Emilio's Place - FixHepC

This topic has 328 replies, 51 voices, and was last updated 7 years, 5 months ago by coral.

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16 November 2015 at 3:10 pm #4034
mgalbrai
- Topics: 28
- Replies: 1,298
- Total: 1,326
- Guardian Angel
@mgalbrai
Em,
I always thought you were done with all the tx.
Way to go my man!
M

Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
16 November 2015 at 3:12 pm #4035
mgalbrai
- Topics: 28
- Replies: 1,298
- Total: 1,326
- Guardian Angel
@mgalbrai
Em,
Good luck on your journey!
I was just messaged by another guy in the US I have been “mentoring”. He got his shipment from Rachel! That makes two!! I think I am as happy as he is. Testing up here is very expensive. That is the issue I have been looking in to the most lately. Most labs don’t want to mess with it. The one who gave me a quote wanted $5100.
So, I have my 4 week labs Wednesday. That will be “my” test.
How many samples do you think the doc has tested by now?
Take Care,
Mike

Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
16 November 2015 at 4:16 pm #4036
Gaj
- Topics: 29
- Replies: 1,402
- Total: 1,431
- Guardian Angel
@gaj
Salute!

Em, you have my deepest respect and admiration for your strength and bravery.

G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
16 November 2015 at 6:23 pm #4040
Alsdad
- Topics: 18
- Replies: 317
- Total: 335
- Guardian Angel
@alsdad
That’s a big, big call mate. As if my admiration for you wasn’t high enough anyway! You’re a braver man than I. May the devil that is The Media dance nicely with you.
17 November 2015 at 5:26 am #4069
emilio
- Topics: 13
- Replies: 368
- Total: 381
- Guardian Angel
@emilio
Well that pic was 5 years ago Mike so could be your older brother maybe lol. Em
17 November 2015 at 5:32 am #4071
emilio
- Topics: 13
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- Total: 381
- Guardian Angel
@emilio
How many samples tested Mike? I’m not sure enough to be convinced that everyone has the real deal and will continue to get the most pure generics on the planet atm. They have a lot to loose if one batch ended up any different than pure and I don’t think this will happen. You will know very soon with certainty that you have the authentic meds. Not that you don’t know that now. Em
17 November 2015 at 7:42 am #4089
zhuk
- Topics: 5
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- Total: 548
- Guardian Angel
@zhuk
Major props to you em, a true act of bravery and generousity of behalf of all. Thanks for what you are doing mate.

GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26
17 November 2015 at 11:58 am #4108
emilio
- Topics: 13
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- Total: 381
- Guardian Angel
@emilio
Not brave at all just now want to be counted and hopefully be a champion for those like young J DS and others that will follow.

Question how can we collectively provide free access to those who can’t afford the $1000US price? It would be amazing if we could attract a philanthropist so that we could offer this to everyone ie, cirrhotics with no money. Free access will come but at what cost to countries such as Australia $20 billion? My prediction is that there won’t be universal access but tested based on severity maybe. Em
17 November 2015 at 12:07 pm #4110
zhuk
- Topics: 5
- Replies: 543
- Total: 548
- Guardian Angel
@zhuk
Wholeheartedly agree with you em. There are amazingly generous people out there who have not hesitated to help complete strangers…I think this is absolutely an avenue which could help those not able to afford it. The question is: how can that be structured & applied to more than just the odd very fortunate individual?

Far as access goes, considering every other Western country has a system of triaged-supply (like the two most comparable to us, Canada & the UK) it beggars belief that anyone would cling to the notion that Australia could have universal access – even if the price negotiated was half the original, its still gonna be in the ballpark of $10bil.

No Govt is ever going to wear that, against every other condition needing PBS coverage.

GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26
17 November 2015 at 12:23 pm #4111
CJ
- Topics: 10
- Replies: 362
- Total: 372
- Guardian Angel
@cj
No Govt is ever going to wear that, against every other condition needing PBS coverage.

That’s what I’m afraid of too zhuk, there’s such a bad stigma attached to having this virus.
That’s one of the reasons I thought to go NOW for the generics for my son.
Who knows how long we’d be waiting if we wait for the Gov to hand over that sort of money?!
Probably years & years….
x

J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results….pending….
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!
17 November 2015 at 12:30 pm #4112
zhuk
- Topics: 5
- Replies: 543
- Total: 548
- Guardian Angel
@zhuk
Couldn’t agree more, CJ. I’m F0 with a 262,000 VL so the likelihood would be that I would sit at the back of a 233,000-strong queue, if DAA’s were approved tomorrow. And yes the stigma/politics is a big part of it too…no touchy-feely human-interest stories for the public here.

Very likely years waiting for my condition to worsen sufficiently. Or, I could be “lucky” and it could suddenly take a turn for the worse, in a shorter period of time. Thing is, if you have, or are given the wherewithall to do otherwise – why would you wait for that eventuality?

GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26
17 November 2015 at 3:06 pm #4122
mgalbrai
- Topics: 28
- Replies: 1,298
- Total: 1,326
- Guardian Angel
@mgalbrai
Correct me if I am wrong, but didn’t Jonas Salk come up with a way to protect people from getting polio. Did he sell the formula to a hedge fund for billions? It was (and may still be) a required vaccine in the US and Salk gave the rights to make it away.
We need to eradicate this scourge. The vaccine is coming. The cure is here.
As Salk said “You can’t patent the sun.”
Mike

Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
17 November 2015 at 3:51 pm #4123
zhuk
- Topics: 5
- Replies: 543
- Total: 548
- Guardian Angel
@zhuk
You got it there, Mike.

Hep C is no less a scourge than polio is/was, just slower to cripple/kill and more invisible. And of course a whole lot less palatable in the public and political eye. What if there was developed an actual ‘cure’ for a particular form of cancer…how would it sit with the community to withold it from all but those who were sickest?

“No, I don’t care about getting re-elected,” said no politician ever lol

GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26
17 November 2015 at 4:33 pm #4126
mgalbrai
- Topics: 28
- Replies: 1,298
- Total: 1,326
- Guardian Angel
@mgalbrai
Zhuk,
You are right about the politicos. Pardon my sexist humor here, but they need to grow a pair…..
M

Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
17 November 2015 at 11:04 pm #4143
emilio
- Topics: 13
- Replies: 368
- Total: 381
- Guardian Angel
@emilio
Hey Everyone

Mike I love that Jonas Salk quote ‘you can’t patent the sun’. Zhuk don’t get me started on overlaying this debate onto cancer. Shit I don’t doubt there has already been a cure for some cancers bought and destroyed in my lifetime. Cancer is big money to international pharmaceutical and medical community. Pie in the sky? I think not. Em
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