US Moderator announces our drugs are ILLEGAL

This topic has 363 replies, 36 voices, and was last updated 8 years, 5 months ago by Matt-Kenney-google.

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20 December 2015 at 12:39 pm #6818
CJ
- Topics: 10
- Replies: 362
- Total: 372
- Guardian Angel
@cj
Mike you’re hilarious!!!!

J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results….pending….
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!
20 December 2015 at 9:06 pm #6835
2b
- Topics: 17
- Replies: 332
- Total: 349
- Guardian Angel
@2b
More Eviljoy flat out ignorance. So here this poor guy (apparently from Australia?) tries to say he’s come back to that forum after 10 years to say Hi, and tell them the news that he’s happy because the Australian gov’t is going to make treatment available to its citizens. Its under ‘cas is back’ in the introduce yourself part.

Eviljoy comes along STOMPS on him, somehow mistakenly believing he must be referencing Satan’s generics again…., owwwww the stupid hurts so much!

“However, due to some overly enthusiastic attempts at ‘marketing’ and the need to keep spam (and those with ‘agendas’ to a minimum, the discussion will be closed to further discussion”. ick:' />

GT 2b; since 80’s, no prior tx, sofosbuvir and daclatasvir compounded from API’s at Kingswood Pharmacy in Sydney, started tx nov 6,2015, undetected at 4 wks, UND at 8 weeks, UND at 1 week after EOT, UND at 4 weeks after EOT and UND at 8 weeks after EOT. I feel GOOD!! I knew that I WOULD!””
20 December 2015 at 9:20 pm #6837
mgalbrai
- Topics: 28
- Replies: 1,298
- Total: 1,326
- Guardian Angel
@mgalbrai
99!
Where are you!
Cas MENTIONED Australia and that envoy from Hell, Joy, locked the topic!!

Chief: “Patience will defeat utter stupidity 86, calm down.”

G-day tomorrow

86 out

Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
20 December 2015 at 10:15 pm #6840
mgalbrai
- Topics: 28
- Replies: 1,298
- Total: 1,326
- Guardian Angel
@mgalbrai
Plowed the field….
Sown the seeds….
86

Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
21 December 2015 at 6:51 am #6867
zhuk
- Topics: 5
- Replies: 543
- Total: 548
- Guardian Angel
@zhuk
Well I’m certainly praying, Mike! lol

Can’t wait for the next thrilling installment

Damned if I can find half these bloody threads though, that site needs a GUI bomb under it

GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26
21 December 2015 at 9:25 am #6877
2b
- Topics: 17
- Replies: 332
- Total: 349
- Guardian Angel
@2b
More scarey stuff talk, there is actually a blurb, the total fixhepc instructions, reproduced on the site, but quickly followed by some ReALLy SCareY warnings, including, that ” YOU COULD DIE”, as shown in red below, the caps and emphasis is original, not added by me, read it and BE SCARED, BE VERY VERY SCARED PEOPLE: (also, the disciple has a spelling issue apparently)

“Here are the real problems as I understand…not withstanding the LEGAL complications.”

”You can get a script from an ONLINE DOCTER…Does he have a medical history to determine any CONTRIDICTIONS to the treatment? If you are taking heart medicine YOU COULD DIE. If you are taking acid-reducing medications IT COULD DEEM YOUR TREATMENT INEFFECTIVE.

Who is going to order the labs to monitor YOUR bodies response to the drugs? Ribaviran KILLS red blood cells…your level drops below acceptable levels…how are you GOING TO KNOW? HOW CAN YOU RECEIVE RESCUE DRUGS TO KEEP YOU ALIVE”?

GT 2b; since 80’s, no prior tx, sofosbuvir and daclatasvir compounded from API’s at Kingswood Pharmacy in Sydney, started tx nov 6,2015, undetected at 4 wks, UND at 8 weeks, UND at 1 week after EOT, UND at 4 weeks after EOT and UND at 8 weeks after EOT. I feel GOOD!! I knew that I WOULD!””
21 December 2015 at 9:31 am #6879
zhuk
- Topics: 5
- Replies: 543
- Total: 548
- Guardian Angel
@zhuk
Takes the cake for unmitigated scaremongering, doesn’t it inch:

As if an online consultation is any different to seeing a doctor in surgery…WHERE YOU WOULD LIST WHAT MEDS YOU WERE CURRENTLY TAKING! Apologies for shouting heh

the….exasperation….arggh…lol….

GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26
21 December 2015 at 6:08 pm #6972
2b
- Topics: 17
- Replies: 332
- Total: 349
- Guardian Angel
@2b
yes,and of course you can’t answer or address any of the crazy, because no answers permitted, topic is CLOSED.

GT 2b; since 80’s, no prior tx, sofosbuvir and daclatasvir compounded from API’s at Kingswood Pharmacy in Sydney, started tx nov 6,2015, undetected at 4 wks, UND at 8 weeks, UND at 1 week after EOT, UND at 4 weeks after EOT and UND at 8 weeks after EOT. I feel GOOD!! I knew that I WOULD!””
22 December 2015 at 1:42 am #7011
Chester
- Topics: 7
- Replies: 199
- Total: 206
- Guardian Angel
@chester
I find myself somewhat conflicted, actually. I can’t help but wonder if we haven’t worn them down a bit. While I take the points about the fear mongering and locking of threads, that they have seen fit to post the fixhepc links and leave them up is actually a huge breakthrough for them.

