Tina in latest NZHF magazine

This topic has 10 replies, 8 voices, and was last updated 8 years, 7 months ago by pat1.

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5 April 2016 at 3:20 am #14904
Hazel
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- Guardian Angel
@hazel
Check out my buddy Tina p11 in this latest issue of Talking Hep C magazine
Dr J on p10.
http://www.hepatitisfoundation.org.nz/files/4014/5980/2980/final.pdf

Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
5 April 2016 at 4:07 am #14905
Greedfighter
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@greedfighter
Yay Tina and Dr. Freeman! Helping so many to act towards treatment! BIG Karma!!
5 April 2016 at 10:27 am #14916
LondonGirl
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@londongirl
Interesting, especially the amino acid thing regarding muscle loss / malnutrition…
Lovely photo of your friend Tina, Hazel .

GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
5 April 2016 at 10:44 am #14919
Hazel
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- Guardian Angel
@hazel
She is all our friend Tina (Hill) on this forum LG! I’m just lucky to live nearby. Cute dog too.

Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
5 April 2016 at 11:46 am #14922
LondonGirl
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@londongirl
Ooh it’s ‘our’ Tina – Wow Tina girl, you’re looking fantastic ! Lovely

GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
5 April 2016 at 12:21 pm #14927
Ariel
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- Guardian Angel
@ariel
A touching story and honest insight into our situation
Beautiful stuff
Thankyou Tina for representing us all so bravely
Xxxxxxxxxx
Awesome
5 April 2016 at 1:20 pm #14930
mgalbrai
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@mgalbrai
Way to goTina!!
Stepping up and out and looking good while you’re at it.
You too, James.
So last year at this time, FHC was just a “gleam” in the Doc’s eye?? Did a lot in a short time

Thank you both!
(The pretty pooch too)

Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
5 April 2016 at 1:57 pm #14937
Tina-Hill-facebook
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- Guardian Angel
@tina-hill-facebook
Awwww thank you my Fix Hep C Whanau (that means family in Maori)

about Ed Ganes comments my response is this……

Hope you have a large pipe Doc Gane cause you can stick my SVR 4 in it and smoke it! Must say i’m looking forward to when Doc Freeman & Greg present their report in Barcelona. Let the facts ignite that pipe and hope you have an appetite for some good ole humble pie and some Twinvir to help wash it down.
Attachments:
SVR 24
8 April 2016 at 8:46 am #15060
Gaj
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- Guardian Angel
@gaj
Yes, great article Tina!

Thank you for your affirmative story about your life and experiences with HCV and positives of the treatment process.

G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
9 April 2016 at 11:04 am #15134
Hazel
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- Guardian Angel
@hazel
This interview of Tina’s was done quite a while ago, and it was major part of what got the ball rolling here in the New Zealand media. I’d done the first newspaper story, and was at her place listening while Tina was doing this one… the journalist was just stunned to silence and 30 mins later posted that other article on the NZHF website, and there was heaps of interest from that point on. Tina did an epic rant on Gilead which of course got left out but was fairly motivational! And the other bit left out which I think is probably unique among our experiences, is immediately after being diagnosed, she had to go into the operating theatre and assist as they drained the liver of a Hep c patient in their last few days of life. She has actually seen those livers I hate to imagine! And she has also been in the unique position at times over her career of hearing the ‘esteem’ we hep c patients are held in when under anaesthetic and can’ t hear. So bloody good on you again girl for having the guts, to spill your guts, when you have seen the guts!

Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
9 April 2016 at 11:41 am #15136
pat1
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- Guardian Angel
@pat1
Hazel and Tina, I think you are both so amazing, brave and awesome. Inspiring. You are absolutely fearless warriors. Yep you definitely have guts! I salute you
I applaud everyone’s efforts to support and highlight the availability of affordable meds on this forum and elsewhere
#respect

gt 1a VL 6m
F2/3 FibroScan – 9KPa in 2011 and 7KPa in 2015
sof/dac 10 December for 12 weeks
pre tx alt 85 ast 51
4 wk alt 34 ast 31 UND <35
8 wk alt 29 ast 32 UND <15
12wk alt 25 ast 25 EOT 3.3.16
SVR24 UND KPa5.3 F0 in normal range
I am well
.forever grateful to fixhepc
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