Home › Forums › Main Forum › Patient Stories › ‘In which LG seeks Redemption & makes new friends’
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19 April 2016 at 2:48 am #15775
Ty LG well my flippers and fins are all crossed for you
Yup the weeks are dragging on omg. Less than two weeks to my SVR4 blood pull now. Seems like 2 years haha
Ve vill get zere
illy:' />Ty very much xxxx
27 April 2016 at 1:26 am #16217Hi there London Girl
Just to say I have been thinking of you daily and hope you’re going okay on phase two of your tx. The weather must be starting to warm up for you now too
Hope all is well and going to plan lovely lady xxx
Splashes from Ariel27 April 2016 at 1:53 am #16221Me too dear Ariel, thinking of you .
Plodding along…plod plod.
Feeling ok but worrying!
I hope all is going well for you too
lg xxxps It snowed today!!
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC27 April 2016 at 2:38 am #16223Hey LG
I think of you also and sincerely wish you all my best wishes for Tx. I wondered if you had noticed any significant difference between dac and led?
gt 1a VL 6m
F2/3 FibroScan – 9KPa in 2011 and 7KPa in 2015
sof/dac 10 December for 12 weeks
pre tx alt 85 ast 51
4 wk alt 34 ast 31 UND <35
8 wk alt 29 ast 32 UND <15
12wk alt 25 ast 25 EOT 3.3.16
SVR24 UND KPa5.3 F0 in normal range
I am well
.forever grateful to fixhepc27 April 2016 at 3:17 am #16227LG..SNOW!
Gosh that is late in the season.
We are enjoying an unseasonably stunning Autumn. It is over 20 Celsius every day and warm winds. Great for drying the clothes…that is unless you fall asleep in the afternoon and leave them on the line illy:' />
Keep us posted babe xoxox27 April 2016 at 11:41 am #16260Yes – It was sunny, but ‘crisp’ as they say… then all of a suddent – snow – Bonkers!
Me, I’m waiting for the heatwave
More bloods next week, we shall see.
Lots ofHi Pat
I am much the same on the Sofo/Dac in the way of sx – ie hardly any.
However BMs are back to normal but this could be the digestive enzymes I am taking with evening meal.
I have had days of alot more energy, quite a few glimpses of my old self (high energy).
Brain fog has definitely improved, without a doubt.
Instinctively, I feel better on the dac but it’s hard to pinpoint exactly how.
With both meds I get this strange taste, weird woody, damp grass, yucky kind of thing in my mouth, throat and oddly, nose. I can smell it on me.Sometimes, I even wonder my first messed up hospital may have even typed my GT wrong, a strange thought but not as crazy as it sounds as they typed alot of other stuff wrong !
In week 4 of Sofo//Dac currently, still detected at week2 but <12 unq - We shall see.
Trying to get a qualitative VL test, seemingly impossible in this country or extortionately expensive and packaged in with HepB, HIV and other tests. GP says not available on NHS. All I can do is keep on keeping on
Lots of
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC11 May 2016 at 11:50 pm #16972Hello everyone, Here’s a little song for you all :
Week 4 1/2 of Sofo/Dac :
pL ASSAY(s) REQUESTED VIRAL LOAD
pL Assay(s) requested HCV viral load ONLY
pL Hepatitis C RNA (V. load) <12 IU/mL
nL Hep.C RNA (Last sample result)
nL Laboratory comment
pL Laboratory comment UNDETECTABLE HCV RNA at the lowest detection limit
pL of the assay.
nL Clinician comment
pO Saved in Location Freezer-A,Yellow No.43(D6)
Big to all
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC12 May 2016 at 12:11 am #16974That UND has been a hell of a long wait for you LG, I am really happy for you
CONGRATULATIONS
SVR 24
12 May 2016 at 12:45 am #16976It’s early dawn
The skies are grey
My coffees made
I’m starting my day
Each morning check in
To see how the friends
Are going today
And this is HOORAY
To you London G
At last UND
My heart sends you love
You’ve been through enough!
I’m stoked at this post
From this lassie down under on the coast
Hooray And hurrah
You have come so far
I feel your release
I’m sensing great Peace
Fantastic my friend
Now onwards to the end!
Smiling all the way
It’s a BRAND NEW DAY!Yay LG
You whipped a quick poem out of me! I must be emotionally affected, and coffee tastes even yummier now
Splashes of happiness to you babe
Ariel12 May 2016 at 1:05 am #16979Hallelujah Chorus, Love it LG, it sure has been a long time coming, and all the sweeter for it
Congratulations and loads of love
Debs xxxx12 May 2016 at 1:14 am #16982Hear hear Debs and loving LGs new signature
12 May 2016 at 1:27 am #16983Thank-you my lovely friends
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC12 May 2016 at 3:14 am #16993Fantasic news LG!
It’s so good to see that UNDETECTED in your signature at last.
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
12 May 2016 at 3:17 am #16995I second, third, fourth and fifth that emotion!!!
Happy for YOU!!!!
Your and Em’s news continues to make this wonderful spring day better and better!!
m
Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtxG 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 2412 May 2016 at 5:02 am #17001 -
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