And you have to be careful not to become that which you most despise. A PM to EJ thanking her for her understanding may actually go a lot further at this point than rabble rousing.

I was already having misgivings when I saw that Paul guy’s response in 86’s thread. He was actually being very nice without all the trite God stuff. In my books, on the Internet it’s always ok to play with people’s minds when they’re guilty of lazy thinking. But playing with people’s emotions is not. And I think if this goes where it looks like it’s going, that’s what we could be accused of and they may very well have, at least in part, a fair point.
22 December 2015 at 2:29 am #7015
mgalbrai
- Topics: 28
- Replies: 1,298
- Total: 1,326
- Guardian Angel
@mgalbrai
Thanks Chester,
First, this is not “going” anywhere. My wife and I are are devout Greek Orthodox-a religion that does not preach fear and sitting around waiting for God to provide a cure for your ailments and problems. It is so simple: We need to solve our problems ourselves, acting with compassion. The classic “do no harm”. Joy is harming her followers with her narrow views and heavy censorship. I am simply framing a scenario that is going to expose her for what she is: a person who is leading the ignorant down a very dangerous path. She will lock my thread soon. More likely, she will delete it totally. If I can help ONE person understand they can access an affordable, generic cure for the disease with which they have been cursed, I will have succeeded. If not, nobody will have been harmed. If the Lord is on her side, I will pay the price for my deception.
This is not a game I am playing at other peoples’ expense. This is also my last post on this thread, until the next one….
Mike

Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
22 December 2015 at 2:42 am #7016
Vororo
- Topics: 25
- Replies: 307
- Total: 332
- Guardian Angel
@vororo
Hi Mike,

I’m also a bit on the fence on this one. I appreciate you are trying to reach people stuck behind enemy lines. But it would be a real pity if all your ground-work gets lost if the famous Joy-To-The-World deletes your thread.

Do you have to push the big red G-button so soon?

Cheers,

Vororo

Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).
22 December 2015 at 3:43 am #7027
2b
- Topics: 17
- Replies: 332
- Total: 349
- Guardian Angel
@2b
If it were not for the heavy booted censorship and intolerance for a free flowing exchange of information on there, this thread wouldn’t even exist. The problem is when they equate generics with poison chinese dog food, or tell people ‘ YOU COULD DIE”, or that obtaining generic medication is illegal that it becomes a problem- and then there is no opportunity permitted for anyone to rebut the misinformation allowed. Any attempt to provide some truth or facts is shut down and deleted, usually with some dire warnings about how unsafe generic medicine is.

I do agree though that its a HUGE step forward for them that they have permitted the fixhepc guidelines to remain, albeit with the alarming YOU COULD DIE stuff posted alongside. There actually are people going to that site looking for real information about how to quickly get medicine before their condition worsens. Online hugs, prayers and advising endless appeals for months may not be their best option, and may be a real disservice to those people.

[/color"> Just read her most recent reply to VB that thread, it is bizarre, it almost looks like it could have been written by a gilead company representative,

GT 2b; since 80’s, no prior tx, sofosbuvir and daclatasvir compounded from API’s at Kingswood Pharmacy in Sydney, started tx nov 6,2015, undetected at 4 wks, UND at 8 weeks, UND at 1 week after EOT, UND at 4 weeks after EOT and UND at 8 weeks after EOT. I feel GOOD!! I knew that I WOULD!””
22 December 2015 at 4:02 am #7032
CJ
- Topics: 10
- Replies: 362
- Total: 372
- Guardian Angel
@cj
Mike I think you’re hilarious!!
….but that Paul is a good bloke, he used to be nothing but kindness to me when I used to go on there.
Some of the people are lovely.

But you’re right, Joy shouldn’t be so ridiculously stubborn about accessing the generics when it’s impossible for some of those poor Americans who can’t afford the orals.

Very suspicious how strict about it she is.

You’ve got their attention now, be good if you could sneak in some generic stuff, somehow without her freaking out.
I feel Gilead must be backing that forum now? at least Joy must be getting some type of kick back?
x

J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results….pending….
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!
22 December 2015 at 4:03 am #7033
mgalbrai
- Topics: 28
- Replies: 1,298
- Total: 1,326
- Guardian Angel
@mgalbrai
Well, now I am a liar here as well as over there, but I just felt everyone should see my last post She simply deleted it. It is below from the CDC website.
M

November 14, 2011 (San Francisco,
California) — Beginning in 2006, the number of deaths related to chronic hepatitis C virus (HCV) infection exceeded the number related to HIV, according to an analysis of mortality trends performed at the Centers for Disease Control and Prevention (CDC). Results of that analysis were reported here at The Liver Meeting 2011: American Association for the Study of Liver Diseases 62nd Annual Meeting.

Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
22 December 2015 at 4:21 am #7036
CJ
- Topics: 10
- Replies: 362
- Total: 372
- Guardian Angel
@cj
Hey Mike,
Was this on your Vollyball one? Has it been deleted ? you were going well on that??!

J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results….pending….
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!
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