Thats wonderful to hear LG. It’s so nice to watch all the lovely people on here getting better!
I learn so much from you all. So many wise and kind souls here.

I think I need a plan B and a plan C.
There are two possible snafus…one, they delay the listing….the other, my specialists refuses to prescribe straight away because I’m “mild”.
Or both, in a worst case.
But on the whole I am in a very fortunate position in every respect, being here in Australia.
So I shouldn’t stress about it.
It’s annoying though to put yourself back “in their hands” once you had psyched yourself up to take control.

Hi girls, and welcome Flying Fox, Plan B is a great Plan yes, smart move. No point suffering any longer , and I hope the PBS moves quickly for you…
Tina, that list of peg/inf is for real..I was in hospital and tubed up blah blah it really is a shocker. No looking back! Almost into week two of these wonder meds thanks to James and Greg..LG you have just passed your two week birthday yew!
I asked my local nurse about skin dehydration sx today because I am peeved my fantastic surfie girl arms (and after rebuilding post peg/inf I deserve to be proud) are looking really dried out at only week 2 sof/led grrrrr ..the nurse was extremely empathetic and she suggested Aveeno which has already popped up here, maybe Coral or Tina suggested it.

Last night I did not have any sweating, hopefully now out the other side of the initial ‘getting used to tx’ stuff, but I have thought up a contingency plan for the first few weeks if anyone else gets the sweats initially on the new meds…

I pop a few fresh T shirts beside the bed along with the mandatory two water bottles (no spilling that glass of water in the night if I use a bottle) and instead of having to get up and grope around for a fresh top in the night I now can just reach over and grab a fresh T and chuck the wet one across my room and zzzzz again. This is a gross topic but I hope that it helps somebody else to have a more comfortable night. It works for me.

I am loving the new clarity of mind that yes is real

I have been thinking, wouldn’t it be nice if the Hep orgs produced a little pamphlet or handbook devoted for women xxxx

Hi All,

just a quick recommendation for the dry hair, and possibly skin. The Elemis frangipani Monoi oil is a beautiful product ( don’t work for the company etc) it’s not cheap but you only need a little bit. It’s solid at room temperature, so you need to pop the bottle in warm water. But a few drops on your hair after shampooing and then rinse off with your conditioner. Makes the hair feel lovely for a couple of days I find. ( Also makes my skin feel really soft after a few drops in the bath. However I’m not sure if it would irritate existing skin conditions, but I think they use natural ingredients, so worth checking. I get mine on QVC. Anyone else used it?

Debs

Hi girls and thanks for the tips this is great I saw my cool as super empathetic GP this morning and showed him my dry arms and knees he was surprised how fast they’ve dried out, and he told me it will repair itself post tx, also my regular full on exercise being on hold for the last two weeks was going to dump my seratonin levels hence me feeling glum so I just went for a surf and feel heaps better. Yep a surf, crazy but it’s my gymnasium.

I’m definitely turning the corner of settling into being on the DAAs yay
I noticed much more cognisance each ‘takeoff’ GOOD

I’m also keen on this “Elemis frangipani Monoi oil” wonder if it’s online, must do a search. Yes CJ dry hair is a biggie post peg/inf and actually I lost conservatively 2/3 of my lion like mane and was left with a mullet do of frizzle as I mentioned earlier.
So far sof/led hasn’t changed my hair thank gawd!
Re the idea of a little womens happy HCV pamphlet or handbook when we have all our ideas and sx tricks I am fine to do something to produce it but would like to collab
Are we agreeing that’s a gap in the support tools for us? This forum is the only place I know where the initiative was taken and we started on our hormones, childbirth and have gone from there in our wisdom and sharing

I always think many heads are better than one
We need to have anything checked by a health professional too probs if we do put something together
Oral hygiene is one I would dearly love other ladies to discuss because I have swollen gums etc and there must be some knowledge better than this betadine mouth stuff I am using
Splashes x
Ariel

“Ariel, I can provide some advice on the gum treatment and dental things in general. One reason I decided to wait for the PBS is because I’m already spending so much money trying to save my teeth and gums. I’m sure it’s all related to the hep and my digestive problems…anyway…big life savers for that are
1. Oil pulling with coconut oil.
2. Clove Oil ( try the Indian shops)…medicinal grade….mix it with a carrier oil…it’s quite strong…but awesome both for healing and for pain.
3. Strong himalayan salt mouth rinses.
4. Tea Tree Oil (again quite strong), and Peppermint Oil.[/quote]

Thanks babe! I have some black lava salt here from the Big Island Hawaii I wonder if that will do where did you find the himalayan salt?
Thanks so much for these tips my teeth are sore as

teeth and gums…. mine are shot. in fact teeth, what teeth pretty much. 3 weeks into the first round of treatment on the old non peg barbaric interferon/riba in 99, I woke up one morning and all my front teeth were loose- never had been at all. went to get help/advice, they pulled them out, right then.I was 36. asked to get the drug company to pay for the treatment or some help, they said I couldn’t prove it was related. we have a med/dental school here, and one really good gum specialist. went to him, he made it clear while I had my mouth full of his hands it was probably some personal moral failing of mine, as he had tested positive for HCV antibodies but because he was a far superior person with stronger will, he had been able to clear it himself. Not keen on them at all now. My hair fell out both times on int/rib too, at least thinned drastically, and when I just did 4 weeks riba this time was coming out again, but has stopped now. But one big difference for us women to the guys I have found- the whole horror of monthly periods, infectious blood escaping into the world somehow- really different way for us to have to deal with normal women stuff, my body has been my family’s enemy.

I wonder how much knowing I had the infection for all this time has influenced my decision not to have kids. Probably a bit, although I’ve never had any significant doubts about that anyway.
It’s certainly made life easier in many ways. I don’t have to worry about infecting anyone, or supporting a family with low level chronic ill health. Knowing about it for a long time made me reform my life style early on and it meant I was never sick enough to seriously consider interferon…thank the goddess!
My GP still offered me interferon in the mid 2000s…even though my LFTs were fine. I hear they thought they had a better chance with the healthy ones! Vampires!
Ugh!
The whole last twenty years of treatment for probably millions of patients is basically genocide.