
  • Platinum Member
  • Posts: 414
  • Karma: 39
  • Thank you received: 1699

coral wrote:
I’m waiting for my little group of relapse friends to catch up… #flower #flower


I have a short list, and you were on it, that I'm waiting on hearing good SVR 12 news for- and had one ticked off last week, and another earlier today.... FixhepC slays all dragons. Hooray.
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
The following user(s) said Thank You: DrJames, coral

Coral's SVR12 5 years 8 months ago #24604

  • DrJames
  • DrJames's Avatar
  • Offline
  • Platinum Member
  • Platinum Member
  • Posts: 1980
  • Karma: 111
  • Thank you received: 7263
It is lovely to see people who missed out first time round not draw a short straw the second time.

Most people succeed first time.

Sadly a few don't but as we can see here, and elsewhere, yes it's a setback, but SVR is still out there and we just have to work a little harder to get there.

Triple drug therapy with an NS3/4A, NS5A and NS5B is the way to go if you can get it.

Adding generic Sofosbuvir to Viekira and Zepatier is the simplest solution where these are available.

Relatively affordable Abbvie Viekira can be sourced out of Egypt if required.

Extended treatment with Sof+Vel+Ribavirin is probably the next best option, but it needs to be done on a case by case basis.
YMMV
The following user(s) said Thank You: LondonGirl, coral, Gaj, Lynne-Francis-facebook, J. Eugene, Iain

Coral's SVR12 5 years 8 months ago #24615

  • coral
  • coral's Avatar Topic Author
  • Offline
  • Platinum Member
  • Platinum Member
  • Posts: 606
  • Karma: 38
  • Thank you received: 1812
Hi Hazel,

Thanks so much for your wonderful words. They mean a lot to me. Your advocacy for Hep C is such an inspiration and now that I've just about won the battle you encourage me to step out and make a real contribution. The old stigma of it all worries me less and less as the days go by. Coral #love
G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back!
New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217.
SVR12 and SVR 24
The following user(s) said Thank You: LondonGirl, Donna

Coral's SVR12 5 years 8 months ago #24616

  • coral
  • coral's Avatar Topic Author
  • Offline
  • Platinum Member
  • Platinum Member
  • Posts: 606
  • Karma: 38
  • Thank you received: 1812
Hey Gaj, Lynne, RHF, Greedfighter and Sven,

Thanks for your messages. I have said it before but let me say it again - what a lonely and difficult journey it would have been without you all. #love

Coral
G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back!
New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217.
SVR12 and SVR 24
The following user(s) said Thank You: DrJames, Donna

Coral's SVR12 5 years 8 months ago #24620

  • rightsaidfred
  • rightsaidfred's Avatar
  • Offline
  • Premium Member
  • Premium Member
  • G3a infected 40 years ago
  • Posts: 94
  • Karma: 8
  • Thank you received: 326
Brilliant news Coral,

Delighted for you,

RSF
G3a. Probably infected 40 years ago.
Diagnosed July 2015
7/7/2015: ALP 69, ALT 209, WBC 5.8, VL 40,000. Fibroscan 9.5 Kpa.
Commenced treatment Sof/Dac (Natco Pharma) 24 wks in Feb 16
VL UND @ 4 wks, 12 wks

EOT 6/7/16
SVR 12
SVR 24

PHEW! Thank you so much Dr James, Monkmeds and all at Fixhepc
The following user(s) said Thank You: DrJames, LondonGirl, coral

Coral's SVR12 5 years 8 months ago #24656

coral wrote: Well it took longer than some and shorter than others but I had a phone call today from Dr James to say that I am SVR12. Yay!


I had one of them too , its a huge relief. :woohoo:

This is really great news Coral as it gets better and better as your recovery progresses.

Wishing you all the best.
Two time relapser.

SVR 4 achieved 12/16 at last
SVR 12 achieved 22/02/2017 The Bastard has been defeated :):):)

GT 3 - about 28 yrs with HCV
The following user(s) said Thank You: DrJames, LondonGirl, Gaj

Coral's SVR12 5 years 8 months ago #24660

  • coral
  • coral's Avatar Topic Author
  • Offline
  • Platinum Member
  • Platinum Member
  • Posts: 606
  • Karma: 38
  • Thank you received: 1812
Thanks Paul, it is indeed a feeling that gets better and better every day.
My friends are amazed that I have a doctor who rings with results - how lucky are we? :) :) :)
G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back!
New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217.
SVR12 and SVR 24
The following user(s) said Thank You: DrJames, Paul-Jarman-facebook, Gaj

Coral's SVR12 5 years 7 months ago #24662

Dear Coral, I am so absolutely delighted fior you my friend & sending you #love and happiness #flower #flower #flower #flower #flower
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
The following user(s) said Thank You: coral
  • Page:
  • 1
  • 2
Support Forum
Main Forum
Patient Stories
SVR
Coral's SVR12
Time to create page: 0.067 seconds

Copyright © 2015-2020 FixHepC

Delivery Guarantee Privacy Terms of service
Back to Top