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  • #27191
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    openreader.jpeg.jpg
    Happy New Year everyone :cheer:
    Here in NZ, a company called Phantom Billstickers does all the event postering at approved sites across the country. They also publish a lot of NZ poetry and paste it up on lamp posts all around the world, just because: https://thespinoff.co.nz/books/24-08-2017/let-us-now-praise-phantom-billstickers-for-sticking-up-really-fucking-big-posters-of-new-zealand-poetry/ . They publish a free cafe reader magazine, that has poetry, literature, art reviews etc, and some advertising. It has the biggest print run of any NZ magazine, and several 1000 get distributed in both Europe and the US.
    Also in NZ, we have run out of people to treat for hep C, because we have no idea who has it or where they are. At the same time, we have no NGO to advocate for publicity, strategies towards elimination, or to inform people of their options, which are very confusing here.
    Phantom Billstickers and FixhepC to the rescue, again! They offered me a page in the latest issue, some posters to come in the next few months. Here is the page, in print, and the front cover of this issue.
    I have also attached the pdf file, because this is a page/poster anyone can print out, and put up anywhere- at work, in clinics etc.

    phantomfrontpage.jpg

    cafe-reader[3000].pdf


    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    #27323
    vedruss
    • Topics: 2
    • Replies: 26
    • Total: 28
    • Treatment Warrior
    • ★★★
    @vedruss

    Great idea Hazel
    Thats given me some idea’s


    G2 non A non B
    Diagnosed 2002 biopsy grade1,stage1
    LFT 2002 2004 2011 2015 2016 2017
    AST 76 69 34 46 45 64
    Alt 185 175 67 103 84 129

    2017 VL 1,600 000
    march 1 4 week tx VL undetected
    AST 18, ALT 15

    8 week qualitative undetected

    #27434
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    I had been planning for a while to highlight that butterfly image, and a risk factor, by getting a tattoo- I did it, and got the news story, but they didn’t show the finished butterfly!
    They always get at least a couple of things wrong. Happy to see they shaved a couple of years off my age, and omitted all the ways I may have got it! https://www.stuff.co.nz/national/health/101319893/thousands-of-hepatitis-c-sufferers-unaware-a-cure-is-within-reach
    arm.JPG


    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    #27435
    Avatar photoMar
    • Guardian Angel
    • ★★★★★
    @mar

    Great work Hazel! Excellent original idea to spread the word about the need for Hep C testing. The tattoo looks great on you too :)


    Making the world a better place – one patient at a time.

    #27439
    Avatar photocoral
    • Guardian Angel
    • ★★★★★
    @coral

    You’re a great advocate (and NGO!) Hazel….with a simply beautiful tattoo. Having a media article with a personal story as well as facts always makes a bigger impact.

    #27441
    vedruss
    • Topics: 2
    • Replies: 26
    • Total: 28
    • Treatment Warrior
    • ★★★
    @vedruss

    Good stuff Hazel, There’s nothing like putting the spotlight on those public servants that aren’t serving the people they are employed for. :+1:


    G2 non A non B
    Diagnosed 2002 biopsy grade1,stage1
    LFT 2002 2004 2011 2015 2016 2017
    AST 76 69 34 46 45 64
    Alt 185 175 67 103 84 129

    2017 VL 1,600 000
    march 1 4 week tx VL undetected
    AST 18, ALT 15

    8 week qualitative undetected

    #27444
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    Thanks everyone, this probably belongs in Fun Stuff but will put it here, latest collaboration with my friend the cartoonist, Sas Peppercorn, please share

    metamorphosis.png


    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

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