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Wayne wrote:
All AL posts are negative obviously is on a different agenda to the rest of us.
Sorry, you are wrong on both counts.
For one, I have exactly the same fundamental agenda as the rest of us here (apart from Tyler and Marla), which is to get better, share points of view, and support the people who run this site.
Secondly, there is very little negative in my posts – unless you consider that anything which doesn’t 100% agree with your views to be negative. We are all essentially on the same side, but that doesn’t mean we have to sing exactly the same song.
Well I am not going to enter the debate about the person who desperately wants to be cured and needs to find a way however they can, by throwing around semantics and the like, by using words laced with connotation.
I think that it is criminal to deny treatment to anyone. I think it is almost genocide to leave us all on the bench. I think it is inhuman the things that are said about a HepC infected human being, and I think that the things that happen as a result of this virus still warrant much more research. But, I have had a few fibroscans. They hover around F0- F1 in score once the kPa for each one I have had is converted to the F table. My kPa was 5.5, my kPa was around 6, my kPa changes. I have stopped having them because they all just changed and were really a waste of time and the taxpayers money.
So the answer re fibroscan results and their changing from time to time is yes, obviously everyone’s readings are going to be different depending who knows what. Is it where they pop that stick on the side of me? Is it’ as LG pointed out, my weight at the time…is it a good hearty meal…..who knows? Not me. I don’t care anymore anyway I am on tx. I don’t have to worry about it becoming a worry.
The topic here is not about advice for obtaining a score for accessing tx…the topic is bigger than that. The topic is that this is a place where you can access tx, you can get a chance, you don’t need to prove a score to get your medicine. This is a place where you can ask for help. You can buy medicine. You can find support even in the worst times. I read how difficult it is for some friends here to get tx, how hard and challenging it is in the UK, how ordinary the system is in the States, how people are flying across the Tasman….
Seek tx here now, that is the best advice I can give in love.
A.L. wrote:(apart from Tyler and Marla)
And you are the narrator?
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
Thanks for the good advice! I think I´ll refrain from going into a discussion about the ethics of my question.
I have my appointment tomorrow morning and will go for a big breakfast. To those concearned, im still sober
As for getting generics, they´ll ship today. I will however have to bend a few rules to get them into the country anyways
PauliNO wrote:I will however have to bend a few rules
Pfft! I’ve driven large trucks over some of those in my lifetime.
I don’t necessarily advocate it for others but for me, if it doesn’t go outside of my personal ethics, risk hurting others or set a bad example to minors then rules are merely boundaries set by someone else so I weight up why they did that, the consequences versus the outcome and make a decision as to my course of action. YMMV
Once you are in a position to be confident of your own treatment it would be great to hear what the situation is with regard to the legalities of entry of prescription meds into your country……..also any suggestions you may have for others who wish to follow if you are comfortable with that bit.
Hoping for a speedy commencement and successful treatment for you.
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
That did cross my mind when asking after you made what many would consider an obscure reference in this thread.
* for others; we are discussing the central characters in the novel Fight Club where at least some of the themes are not totally unfamiliar to many of us (I find the graphic violence in the movie makes it unwatchable)
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
The consultation went well
The doctor did two full rounds of fibrocan and they showed around 5 and 6. Apparenty there can be quite big variations depending on exacly where they do the measurements.As I have signed up for generics(Hepcivir-L) through the redemption trial and the meds where delivered in the UK on monday this week I was happy to see that there hadn´t been any more damage to the liver. I´m traveling to UK to pick up the meds friday and will start Tx saturday.
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