It was easy for me being Gen 3; I think I dropped out at part (V) – which is fair enough?

I expect everyone else will have to read further on to reach their exit point.

Yours

J.

P.S.

I did notice that following V there was no VI and it went to VII??

I was assuming they are attempting to use Roman numerals?

Hi Kevin,

“I’m bringing this up because I’m very concerned about what will happen when we start succeeding in reaching the larger numbers out there and they simply can’t figure the whole process out by reading this forum. There are not enough of us here to hold all their hands.”

I read the first part of your post and it is a good way of understanding how unfortunately the world operates most of the time.

The second part above begs the question of what should the individual do about it. At this time, I am just trying to get better and while doing so I am aware that:

1. people in other countries that should know better cannot access the meds for financial reasons (read gouging).
2. people in a lot of other less well off countries will have trouble affording meds anything – perhaps as our demand pushes local prices up?

and

3. lots of people will not get the message too soon an live lesser lives in the meantime.

So? I guess I rationalise my own actions as me getting better somewhat ‘in public’. Anyone who has been involved in my treatment will know who I am from my signature and posts anyhow – if they read this forum.

I have mentioned in a rambling way in other topics that I feel an obligation to ‘get better’ for reasons of family and not expecting the rest of society to carry me if I get seriously unwell. A bit pious but not judgemental about others – just a statement about being a good citizen with I think a strong correlation with others who give their time (much more than I do) to post their support for each other on this forum. This obligation extends to governments helping as best they can like happened here in AUS.

There is a trite little dog here the Superannuation companies use in advertisements: “from little things big things grow.’ There is someone else from the USA who just posted on this forum that they had got their meds from the same place I did here in AUS.

Yours

J.

I had a call from the Nurse at the Liver Clinic at the Bendigo Base Hospital tonight. I met her when she came to my work place to give us all our flu shots last year. I had only just been diagnosed at that point and we got chatting and she said that she would probably be looking after me at the Clinic…well 10 months and counting and I am still waiting (will have to cancel at some point I guess). Anyway I told her my story and she said that she had had quite a few queries regarding the Buyers Club and now that she has actually spoken to someone who has taken that road she will be able to tell people that do query about it that she has spoken to someone who has taken the generic option and the positive outcome so far. She was very excited to hear of my progress and asked lots of questions regarding blood tests results etc. I was happy to give her all my positive news. Clearly the message is getting out there, even here in good old Bendigo!

The impression I got from her was that the medicos are not prepared to take the risk by writing scripts for generics. She did however say that she wondered how many people would be able to be treated when the meds are listed on the PBS here in March i.e. it was probably only going to treat those whose livers are really compromised……which is a fair enough comment I thought.

Ya, seeing as you’re the one person that knows how crazy my idea is.

Mike knows an earlier version of it.

Mike said: So anyone with liver disease that has not progressed would be a child A and thus considered compensated Liver Disease

Unfortunately not Mike,

Child-Pugh is a rating of the level of Cirrhosis. So basically a subdividing of those with a F4 fibrosis level. As you are probably aware F4 covers about 14 – 75kPa based on the fibrosis level as measured by Fibroscan/sure, etc. However CP assumes F4/Cirrhosis and then divides it up based on how well the liver is functioning at everyday tasks by measuring blood levels and looking at physical changes rather than just liver stiffness. So someone with CP-A is Compensated or in other words, their liver functions well enough that they can live a reasonably normal lifestyle with some care. CP-B is progressively worse until you get to CP-C. These are both referred to as Uncompensated. Basically it is a point score system that determines likely prognosis.

https://en.m.wikipedia.org/wiki/Child-Pugh_score