Home Forums Main Forum FixHepC Admin Q & A Cheating Fibroscan

Viewing 15 posts - 1 through 15 (of 28 total)
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  • #10459
    PauliNO
    • Topics: 4
    • Replies: 16
    • Total: 20
    • Treatment Warrior
    • ★★★
    @paulino

    Does anyone know if there are any ways to manipulate a fibroscan test? Would the kPa score go up if I went on a bender the day before a fibroscan?

    My last fibroscans have shown 6 kPa and just below 6 kPa. To qualify for statesponsored treatment I “need” a score of 7kPa


    Genotype 1b – Tx naive
    Pre Tx Vl 8 900 000, Alt 52
    2 weeks VL160
    4 weeks VL 43
    7 weeks VL UND
    EOT UND
    SVR 12 UND

    Startet Tx 6. feb 2016 Hepcivir-L (Generic Harvoni from Cipla)
    (REDEMPTION trial)

    #10474
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Hi Paulino, I thought your were going on Redemption ? or are you referring to the monitoring?

    I haven’t found fibroscan very reliable, apparently it is tricky to get a reading in very large or very skinny people – Some say eating a large breakfast can make the score higher ha ha I don’t recommend going on a bender – at all !


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    #10487
    psavic
    • Topics: 1
    • Replies: 26
    • Total: 27
    • Treatment Warrior
    • ★★★
    @psavic

    On the 1st fibroskan test, the doctor insisted that keep air and do not breathe before each shot. He also insisted that transfer the right foot over left, right arm above head and bend over to get out ribs. The result of 16.3 kPa.
    (because the results have not received free treatment to this drug, and have a slight doubt about the accuracy …;)
    On the second test, after 20 days, (different hospital, doctor and Fibroscan device), but doctor was told me to lie down and relax, and just move the right arm across the chest. The result of 10.2 kPa

    It is logical that if the lungs and body position squeezed the liver, it will increase its stiffnes.
    I can not say does it have an impact on FibroScan result, because my tests are not made on the same fibroscan … although I believe it has some influence


    G1 F1 or F4 (I am not sure) 6. jan. 2014. -> Biopsy -> F1
    24. dec. 2015 -> Fibroscan 16.3 kPa -> indicate chirosis
    15. Jan. 2016 -> Fibroscan 10.2 kPa -> F3/F4
    VL 30.000.000 – may 2015
    VL 3.300.000 – dec 2015
    Started TWINVIR treatment naive on January 13, 2016.
    VL after 21 day UNDETECTED

    #10488
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    a different take on a bender ! :lol:


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    #10494
    Avatar photoCJ
    • Guardian Angel
    • ★★★★★
    @cj

    I found eating before the fibroscan made the result much higher for some reason,
    the next one I ate & drank nothing for ages before & it was a lot lower!

    so….hopefully that’d work for you.

    x


    J the young dragon slayer is:
    HepC 1a since birth
    Male aged 15
    VL 2000000
    Started Twinvir/ 10-11-15-then Sof/led.
    NO sides so far !
    after one week VL : 37
    after 4 wks VL : UND !
    EOT 2/2/16 UND.!
    4 wks. post tx results….pending….
    7/3/16 VL result : 4 week post tx: SVR !
    12 weeks SVR !
    24 wks SVR yeeaa!!

    #10497
    avatar876.jpegGaj
    • Guardian Angel
    • ★★★★★
    @gaj

    Definitely wouldn’t recommend a bender!

    I do seem to remember my scan appointment letters each stating to only eat a light meal at least 4 hours before the appointment to give most accurate results. B)


    G3a since ’78 – Dx ’12 – F4 (2xHCC)
    24wk Tx – PEG/Riba/Dac 2013 relapsed
    24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
    16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
    SVR7 – 22/06/17 UND
    SRV12 – 27/07/17 UND
    SVR24 – 26/10/17 UND
    :cheer: :cheer: :cheer:

    #10499
    A.L.
    • Topics: 3
    • Replies: 61
    • Total: 64
    • Recovery Champion
    • ★★★★
    @a-l

    I thought this site was very keen on sticking to the letter of the law in order to continue doing its good work unhindered and maintaining its reputation.

