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  • #3013
    Avatar photoHamilton-Gray-facebook
    • Topics: 6
    • Replies: 29
    • Total: 35
    • Treatment Warrior
    • ★★★
    @hamilton-gray-facebook

    When people are on hepC drug trials through the hospital, their treatment data is recorded for the drug companies.
    With so many people going the hepC generic way, won’t this data be lost ?


    Male aged 66, contracted hepC 45 years ago
    Failed treatment interferon and Ribavarin 2003
    Started treatment 22 October 2015, 24 week, Dr Freeman
    Sofosbuvir and Ledisbovir plus 12 weeks Ribavirin
    Geno 1a
    Fibrosis F3/4
    VL <12 at 4 weeks
    VL – negative at 12 weeks

    #3018
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Isn’t that the idea of Dr F’s Redemption trials?


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    #3023
    dope-on-a-rope.jpgDr James
    • Guardian Angel
    • ★★★★★
    @fixhepc

    There are many data points you can record. We will primarily record GT, fibrosis, medications, duration and results @ VL4, SVR4, SVR12.

    The goal is simply to answer the question “If I have this GT and this level of fibrosis, what do I take, for how long, to get the best chance of cure?”

    Are there any other questions that need answering?


    YMMV

    #3348
    Avatar phototweakmax
    • Guardian Angel
    • ★★★★★
    @tweakmax

    I am being treated with generics and monitored by a doctor in a government hospital

    my data will be recorded in the government system.

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