Viewing 15 posts - 46 through 60 (of 126 total)
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  • #12318
    LLJ
    • Topics: 0
    • Replies: 6
    • Total: 6
    • Novice
    @llj

    I wondered about that, now that I’m more aware of treatment options. When I started, I was offered only the regimen I’m on. It may be too late now, I have only 3 more weeks of treatment. I wish I had known then what I know now.


    LLJ

    Geno 2b; Fibrosure 4. Tx: sovosbuvir/ribavirin x 16 weeks. EOT March 4, 2016
    0 weeks: RNA = 10012000 iu/ml; log10 = 7.001. AST 129; ALT 133
    4 weeks: PCR Quantitation = 60 iu/ml; log10 = 1.778. 5 weeks: PCR Quantitation < 15 (UND); AST 35; ALT 24

    #12325
    Avatar photo2b
    • Guardian Angel
    • ★★★★★
    @2b

    hey hey hey…i am the ORIGINAL “2B” here…. :)
    for what its worth, i took no ribavirin, i had it since 80’s, and sofosbuvir and daclatasvir has seemed to have done the job.
    got my test results from 1 week past the 12 weeks eot, and was UND and was UND at 4 and 8 weeks too.

    best of luck to all 2B’s and or course all the other b’s and a’s and c’s and rest of the alphabet…

    yes we are exotic, 2b or not 2b..but .i think now im no longer 2b,,,..im just me


    GT 2b; since 80’s, no prior tx, sofosbuvir and daclatasvir compounded from API’s at Kingswood Pharmacy in Sydney, started tx nov 6,2015, undetected at 4 wks, UND at 8 weeks, UND at 1 week after EOT, UND at 4 weeks after EOT and UND at 8 weeks after EOT. I feel GOOD!! I knew that I WOULD!””

    #12338
    LLJ
    • Topics: 0
    • Replies: 6
    • Total: 6
    • Novice
    @llj

    2b, that’s brilliant. Congratulations. It seems so far away to me.


    LLJ

    Geno 2b; Fibrosure 4. Tx: sovosbuvir/ribavirin x 16 weeks. EOT March 4, 2016
    0 weeks: RNA = 10012000 iu/ml; log10 = 7.001. AST 129; ALT 133
    4 weeks: PCR Quantitation = 60 iu/ml; log10 = 1.778. 5 weeks: PCR Quantitation < 15 (UND); AST 35; ALT 24

    #12345
    Avatar photoCC2B
    • Guardian Angel
    • ★★★★★
    @cc2b

    Hi LLJ, Same here as 2b, I took no riba, am on sof/dac just finishing up my 5th week and was UND at 4wks.
    Have you done any labs while on tx? You can post them in your signature in your profile.
    Best wishes to SVR and hope you are not having too many sides from the riba.


    GT2b diagnosed 10/2015
    since: unknown
    11/20/15 VL= 214,070
    12/4/15 ALT=18 AST= 24
    1/16/16 started sof/dac
    2/13/16 @4wks VL=UND ALT=13 AST=22
    3/12/16 @8wks VL=UND ALT=10 AST=18
    4/9/16 EOT VL=UND ALT=11 AST=19
    9/23/16 SVR24 ALT=11 AST=22

    #12364
    Avatar photoIRMA88
    • Topics: 2
    • Replies: 39
    • Total: 41
    • Recovery Champion
    • ★★★★
    @irma88

    Hi LLJ,
    I am also 2B and also no longer 2b :) I am on week 15/24 of Sof/Dac and was UND at 4wks. I have cirrhosis according to my Specialist although I have never had Fibroscan, hence the 24 weeks treatment.
    Best of luck with your treatment :) Have you had any tests to see if you have cleared since you only have 3 weeks to go? I Hope all is going well :+1:


    G2B – DIAGNOSED 2014, STARTED SOF/DAC 11/11/15 VL 6M
    UND @ WEEK4
    FINISHED TREATMENT 26/4/16
    UND @ WEEK 24
    ALT 12 AST 15
    MY ETERNAL GRATITUDE TO GREG JEFFERYS & DR FREEMAN

    #12365
    LLJ
    • Topics: 0
    • Replies: 6
    • Total: 6
    • Novice
    @llj

    Hi, I’m so glad to see you are doing well. I had labs before starting treatment, then viral load and LFT’s in 4 weeks. He did another viral load a week later because it had decreased but was not UND; it went to <15 (UND) the second time.

    I'm supposed to have labs again after end of treatment (2 weeks from now, I miscalculated), and again in 12 weeks.

    I wish I had known about this site before I started. It was considered unusual for insurance to approve as much as 16 weeks, I would have done more meds if I'd had the chance. I can even put up with the Ribavirin.

    The lab values are under my signature, if I did it right.