    Is asking for advice about the commission of fraud acting in this site’s best interests?


    G4, F4, cirrhosis.

    Thank you to Gilead, Michael Sofia, and the terrific folk at FixHepC for making this adventure possible.

    YEAR….. ALT….. AST….. GGT… FERRITIN………………………………….
    2009……. 210….. 215….. 953….. 1400……….. (Bad health, stupidity)
    2015……. 60……. 45……. 150….. 360…………. (Improved diet and health, FixHepC treatment)
    2016……. 20……. 24……. 25……. 156…………. (SVR 12)

    #10504
    Avatar photoCJ
    • Guardian Angel
    • ★★★★★
    @cj

    hmm…. that’s a tricky one….I think “fraud” is a bit strong.

    I presumed it was someone needing a higher result to access the orals to save their life.
    I don’t know why anyone should have to wait till their liver is damaged enough to access the drugs to fix them.


    J the young dragon slayer is:
    HepC 1a since birth
    Male aged 15
    VL 2000000
    Started Twinvir/ 10-11-15-then Sof/led.
    NO sides so far !
    after one week VL : 37
    after 4 wks VL : UND !
    EOT 2/2/16 UND.!
    4 wks. post tx results….pending….
    7/3/16 VL result : 4 week post tx: SVR !
    12 weeks SVR !
    24 wks SVR yeeaa!!

    #10510
    avatar876.jpegGaj
    • Guardian Angel
    • ★★★★★
    @gaj

    What exactly is the “letter of the law” on fibroscan results? My understanding is that various countries, insurance companies and medical professionals apply different levels at which they feel it is appropriate to triage treatment for HCV. These appear to be arbitrary levels based on the hip pocket of those applying them rather than the health of the patient. Being “cut off” points they also don’t take into account the known inaccuracies of the fibroscan procedure in determining exact levels of fibrosis.

    The replies by members here seem to show concern for the health of the OP by advocating against going on a bender and then share their experiences of some of the inaccuracies inherent in Fibroscans.

    I see no commissioning of fraud but a lot of advocacy for best health practices.


    G3a since ’78 – Dx ’12 – F4 (2xHCC)
    24wk Tx – PEG/Riba/Dac 2013 relapsed
    24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
    16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
    SVR7 – 22/06/17 UND
    SRV12 – 27/07/17 UND
    SVR24 – 26/10/17 UND
    :cheer: :cheer: :cheer:

    #10514
    Avatar photo2b
    • Guardian Angel
    • ★★★★★
    @2b

    “commission of fraud’?? with regard to getting maybe a higher fibroscan score, which scoring is probably about like phrenology anyway?

    that kind of finger wagging and hyperbolic terminology used on this site for that little topic question appears to be BS to me,
    something’s not right here.


    GT 2b; since 80’s, no prior tx, sofosbuvir and daclatasvir compounded from API’s at Kingswood Pharmacy in Sydney, started tx nov 6,2015, undetected at 4 wks, UND at 8 weeks, UND at 1 week after EOT, UND at 4 weeks after EOT and UND at 8 weeks after EOT. I feel GOOD!! I knew that I WOULD!””

    #10520
    Avatar photoCJ
    • Guardian Angel
    • ★★★★★
    @cj

    I agree 2b.
    :+1:


    J the young dragon slayer is:
    HepC 1a since birth
    Male aged 15
    VL 2000000
    Started Twinvir/ 10-11-15-then Sof/led.
    NO sides so far !
    after one week VL : 37
    after 4 wks VL : UND !
    EOT 2/2/16 UND.!
    4 wks. post tx results….pending….
    7/3/16 VL result : 4 week post tx: SVR !
    12 weeks SVR !
    24 wks SVR yeeaa!!

