Hi Suzi and welcome,

As Sirchinenge says, hopefully the Doc can provide some input.

In the meantime I found these while searching.

From: http://www.ema.europa.eu/docs/en_GB/document_library/EPAR_-_Risk-management-plan_summary/human/003850/WC500173515.pdf

And also some information on a couple of Clinical trials but only at the recruiting stage so far.

https://clinicaltrials.gov/ct2/show/NCT02613871?term=HBV+AND+HCV&rank=13
https://clinicaltrials.gov/ct2/show/NCT02555943?term=HCV+AND+HBV&rank=3

I can’t find any earlier trial results. Maybe email Gilead and ask them? They may be able to point to something.

Other than that I suggest bumping this tread every few days between now and your appt on 4th Feb in case one of our guests with real world experience reads it and can provide further input.

Hi Suzy
just popped in to your page to say hello and all the best for tx..there is also a great little corner for women’s stuff here with tips on hair and skin and even fingernails … a few of us are sharing our remedies for sx from tx like dry skin or brittle hair or really just about anything to do with hormones
If you can’t find it and want to check it out you can use the ‘search’ at the top middle of the screen..I am pretty sure if you put in the word menopause that this blog will appear (lol)
good luck for tx and all the best from Ariel

Hello Suzy,

You are in France? You are looking at the map of “Geographical Eligibility for REDEMPTION?” For many countries, the red dot does not necessarily mean it is “forbidden”. It just means that mailing to that country has not been proved to work (if I understand correctly).

However, in France, it is unfortunately against the law to buy medicines on-line or to import them unless you bring them with you personally as a traveller (this seems to be the rule in many european countries). This means that in France, there is a risk that if you try to import medications directly in the mail, they could be confiscated by French Customs.

Here are some links: http://fixhepc.com/forum/questions-and-answers/322-france-medication-import-regulations.html

So the best option for you if you want to follow the law strictly would be to have your medication delivered to your address in London (of course, you have an address there if you have friend there!), and then take a quick visit there on the Eurostar to collect it.

Bringing your medication into France as a personal traveller would then be a perfectly legal thing for you to do…

In the completely hypothetical situation that you cannot travel to London and your friend might post something to you from London to France, some people might say that it is less likely (but not impossible) that French customs would look at a parcel coming from inside the EU than a parcel coming from outside the EU. This is just a hypothetical possibility and I would never advise anyone to take such a risk with their life-saving medication. So because this in a public form, and because we must not encourage anyone to break any laws anywhere, I would like to advise you again to never even think about the possibility of posting medication from the UK to France.

[The fact that it is against the law in France to import one’s own life-saving medication is of course a crazy situation. But do not fear. Gilead have no power to change French law. And importing one’s own personal medication as a traveller is perfectly legal almost everywhere in the world, including France.]

Hi Suzy,

I had Hep B too, as well as Hep C. I’ve never heard about it sleeping. My doctor was concerned many years ago when I was actively co-infected. He then told me one day that he had great news, my Hep B was “dormant” and no longer a worry to me. He told me I was not even able to infect anybody with it. I’ve never heard it could come back.

I would get the Harvoni treatment if you can, and remember you can get generic Harvoni here through the buyers club very easily. It will cost you less than $2,000 including an Australian doctor’s RX (GP2U) and if you can have them delivered to UK, but I think you have to go to UK and get them.

I was originally diagnosed with chronic HBV back in approx. 1973 – 1974; had a liver biopsy then. Following a liver biopsy in 2003 I was told it had “serum converted” – that I no longer had HBV, only HCV (which was diagnosed in approx. 1993). So for many years I was probably being affected by both viruses.

I asked at the time whether there was any chance of the HBV re-emerging and was informed – not to their knowledge – remote.
Recently a Hep Aus worker told me this advice was not strictly accurate; that under some circumstances HBV re-asserts itself when the HCV is cured. Too busy focusing on the HCV to have yet researched this – so still don’t know where I stand.

My son had the HBV from me when he was born but it “went” immediately after. He does, however, currently have HCV and was unsuccessful with a sixteen week IFN/Riba treatment a few years ago – ceased because he was a non responder. Is currently treating with the Buyer’s Club Sofosbuvir & Ledipasvir. Hadnt UND by week six but hasn’t had any bloods taken since. Plans to soon.

its been scary, at times, pacing the complications of this disease as it progresses – but what has most done my head in – is watching my son deal with having HCV.

cheers Archer.

What it means is this that they have not done enough tests to work it out!

Antigens are viral proteins.

Our body develops Antibodies in response to antigens and these antibodies are what protects us.

Hep B has both surface and core antigens (and an e antigen), so if you are infected you develop antibodies to both surface and core (and e)

With immunisation you get given surface antigen fragments so develop surface antibodies BUT do not get core antigen (so do not develop core antibodies).

Your test says they can find both surface Antigen and Antibody, suggesting you still carry Hepatitis B. A Hep B Viral DNA quantitative would answer the question (just as HCV Viral RNA does).

Here is more than you ever wanted to know….

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1079522/