Home Forums Main Forum Patient Stories Geopolitics Major UK Hospitals that monitor generics

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  • #25813
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Great news UK Hopeful – I’m looking forward to reading about your Mum’sSVR12 – :+1: #flower


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    #28115
    Chattypie7
    • Topics: 0
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    • Novice
    @chattypie7

    Hi, I have been monitored by Prof. Rosenberg at the Royal Free in London. This year 2018.
    He supports generics. I am cured. Maybe someone saw a guy called Isaacs who was very rude to me a few years back and destroyed my chances of getting compensation from the Skipton Fund which has changed names.
    There is an ‘infected blood investigation’ going on now because many patients in the UK had their files or parts of their files “removed” – this is also true for haemophiliacs etc. Maybe, just maybe, the investigation will give clarity and choice of generics which the NHS would not give me because I was not “ill enough”!
    They’re not lining their pockets with enough money when they use generics, obviously.

    #28123
    Avatar photosabrecat
    • Guardian Angel
    • ★★★★★
    @sabrecat

    ‘Maybe, just maybe, the investigation will give clarity and choice of generics which the NHS would not give me because I was not “ill enough”!

    From The Hippocratic Oath:

    “I will respect the hard-won scientific gains of those physicians in whose steps I walk, and gladly share such knowledge as is mine with those who are to follow.

    I will apply, for the benefit of the sick, all measures [that] are required, avoiding those twin traps of overtreatment and therapeutic nihilism.”

    Would have thought if generics cured HepC, then they fitted in with this Oath somehow?

    I suppose one irony is that you will never be ‘ill enough’ as you used generics and got cured.

    Yours

    Jeff

    #28125
    Chattypie7
    • Topics: 0
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    • Novice
    @chattypie7

    Thanks Jeff,

    That was said before I got cured and paid for my meds from FixHepC.
    Now I am an advocate whenever possible. Unfortunately, most “doctors” I know only care about their paychecks.

    Yesterday I had an argument with a Head of Clinic of oncologists when I told him that the OncotypeDX test might be put aside by NHS England and NICE. (In another session in the same place a Prof. using the test told us this was what was happening!)
    It goes without saying – why on earth would they NOT want to fund it? The leader said they would “why wouldn’t they”? Because then the surgeons and other prescribers and companies making the cancer meds would get less money. The test shows whether cancer meds are appropriate or not for a particular type of cancer.

    I could have slapped him but I am a herbalist and used to clap trap like that.

    Dr Freeman and the group are very, very special. We applaud them.

    The Hippocratic oath has been forgotten by many.

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