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I’ve mention this previously and will repeat it again here. The Loyola study is NOT about:
“Improving Hep C Treatment Via Individualized Therapy”
If it was about that then they would be researching what is the treatment time required to acheive ~100% cure rate for each grouping.
But instead, they are trialling whether they can acheive close to the current sub optimum cure rates wth less treatment in some groups. The correct name for this study should be:
“More Cost Effective Hep C Treatment Via Individualized Therapy For Almost As Good Results”
Now I’ll happily concede that this is occurring because Gilead and others charge extortionate rates for these medications but please don’t try and convince me that it is being done in the patients best interests because that, in the Australian vernacular, is “bullshit” and we need to keep calling it out when these articles in the media spout it.
[Edit: LG, I agree your points about freeing more cash for other patients and there may even be less sides from shorter treatment though the trial didn’t seem very concerned about studying that. But this trial was driven by the ridiculous costs of these medications and it’s presentation in terms of being in the patients best interests is just pandering to continued overpricing by Big Pharma.]
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
”hazelriannon” wrote:”And as as far as I’m concerned, any doctor who says people with F4 can wait 5 years should be taken out and shot…
… with a US Army JetGun!”
I like it Vovoro but it was: treatment for F4 now, certainly, but everyone else can wait. We beg to differ. I have been F4 17 years but have seen and heard people suffering much more day to day than I did who show far less damage. I am aware that comment has personally distressed quite a few people who feel rubbed out by that analysis. I understand he is doing liver transplant work and sees the very sickest of us but it is disheartening that he doesn’t seem aware of how limiting all the years up to that point are.
Thanks for the correction Hazel. But my point, and yours also, is just the same. The idea that people who have a serious illness but who are not yet at the point of requiring surgery should be able to wait is just intolerable when there is a cure available.
It is easy for a specialist to look at the charts of life-expectancy and cost-of-treatment and pronounce a decision.
I can do exactly the same calculation on whether it is cost-effective to spend money on my old car or whether it is better to spend nothing and wait until it claps out completely.
But with Hep-C, the “official” cost of treatment is FALSE and the HUMAN COST OF NON-TREATMENT IS IMMENSE.
WHY DO SO MANY DOCTORS CHOOSE TO IGNORE THIS? … present company excepted, of course
And I say CHOOSE deliberately, because with HepC, they must all know by now the enormous racket that Gilead are still getting away with…
I blame the media, which over the last 20 years has been bought up by corporate conglomerates. They love their suppression of the truth; it’s so profitable for their other investments
ick:' /> In a way it is understandable that public officials don’t let people know their options, they have to follow government policy.
China and India allow generics. Incepta pharma will ship these meds to many countries including USA via third party (see Greedfighter’s Twinvir to USA journal for details
) Many other companies will too, as noted in Pharma’s market section.I have never seen a mention in the media in USA that a patient can import 3 month supply of generic meds into the USA, by having them shipped through a third party.
The media in USA is a corrupt piece of shit. Where is the journalism? Where is the compassion? The most you get here is a brief mention that you can travel abroad to get the meds, but not a mention of how you might even start to do that.
I’m just disgusted because being 55, I remember a time when reporters would have investigated this and given a how to do it narrative.
Yes it is back now. Thanks Dr. Freeman!
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