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8 September 2016 at 9:34 am #22850
I came across this video. Thought of sharing with friends here.
https://www.youtube.com/watch?v=L9TZo3hFaYk
Nishkama Karma
Cùng nhau loại bỏ Viêm gan C trên khắp thế giới!9 September 2016 at 9:37 am #22867Hi Hieu,
a very interesting video and also very emotional. I had to stop seeing it after 10 minutes, however will try to watch it entirely this week-end.
It left me …. NO COMMENT and reflecting on the real size of what HCV means today on a worldwide level!Cheers,
RHF
In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
HCV kills more than 500000 people every year. HCV generic drugs work. Don’t become a statistic.
By sharing this Youtube video you might save someone’s life!
My TX: HEPCVIR-L[generic Harvoni]-India
SVR52 achieved10 September 2016 at 5:05 am #22879Thank you Hieu
Re how the video starts off;
I had no idea what HepC was when I was told that I had it. Nobody is stupid or bigoted or idiots just because they hadn’t heard of it (now I’m crying) It doesn’t mean we are bad or wrong we just never heard about it. It’s the world media at fault and lack of funding for doctors and education and resources and lack of openness and honesty, they’re at fault.
(I also learned about stigma a crash course.)This video for me highlights why I wound up on old tx with no protocols no education and a VL of 420,000 only
I had no idea. No Fibroscan prior, no scans at all, how would I know of such a thing when I wasn’t told of them, and yet after the failure my new specialist did one and I am f0It was a whole new world to me; everything.
Now I’m out the other side and I hope I can help others who are lonely and in shock too that’s all I want to do now.
A10 September 2016 at 8:51 am #22885I’ve just beeen able to see the full video. There were quite some things that were told there which I also experienced.
The video is in my view part of an awareness program. The ending of the video left me …. outraged. Again and again and again it was mentioned that there is a cure, but it was not specified how that cure look like and how to access it. A major problem that is not so much approached is that HCV is constantly associated with a very expensive cost. So I felt again like before getting treated with generics: dissapointed that somewhere there is miraculous treatment which will not be provided to me and for which I should continue to wait and hope.
Things about HCV should be explained in a much simple way so that people can gain trust.
Let’s take the example of a 150 KM ride:
– accessing the current branded treatment is like asking the patient to run these 150 KM. Are you fit enough (i.e. have enough money)? Then start running? Or sick enough (qualify for treatment via the healthcare system)? If yes, we (healthcare system) can get you treated.
– accessing the generic treatment is like paying the bus ticket, take the bus, drive 3-6 hours (where 1 hour = 1 month of treatment) and here you go, you made the 150 KM trip.Since many of the 200 millions HCV patients are not sick enough (yet), running 150 KM sounds like mission impossible, however buying the bus ticket should be very convenient. They would just need to know that there is a bus and from where to take the ticket.
Cheers,
RHF
In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
HCV kills more than 500000 people every year. HCV generic drugs work. Don’t become a statistic.
By sharing this Youtube video you might save someone’s life!
My TX: HEPCVIR-L[generic Harvoni]-India
SVR52 achieved -
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