    #10522
    Wayne
    • Topics: 2
    • Replies: 36
    • Total: 38
    • Treatment Warrior
    • ★★★
    @wayne

    All AL posts are negative obviously is on a different agenda to the rest of us. :+1:


    Genotype 1b 42 years.
    2007 48 Weeks Interferon + Ribavirin Relapsed.
    2015 6 Weeks same as above + Sempivir Too many sides stopped.
    7/11/15 started Sof / Dac + Riba 24 Weeks. Kingswood Pharmacy.
    VL Before tx 3 million.
    1st bloods 8 weeks undetected
    .

    #10523
    avatar876.jpegGaj
    • Guardian Angel
    • ★★★★★
    @gaj

    Weeeelllll, while I don’t usually agree with A.L., he does give me pause to review my position to ensure that it conforms to my ethical standards. I believe it is useful to have someone to provide those sort of checks and balances to any passionately involved group of people*.

    * maybe an idea for the Gilead management team to consider, too. B)


    G3a since ’78 – Dx ’12 – F4 (2xHCC)
    24wk Tx – PEG/Riba/Dac 2013 relapsed
    24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
    16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
    SVR7 – 22/06/17 UND
    SRV12 – 27/07/17 UND
    SVR24 – 26/10/17 UND
    :cheer: :cheer: :cheer:

    #10531
    Avatar photoBloot
    • Topics: 3
    • Replies: 65
    • Total: 68
    • Recovery Champion
    • ★★★★
    @bloot
    A.L. wrote:

    I thought this site was very keen on sticking to the letter of the law in order to continue doing its good work unhindered and maintaining its reputation.

    Is asking for advice about the commission of fraud acting in this site’s best interests?

    if you’re drunk, it’s doing you no good
    If you’re not drunk, it’s time to start
    If you’re in the medical profession, then I understand entirely (you’re used to wagging your finger and spouting holier than thou platitudes)

    To the op, forget the real frauds that are littered throughout the medical system
    And if you have the dough, get some generics and get cured


    52 y.o. G3a for about 30 years
    Previous tx 2004 interferon/ ribavarin
    2004: ALT 624 AST 263

    Pre tx test 23/10/15: ALT 153 AST 128 VL 11 849 493
    6/11/15: Sof/ dac started
    26/11/15: ALT 41 AST 41
    7/12/15: ALT 36 AST 30 Virus undetected

    2004 biopsy F3
    Fibroscan appt Jan 11 2016.

    #10553
    A.L.
    • Topics: 3
    • Replies: 61
    • Total: 64
    • Recovery Champion
    • ★★★★
    @a-l
    2b wrote:

    ”commission of fraud’?? with regard to getting maybe a higher fibroscan score, which scoring is probably about like phrenology anyway?

    that kind of finger wagging and hyperbolic terminology used on this site for that little topic question appears to be BS to me,
    something’s not right here.

    I agree about the fibroscan numbers not being particularly reliable, but as far as language goes, the title of the OP is “Cheating fibroscan”, and the first line is “Does anyone know if there are any ways to manipulate a fibroscan test?” The aim of this was to qualify for state sponsored treatment. Maybe I could have chosen a better synonym, but the intent of the OP was clear.

    While I quite understand the desire to qualify, I was not so sure that openly gaming the system might look so good for this site. All I asked was whether doing so was in the site’s best interests, which is about as far from finger wagging as I can get while being clear about my concern.

    Everything is fine and above board here, nothing “not quite right” on my side for wondering out loud about a post that didn’t see to fit in with the stated aim of this site.


    G4, F4, cirrhosis.

    Thank you to Gilead, Michael Sofia, and the terrific folk at FixHepC for making this adventure possible.

    YEAR….. ALT….. AST….. GGT… FERRITIN………………………………….
    2009……. 210….. 215….. 953….. 1400……….. (Bad health, stupidity)
    2015……. 60……. 45……. 150….. 360…………. (Improved diet and health, FixHepC treatment)
    2016……. 20……. 24……. 25……. 156…………. (SVR 12)

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