NZ News - FixHepC

This topic has 24 replies, 8 voices, and was last updated 5 years, 7 months ago by Mar.

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14 December 2018 at 11:19 am #28788
Mar
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- Guardian Angel
@mar
Thanks for this very informative article Hazel, hopefully many people with the disease will learn about FixHepC’s service because of it, and know that there are options other than having to wait forever for a decision by a bureaucrat on whether their lives should be saved or not.

Making the world a better place – one patient at a time.
15 December 2018 at 7:31 am #28790
Jessica-Copeland-google
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- Acolyte
@jessica-copeland-google
Thats amazing!!! Get the word out!!! Im so thankful for all of you and this opportunity. Im a 28 yr old single mother of a 2 year old boy and my health has to be In good shape! Still waiting for my medication because I just ordered It a Couple days ago but Im so anxious and ready to start!!
15 December 2018 at 7:34 am #28791
Jessica-Copeland-google
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- Acolyte
@jessica-copeland-google
We need these In the United States of America!!!
15 December 2018 at 7:43 am #28792
Hazel
- Topics: 45
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- Guardian Angel
@hazel
Congratulations Jessica, the waiting is hard, but really it will seem like nothing soon. You are underway, that is good news.

That is the great thing about here, FixhepC, doesn’t matter if we need it in NZ, US, or pretty much anywhere in the world, they can, probably have, get it to people.

I can imagine how you are going to feel in the new year, when you receive your meds. Look forward to hearing about it.

Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
15 December 2018 at 1:38 pm #28793
Mar
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- Guardian Angel
@mar
Welcome to the forum Jessica You made an excellent decision by taking matters in to your own hands and accessing the generic treatment from overseas. As long as the generics are of high quality (you’re assured of that with FixHepC), you have the same 95% chance of reaching cure. Please update us on your progress once you receive the medications, best of luck

Making the world a better place – one patient at a time.
18 December 2018 at 10:53 pm #28813
Hazel
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- Guardian Angel
@hazel
We have got there at last, free treatment for NZ from 1 February.
https://www.odt.co.nz/news/dunedin/jubilant-over-drug-funding?fbclid=IwAR3zvK_AU3TIeNDfh-DhvAm-eyCcsDtLFa8HsinTLI5X-WNdn0jlacpljRA

Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
19 December 2018 at 2:39 am #28820
Mar
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- Guardian Angel
@mar
Congratulations to you and to all the patients in New Zealand Hazel You should take part of the credit after your tireless work towards achieving this goal

Making the world a better place – one patient at a time.
19 December 2018 at 4:18 am #28822
coral
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- Guardian Angel
@coral
That’s fantastic news Hazel. You’ve really fought hard for this so well done you and well done NZ. It will literally save lives.
26 February 2019 at 4:22 am #28999
Hazel
- Topics: 45
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- Guardian Angel
@hazel
Hi, a few things going on from NZ , will put them all here as links.
A couple of short videos, I did them a while ago but were geoblocked,
butterfly against stigma https://youtu.be/wxuG2HAum-w
diagnosis and treatment https://youtu.be/ZDkC2NHLRwY

And we had this in the NZ Gastro Society News yesterday

https://hail.to/new-zealand-society-of-gastroenterology/publication/TzRBJOw/article/olat0eW

Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
26 February 2019 at 9:55 am #29001
Mar
- Topics: 3
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- Total: 290
- Guardian Angel
@mar
Great job as always Hazel The videos production is high quality, and they drive the point across very nicely. I like the backpack metaphor, very accurate.

Making the world a better place – one patient at a time.
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