Home › Forums › Main Forum › FixHepC Admin › USA Today article: Help with the high cost of Hepatitis C drugs
- This topic has 10 replies, 7 voices, and was last updated 8 years, 5 months ago by Hazel.
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3 July 2016 at 7:27 pm #20398
http://www.usatoday.com/story/news/2016/07/02/kaiser-help-with-high-cost-of-hep-c-drugs/86636294/
I’m posting this primarily for anyone who has a facebook account and wants to add to the comments section on this article.
4 July 2016 at 12:02 am #20404done!
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
4 July 2016 at 12:14 am #20406Great job Hazel! That’s the #1 USA news website, gets 2 million views daily!
4 July 2016 at 12:51 am #20411I don’t know how all the spreading works- I do comments on this sort of thing all week long, get some hits, sometimes quite a few and occasionally people contact me through those. But this one, I had no sooner posted than it seems everyone on my fb friends are getting it as a notification, so it must just be because it has such a wide readership. Worth the doing. I mix it up depending on the story but have started saying: please tell everyone, we all know someone with hep c. I have also noticed that actual links get taken down often or don’t make it in so i say look up fix hep c as one word, look under Redemption trial etc. or look me up.
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
4 July 2016 at 1:36 am #20416Hi Hazel,
You are doing an excellent job, do not question/doubt your efforts. Perhaps it helps you to know that people who are reading your posts need to make their own judgement on what HCV is, what the generic DAAs are, whether they can trust what you say, whether they can be really cured, how to safely & legally get the drugs, do they have the money etc.
There are so many variables to take into account, therefore think that what you are doing is to offer them the OPPORTUNITY to know that a solution for getting treated exist. Once this piece of information reaches people, the rest is their own journey and it is up to them to make the CHOICE.And also think that what you are doing is actually a kind of collaboration with other people who are also spreading the same news. Maybe individually we are not so strong, but as long as the number of people spreading the news increases, the more results there will be.
Stay positive and have trust in your actions!
Think that every saved life to which your posts contributed is a big victory !!!Cheers
RHF
In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
HCV kills more than 500000 people every year. HCV generic drugs work. Don’t become a statistic.
By sharing this Youtube video you might save someone’s life!
My TX: HEPCVIR-L[generic Harvoni]-India
SVR52 achieved4 July 2016 at 1:43 am #20417Done
SVR 24
4 July 2016 at 2:11 am #20419That’s terrific Tina!
4 July 2016 at 2:58 am #20422Saw Hazel and Tina’s posts there Added mine too
GT1a; Got it some time in the 70’s; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA NOT DETECTED”4 July 2016 at 9:23 am #20435Thanks Hazel, Tina and Matt!
Anyone with a moment should go and have a look, like the comments from team HTM, and (if you’ve got a Facebook account add something)
http://www.usatoday.com/story/news/2016/07/02/kaiser-help-with-high-cost-of-hep-c-drugs/86636294/
YMMV
4 July 2016 at 4:10 pm #20447I brought my dish to the potluck…
m
Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtxG 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 245 July 2016 at 12:09 am #20486Doh! I do these kind of comments all the time…… but this time I ticked, share on facebook, thinking that meant comment visible on their facebook page. But no, of course I shared to my public timeline… doesn’t matter, in fact good because lots of people have shared it now, including a friend in the US just an hour ago, now I have someone wanting info. So, that is good but can’t push it 4 times a week or they will all get sick of it.
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
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