This thread has been up for a while, but I think it deserves a ‘bump’.

There are alot of seriously ill, seriously frightened people (with Hep C) who after years of hiding in the shadows, are desperate for ANY hope or support available.

My observation (as has been pointed out by others) is that the (aforementioned) dephi forum is a self aggrandizing cult of personality, which is really just there to feed and stroke the ego of the forum owner, who in turn toadies to big pharma to be able to continue dispensing nonsense to those desperate and timid enough to be taken in by her self serving drivel.

I may have come across the delphi forum breifly on my way to finding the Fix Hep C forum. Honestly, I just don’t remember. After all, I was looking for a solution, and anything that didn’t offer a solution (and there were many) was quickly identified as garbage, and tossed aside along the way here.

Someone said earlier that we don’t have time to simply ‘wait’. That’s exactly right. After decades of suffering the subtle, and sometimes not so subtle effects of this illness, with no cure in sight, I can tell you that an army of self styled, self serving gurus, naysayers, and ‘gate keepers’ could not have persuaded me into “wait” mode. Not for one minute.

More than 20 years ago, a well meaning specialist informed me I would probably die of this disease – eventually.

Well, I’m still here, and after believing for decades that I was most likely terminally ill – there is a cure, a real honest to god, cure.

Nothing could have stopped me from coming here, and seeking that cure. And God willing, I will have it!

In one of my files there is a snarky letter from my insurance company stating that they have specifically denied my specialist’s requests for Harvoni, that a cheaper regimen (which is known to damage the liver during treatment), and additionally includes Ribavirin, is my only choice – and wait for it – (in bold print, referencing Harvoni) “You may have this presctription filled, but (insurance company name redacted) will not pay for it.”

Someone actually took the time to add that bit to the rejection letter, and went out of their way just to rub my nose in it.

I found myself asking “is it me”? What did I do to deserve that sort of searing hateful condescension? The answer is, that after having waited a year for an appointment with a specialist, I did absolutely everything required of me.

However, rather than accept the inevitability of the second rate course of therapy offered, and intolerable tone of snarky condescension being rationed out by my insurer’s anonymous representative, I chose to take them up on their offer to explore other options, and found the Fix Hep C community.

In another thread, Dr. James posted a graph of project joins. https://fixhepc.com/forum/fixhepc-admin/1014-we-are-moving-the-awareness-needle.html#16243

Through volunteer work I have done previously, I am familiar with the type of trajectory represented in the above graph . The graph looks nearly identical to one associated with a project I was privileged to help administrate, and in short what the graph tells me is that THIS project is reaching a point of critical mass with regard to the number of people it is reaching, and that from here, the numbers of Fix Hep C community joins are likely to increase exponentially.

As this critical mass is reached (and I believe it will be), users will learn about the Fix Hep C Buyers Club, and will reject online communities which fail to offer tangible and viable paths to solutions.

My prediction is that eventually, forums like the one mentioned earlier in this thread will rightly be exposed as the servants of greed that they are, and that their membership rolls will begin to shrink as people learn that real solutions are available today, here, and now through fixhepc.com.

They say generics are ILLEGAL but how many get DENIAL?
http://dailyhealthrecords.pw/how-sick-must-hepatitis-c-patients-be-to-get-help/#comment-2

2b,
I have a “clean” UN over there. Did you try to contact your 2b brother? Does he know about FHC? What’s his UN and I will give it a whirl.

Mike,

Just a thought, but attempting to reach people who are scared to death, fundamentally brainwashed, and held captive in a closed venue by a false narrative is likely to be an exercise in futility.

Basically, you are going up against a heavily funded barrage of 24/7 non-stop advertising by big pharma across practically every conventional media platform, underpinned with forums and venues which are specifically designed to direct US Hep C sufferers into a sales funnel and keep them there, until the captors are paid off, or the captives die – whichever comes first.

As tempting as it may be to attack the saccharine harpy where she lives, frankly I think your time, experience, connections and considerable energy are far too valuable to expend attempting to claw away, and rescue her captives one by one.

Your efforts are to be applauded, and I think you are on the right path with an alternative site. When you get back from vacation, please get in touch with me at your convenience about some ideas I’d like to toss back and forth with you.

Fitz

“Saccharine Harpy”, “Servant of Greed”, “Spiritual Vampire”, “Succubus from Hell” – We all know who and what we’re up against.

No use wasting energy attempting to plant the seeds of truth in poisoned earth. There is plenty of fertile ground elsewhere where truth can spread and flourish.

Here for example

This site currently has over 1600 members. If all of us could spend just a little of our time every week planting seeds of truth here and there, utilizing resources that are cost free, and focusing on areas where Hep C infections are highest, we can eclipse those nasty little corporate funded weeds with a sea of truth as far as the eye can see.