French govt announces universal HCV treatment

This topic has 22 replies, 8 voices, and was last updated 8 years, 3 months ago by fitz.

Viewing 8 posts - 16 through 23 (of 23 total)

← 1 2

Author

Posts
22 June 2016 at 8:11 pm #19772
Vororo
- Topics: 25
- Replies: 307
- Total: 332
- Guardian Angel
@vororo
The reason I post a lot on FixHepC is that I believe it is now THE reference site for legally accessing generic HCV treatment.

Our posts are being read by more and more people who are desperately looking for treatment.

But also they are being read more and more (I believe) by doctors, lawyers, regulators, activists, advocates, key decision makers, and maybe even politicians.

Me, I am hoping at the very least that the people in the French and UK Health Services are following what’s going on here.

Obviously its a political issue. But please, please, please can we keep gun laws and terrorists out of the argument?

Thank you for your understanding.

Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).
22 June 2016 at 10:08 pm #19775
fitz
- Topics: 9
- Replies: 490
- Total: 499
- Guardian Angel
@fitz
Vororo wrote:

Hi Mike,

Please, please can we keep gun laws and terrorists out of the argument?

Thank you for your understanding.

Agree completely, Wullie. And thanks Mike!

Plenty of other places on the internet for spirited non-HVC related political debate.

I do hope France breaks though on this. If its going to happen anywhere on the Western side of the EU, France is probably where it happens first.
22 June 2016 at 10:15 pm #19776
mgalbrai
- Topics: 28
- Replies: 1,298
- Total: 1,326
- Guardian Angel
@mgalbrai
All offending comments removed, I think..
Even Joy’s mugshot.
Keep me on topic folks!
m

Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
22 June 2016 at 10:55 pm #19778
Vororo
- Topics: 25
- Replies: 307
- Total: 332
- Guardian Angel
@vororo
mgalbrai wrote:

All offending comments removed, I think..
Even Joy’s mugshot.
Keep me on topic folks!
m

Thanks a lot Mike … I was only kidding about “Apache Pass” (private joke)

Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).
23 June 2016 at 2:19 am #19788
mgalbrai
- Topics: 28
- Replies: 1,298
- Total: 1,326
- Guardian Angel
@mgalbrai
I will follow the advice of Will Rogers:
“Never miss a good chance to shut up”.
m

Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
27 June 2016 at 6:06 pm #19992
rohcvfighter
- Topics: 50
- Replies: 338
- Total: 388
- Guardian Angel
@rohcvfighter
Something unusual happens this summer, after France, Romania announces also that starting from October/November this year, the HCV patients with easier forms of HCV will be able to access the interferon-free therapy (at least this is what the CNAS’s president [CNAS is something similar with NHS] declared some days ago). In addition to this, it was also revealed that the previous allocated budget was not entirely used….. One might think that Romania is almost free of HCV…..

BUT, did anyone talked about the barriers in accessing the therapy? One need to get a special kind of voucher from his/her doctor in order to make the blood tests and how to obtain these vouchers is not so clear. What is sure is that if you do not make the blood tests using these vouchers, let’s say one makes it with own money, the access to the interfon-free therapy is denied. Perhaps I am wrong, but I do remember how unclear it is was some months ago for me to get this voucher (which I did not received) ….

So what’s the point to declare patients have access to interferon-free therapy as long as the “how to” get it is unclear? To me it looks more like a nice political statement, but not so efficient in the implementation. And politics is important in these months because the elections are near…

I look forward to see how France moves the things on,

Cheers,
RHF

In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google ‚Äúmedicamente generice pentru hepatita C‚Äù.
HCV kills more than 500000 people every year. HCV generic drugs work. Don’t become a statistic.
By sharing this Youtube video you might save someone‚Äôs life!
My TX: HEPCVIR-L[generic Harvoni]-India
SVR52 achieved
30 July 2016 at 6:53 pm #21686
rohcvfighter
- Topics: 50
- Replies: 338
- Total: 388
- Guardian Angel
@rohcvfighter
Hello Everybody,

a small update from Romania:
– 1 month ago I was posting that from Oct/Nov this year, the patients with easier forms of HCV might have access to interferon-free therapy in Romania.
– couple of days ago, a news appeared in the media from Romania where it was disclosed that the government no longer has the money for the treatment and that some negotiations are currently taking place in order to treat ~2300 patients with de-compensated cirrhosis (article in RO language here: http://stirileprotv.ro/stiri/sanatate/tratamentul-fara-interferon-pentru-bolnavii-de-hepatita-c-guvernul-a-constatat-ca-nu-mai-are-bani-pentru-toti-pacientii.html – the website belongs to a well known TV station from Romania).

So the patients are going now from optimism to pessimism. In parallel there is a national awareness campaign for detecting hepatitis B&C, advising the patients to see a doctor in order to find the proper treatment (as hepatitis C may be cured). But when visiting the doctors, the patients get the answer that they have to wait…and wait…. and wait….. And to make things even worse, the possible cure via generic drugs is not discussed at all, rather it is put in the same boat with the action of “buying drugs over the internet” which is shown as being very risky and having tricked many people so far.

This makes me so eager to see how France is handling the “promise” to enable the access to treatment for all patients. And also to see how things will develop in Australia till the end if this year.

Cheers,
RHF

In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google ‚Äúmedicamente generice pentru hepatita C‚Äù.
HCV kills more than 500000 people every year. HCV generic drugs work. Don’t become a statistic.
By sharing this Youtube video you might save someone‚Äôs life!
My TX: HEPCVIR-L[generic Harvoni]-India
SVR52 achieved
30 July 2016 at 11:16 pm #21690
fitz
- Topics: 9
- Replies: 490
- Total: 499
- Guardian Angel
@fitz
This is really distressing news, RHF. Your efforts in getting the word out are so important, and now even more so.

Fie ca Dumnezeu să binecuvânteze eforturile tale!
Author

Posts

Viewing 8 posts - 16 through 23 (of 23 total)

← 1 2

You must be logged in to reply to this topic.