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  • 30 September 2016 at 9:47 am #23357
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Bureaucracy to the max and corruption over patient care, sadly.

    As far as England is concerned, we don’t even know if we’re in Europe any more :huh: and with current Gvt who have their fingers in big pies, well ……

    It seems, it’s down to individual hospitals whether they ‘break the rules’ to even monitor treatment on generics, and this has come a long, long way within a year thanks to Dr Freeman, Dr Andrew Hill and Greg Jeffereys at EASL , MonkMed, who do things properly and tirelessly and patient advocates like the people on here, having faith and getting cured. At least Drs are listening now, a giant step in the right direction and mainly down to medics, certainly not the powers that be and highly paid management.

    I can’t see Europe going for this in the near future, although I can imagine there are some in the Eu that would like to implement it, so I think there may be hope for the distant future. It would save the health authorities a fortune, improve the lives of patients enormously, as well as actually saving lives but no doubt big pharma & business types would put pay to that currently.

    But to all of the above, I salute you, you started something and it’s awesome :+1:

    A vision for future, maybe ? Ridding Europe and the world of Hepatitis C, Quite frankly, it’s disgusting and immoral not to.

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    30 September 2016 at 10:21 am #23360
    Avatar photorohcvfighter
    • Guardian Angel
    • ★★★★★
    @rohcvfighter

    Hi LG,

    Thank you for this view, I see it in the same way.
    Even more, looking at the answer from the EU parliament, I would say that in order for EU to initiate something, it would be required that on a lower level (national level) the countries should initiate an action favorable to HCV generic drugs. But on the national level there exist other systems (healthcare system, governments, pharma companies and distributors, etc) which are very complex and have many rules that perhaps are forbidding them to talk so easy about generics. What these systems might require is that on an even lower level, the citizens, will talk and demand that something has to be done about the HCV generics.
    As a funny thing, the systems have the power to authorize the generics, but not so much freedom to talk about these generics, while the citizens have the freedom (human right) as well as the legitimacy to talk about generics, but less power in accessing the treatment.

    I guess the key is for people to talk fearless about the HCV generic medication.

    Cheers,

    RHF

    In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
    HCV kills more than 500000 people every year. HCV generic drugs work. Don’t become a statistic.
    By sharing this Youtube video you might save someone’s life!
    My TX: HEPCVIR-L[generic Harvoni]-India
    SVR52 achieved

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