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  • 27 September 2017 at 2:41 pm #26871
    keith
    • Topics: 7
    • Replies: 18
    • Total: 25
    • Treatment Warrior
    • ★★★
    @keith

    I finished my 16 weeks a couple of weeks ago and after a month or so into treatment I lost all my energy(Riba) but that’s now started to return.
    peripheral neuropathy in my feet which I’ve had for years flared up about 6 weeks into treatment and is still giving me grief.
    At the same time Tinnitus which I’ve also had for years after working in ships engine rooms took on a step change
    it had been 3-4 out of 10 for many years and I’d learnt to mask out the noise and live with it but it suddenly went up to about 7 almost overnight its really distracting, I know it could be coincidence/old age but I just wondered if this is a common thing reported with Riba/DAAs? and is it likely to return to its previous level ?

    age 72 location UK
    14-2-2015 GT1a 6.8 kpa F1-F2 VL6.46
    16-3-16 started 8wks Harvoin
    2 wks VL unquantifiable
    4 wks VL undetected
    8 wks EOT Vl undetected
    4 wks post. detected VL 4.07 relapsed
    22-5-17 started re treatment via Redemption 2 ,meds via Monkmed 12 weeks Sof Dac+Rbv
    Riba via NHS
    Starting VL 4.25 log 6.63 ALT 88 Fibroscan F2- F3 8.9 kPa
    2 wks VL 2.86
    4 wks VL below detectable level
    changed Tx to Viekira+Sof+Rbv
    6 wks VL undetected
    13-9-17 EOT , ALT32, AST28
    SVR 4 +12

    29 September 2017 at 3:44 pm #26872
    Sandcountry
    • Topics: 1
    • Replies: 2
    • Total: 3
    • Novice
    • ★
    @sandcountry

    Hi Keith

    Like you, I have tinnitus – since childhood ear infections, I think. Mine varies a lot in ‘volume’ and somewhat in frequency/tone. Not sure what scale you’re using to measure this – subjective evaluation of impact on normal functioning? I certainly wouldn’t want an increase in the problem- it’s bad enough now, although most of the time I manage to ignore it. Might be worth keeping in touch, especially if there’s a mutual interest in finding out a bit more and seeing if anyone is coming up with something helpful.

    29 September 2017 at 3:49 pm #26873
    Sandcountry
    • Topics: 1
    • Replies: 2
    • Total: 3
    • Novice
    • ★
    @sandcountry

    Oh, by the way, I’ve just started So/Dac/Rib from India via FixHepC today – Gen 3 & 2 x previous treatment (Interferon & Pegasys/Rib)

    30 September 2017 at 6:19 pm #26879
    keith
    • Topics: 7
    • Replies: 18
    • Total: 25
    • Treatment Warrior
    • ★★★
    @keith

    Hi Sandcountry and welcome
    your not the only one who struggles with forum and chat room protocol but I don’t think it matters much on here
    congratulations on starting treatment sounds like you had a hell of a lot to deal with in the last few years I’m sure you’re now making a step in the right direction.
    With regard to Tinnitus the scale I use is just my own way of measuring the noise level out of 10. The increase came on so suddenly and corresponded to the kick in of Riba l wondered if there was a connection, Did you notice any changes In volume during your previous treatments with Riba?
    from what little I know about the condition there never used to be any cure or treatment
    I did read recently that you can now get noise cancelling hearing aids that work like in-flight head sets but that sounds a bit extreme
    there is also a forum I’ve been looking at that gives a lot of information that I’ve yet to try and understand If I find out anything interesting I’ll let you know
    Best of luck with treatment
    Keith

    age 72 location UK
    14-2-2015 GT1a 6.8 kpa F1-F2 VL6.46
    16-3-16 started 8wks Harvoin
    2 wks VL unquantifiable
    4 wks VL undetected
    8 wks EOT Vl undetected
    4 wks post. detected VL 4.07 relapsed
    22-5-17 started re treatment via Redemption 2 ,meds via Monkmed 12 weeks Sof Dac+Rbv
    Riba via NHS
    Starting VL 4.25 log 6.63 ALT 88 Fibroscan F2- F3 8.9 kPa
    2 wks VL 2.86
    4 wks VL below detectable level
    changed Tx to Viekira+Sof+Rbv
    6 wks VL undetected
    13-9-17 EOT , ALT32, AST28
    SVR 4 +12

    4 October 2017 at 9:49 am #26901
    dope-on-a-rope.jpgDr James
    • Guardian Angel
    • ★★★★★
    @fixhepc

    Hi Kieth,

    We certainly see neurological changes with Hep C infection and (usually) these get better with treatment.

    Changes in taste, changes in sensation and changes in tinnitus are all seen, as well as the clearing of the brain fog in patients who take treatment. Mostly these changes are rated as improvements.

    Riba is pretty toxic and takes a good 2 months to get mostly out of your system.

    At the moment wait and see is about it. Some patients swear by B vitamins so taking a supplement would at worst be harmless and may help.

    It will probably settle with the passage of a bit of time, and the clearance of the Ribavirin from your system.

    YMMV

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