Home Forums Main Forum Patient Stories Medical System Experiences PALS Info for UK NHS patients

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  • #12537
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    The Patient Advice and Liaison Service (PALS) offers confidential advice, support and information on health-related matters. They provide a point of contact for patients, their families and their carers.
    You can find officers from PALS in your local hospital.

    PALS provides help in many ways. For example, it can:
    help you with health-related questions
    help resolve concerns or problems when you’re using the NHS
    tell you how to get more involved in your own healthcare
    PALS can give you information about:
    the NHS
    the NHS complaints procedure, including how to get independent help if you want to make a complaint
    support groups outside the NHS
    PALS also helps to improve the NHS by listening to your concerns and suggestions.

    http://www.nhs.uk/chq/Pages/1082.aspx?CategoryID=68

    How to find your nearest PALS : http://www.nhs.uk/Service-Search/Patient-advice-and-liaison-services-(PALS)/LocationSearch/363

    How do I make a complaint about an NHS service :
    http://www.nhs.uk/chq/Pages/1084.aspx?CategoryID=68&SubCategoryID=162


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    #12752
    Avatar photomgalbrai
    • Guardian Angel
    • ★★★★★
    @mgalbrai

    Patient advocates and organizations in the U.S.:

    Brendan Bietry
    Case Manager, Clinical Team
    Patient Advocate Foundation
    P.O. Box 635158
    San Diego, CA 92163
    (800) 532-5274 ext. 2110
    (757) 528-4790 efax
    brendan.bietry@patientadvocate.org
    http://www.patientadvocate.org

    Patient Assistance Network, Inc.
    panfoundation.org/images/pdf/pan-generaltrifold2015.pdf


    Curehcvnow@gmail.com
    http://forums.delphiforums.com/generichcvtx

    G 1a F-1
    Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
    11/17/15 4 wk lab ALT 17 AST 16 <15
    11/18/15 Started Harvoni
    12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
    1/14/16 Fin. Tx
    7/07/16 UND SVR 24

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