    LLJ

    Geno 2b; Fibrosure 4. Tx: sovosbuvir/ribavirin x 16 weeks. EOT March 4, 2016
    0 weeks: RNA = 10012000 iu/ml; log10 = 7.001. AST 129; ALT 133
    4 weeks: PCR Quantitation = 60 iu/ml; log10 = 1.778. 5 weeks: PCR Quantitation < 15 (UND); AST 35; ALT 24

    #12366
    dope-on-a-rope.jpgDr James
    • Guardian Angel
    • ★★★★★
    @fixhepc

    With two weeks to go it would be easy to get 4-8 weeks generic Sof+Dac to finish off with, the goal being kill off any remaining resistant mutants.

    Chances are you will SVR but retreatment with 24 weeks Sof+Dac should work well with no prior NS5A exposure and is far less than most co-pays.


    YMMV

    #12371
    Avatar photoIRMA88
    • Topics: 2
    • Replies: 39
    • Total: 41
    • Recovery Champion
    • ★★★★
    @irma88

    I have fingers & toes crossed for a good result for you :)
    And as Dr Freeman says, you have options here if you want to make sure. :+1:


    G2B – DIAGNOSED 2014, STARTED SOF/DAC 11/11/15 VL 6M
    UND @ WEEK4
    FINISHED TREATMENT 26/4/16
    UND @ WEEK 24
    ALT 12 AST 15
    MY ETERNAL GRATITUDE TO GREG JEFFERYS & DR FREEMAN

    #12456
    Viki-Clairmont-facebook
    • Topics: 0
    • Replies: 1
    • Total: 1
    • Novice
    @viki-clairmont-facebook

    i have .sof/dac 8weeks test clear not detected.

    #12471
    avatar876.jpegGaj
    • Guardian Angel
    • ★★★★★
    @gaj

    Hi Viki, congratulations on your 8 week result and welcome to the site! :+1: :)


    G3a since ’78 – Dx ’12 – F4 (2xHCC)
    24wk Tx – PEG/Riba/Dac 2013 relapsed
    24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
    16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
    SVR7 – 22/06/17 UND
    SRV12 – 27/07/17 UND
    SVR24 – 26/10/17 UND
    :cheer: :cheer: :cheer:

    #12515
    Avatar photoIRMA88
    • Topics: 2
    • Replies: 39
    • Total: 41
    • Recovery Champion
    • ★★★★
    @irma88

    Congratulations Viki #woohoo!


    G2B – DIAGNOSED 2014, STARTED SOF/DAC 11/11/15 VL 6M
    UND @ WEEK4
    FINISHED TREATMENT 26/4/16
    UND @ WEEK 24
    ALT 12 AST 15
    MY ETERNAL GRATITUDE TO GREG JEFFERYS & DR FREEMAN

    #16175
    Avatar photoIRMA88
    • Topics: 2
    • Replies: 39
    • Total: 41
    • Recovery Champion
    • ★★★★
    @irma88

    Day 168 is here finally!!! Last pills down the hatch!! Sof/Dac 24 wks Geno 2B 35yrs.
    Thank you James Freeman and Greg Jefferys #love #love #love
    I finally get my fibroscan on the 17th May, hopefully finally find out my cirrhosis status.
    Thank you everyone for posting and allowing me hang around and keep myself sane :)
    #woohoo!


    G2B – DIAGNOSED 2014, STARTED SOF/DAC 11/11/15 VL 6M
    UND @ WEEK4
    FINISHED TREATMENT 26/4/16
    UND @ WEEK 24
    ALT 12 AST 15
    MY ETERNAL GRATITUDE TO GREG JEFFERYS & DR FREEMAN

    #16179
    avatar876.jpegGaj
    • Guardian Angel
    • ★★★★★
    @gaj

    Congratulations IRMA88! :woohoo:

    Sounds like there are a few of us 24 weekers finishing Tx around now. Mine is next week so we’ll be able to compare SVRs. :)


    G3a since ’78 – Dx ’12 – F4 (2xHCC)
    24wk Tx – PEG/Riba/Dac 2013 relapsed
    24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
    16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
    SVR7 – 22/06/17 UND
    SRV12 – 27/07/17 UND
    SVR24 – 26/10/17 UND
    :cheer: :cheer: :cheer:

    #16182
    Avatar photocoral
    • Guardian Angel
    • ★★★★★
    @coral

    Hi Irma88 and Gaj,

    I am also finishing my 24 weeks with my last pills this Thursday. That makes 12 weeks of Sof/Led and 12 weeks of Sof/Dac.
    It will be strange but good not to have that nightly ritual. Good luck to all for the next stage :+1:

    Coral

    #16183
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Hi all EOTers
    Welcome Viki and CONGRATS :+1: :+1:
    IRMA, GAJ and Coral good luck from me wishing you the best.
    Many more of us are now at the testing part EOT and beyond its kept me sane the support from some fantastic members here too IRMA.
    My bloods get done Friday for the SVR4 and I am nervous as all hell too.
    We’re all in this together that is the comforting thing

    And big congrats to 2b from me :)
    So onwards to EOT team and good luck to all I will be counting down with you in spirit
    Love from Ariel #flower #flower #flower

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