- This topic has 40 replies, 15 voices, and was last updated 8 years, 7 months ago by
.
-
Welcome simone,
If you can provide a bit more detail that would help us to provide more accurate answers but:
Assuming your doctor is supportive they may find a copy of the following link useful: http://fixhepc.com/kunena-2015-11-10/gp-cheat-sheet.html
They can write the script for the drug name, dose size, method/frequency and length of treatment to suit your needs. So for example:
Sofosbuvir x 400 mg x od (oral/daily) x 12 weeks (84 days)
Obviously they need to specify the other drug(s) to be used in combination with this.
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
Well, you know me LG, I’m always the optimist!
I like to hope that since the EASL conference in Barcelona last month and with the Hep C Trust over there now starting to provide information on safe generic treatment, the U.K. medical establishment may become a bit more receptive to acting in the best interests of their patients rather than following the bureaucratic line.
I don’t think it hurts for UK hep C patients to ask the question of their doctors and consultants to keep the pressure on and remind them where their responsibilities should sit. If they still refuse to provide support than there are the proven alternative routes to get a prescription as you suggest.
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
Hi Enrico,
Hepantevir is supposedly for Hepatitis B and when I checked I could find nothing about it being a scientifically proven drug but lots about it being a £800 herbal scam. Don’t buy it!
Genotype 1a was considered difficult to treat with the old interferon based treatments but with the new DAAs it has a very high cure rate.
You will need a prescription or other suitable documentation to clear your medication safely past UK customs so you could wait until your doctor’s appointment in June and ask him.
Alternatively, if he can supply you with copies of your records or confirm your last fibrosis score, viral load result and any other medications you may be on before then, you could arrange a virtual (Skype) consultation with https://gp2u.com.au/ They will be able to provide a prescription for the correct treatment for you which you can then source via the Redemption eTrial http://fixhepc.com/home/redemption-etrials.htmlWhile slightly more expensive than sourcing the medication from India or Egypt yourself, you will be guaranteed of receiving genuine Indian generic medications including shipping and tracking to your door, etc. You will also get access to expert medical support (in addition to your own monitoring doctor) from the Redemption trials partners MonkMed per this link http://fixhepc.com/forum/new-to-forum/327-new-member-intro.html?start=135#13297
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
Hi Enrico,
1a Genotype used to be the worst but not anymore with the new drugs!
That is fantastic that you have a doctor to monitor you! It’s becoming not uncommon anymore! But I would be very surprised if he would write a script, as LG says, never heard of it happening yet.
Really the simplest thing is to make an appointment with GP2U from the link on the homepage here to get a script and take it from there to go on Redemption and get your drugs Fedexed via Monkmed. You will need to know your Genotype ( ✔️ ) your fibrosis level and your viral load ( phone your doc and check these first)
Cheers, hope this helps,
DebSorry GAJ must have been writing as you were writing!
Except I kept getting interrupted.
Basically saying the same thing but yours has more detail!
Cheers
Ps the only thing I would say is I’m with LG on this one and just can’t see an English gp writing a script for generics……yet.
Deb
Hi Enrico,
I’m in USA and have generic Harvoni (ledipasvir and sofosbuvir) being delivered today via USPS. I am in the Redemption 3 e-trial.
It’s the easiest for most of us living where price is a huge hurdle. I was told it would take about 3 weeks to receive my shipment of 12 week supply from Indian supplier and they, the MonkMed team, were right on. So, you can trust FixhepC and gp2u to make this happen for you. Gaj and Debs have given you straightforward information to get you started. My advice, don’t wait. Get the cure my friend. You won’t regret it.
Thanks Enrico for sharing your experience, best to you,Matt
P.S. Thanks to Gaj and Debs too
my doctor here in london, at my precise question, said he will monitor me if i get meds
Hey that’s great news
– Is that your hospital consultant or your GP? – Either way, a good start.
You could drop by your hospital /GP and ask them to print-out your test results (it’s your right), I have found calling in is easier / quicker than asking them to post. I recommend Redemption via Fix HepC / MonkMed. As Gaj saidYou will also get access to expert medical support (in addition to your own monitoring doctor) from the Redemption trials partners MonkMed
I was delighted to see the HepC Trust had finally got on board
Wishing you the very best in getting treatment sorted out.
Except I kept getting interrupted.
Hi Debs,
LOL, that happens to me all the time but usually the previous poster has already proved my comment wrong!
…..and you have a better understanding of the UK situation than me.
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
Hey GAJ,
But at least you don’t repeat yourself! Didn’t realise I’d mentioned the uk script thing twice. Must be an age thing
- You must be logged in to reply to this topic.