Forum Replies Created

Viewing 15 posts - 226 through 240 (of 317 total)
  • Author
    Posts
  • in reply to: generic harvoni in india #2273
    Avatar photoAlsdad
    • Guardian Angel
    • ★★★★★
    @alsdad

    I think that’s the real reason for the delay. The trials are a smokescreen whilst they put practices into place imo. When you look at the figures, they make about $70 US in royalties on a 12 week supply sold in India. A 12 week course in the UK costs the NHS just shy of £40,000 ($61,000 US) +VAT. If they stop just 100 treatments from leaking through from India to the UK, that’s well over $3,000,000 NETT profit in warehoused customers waiting to be made. I know most of us don’t drink, but it’s sobering (and quite nauseating) when you look at the cold, hard figures.

    in reply to: Pan Drugs Indian generics banned from US?? #2255
    Avatar photoAlsdad
    • Guardian Angel
    • ★★★★★
    @alsdad

    Creating fear about the quality of meds made by foreign pharma co’s is standard practice by Big Pharma and their allies and shills, in order to discourage people from trying to obtain generics. When they’re doing this, they don’t mention that a large proportion of their own meds are made by these same foreign companies.
    :lol:

    in reply to: Retreatment options #2240
    Avatar photoAlsdad
    • Guardian Angel
    • ★★★★★
    @alsdad

    Have a look at the link in the post at the bottom of the page below Slim:

    http://fixhepc.com/forum/search.html?query=easl%20pdf&childforums=1&ids=

    It has all the up-to-date options in it.

    in reply to: Emilio’s Place #2237
    Avatar photoAlsdad
    • Guardian Angel
    • ★★★★★
    @alsdad

    Good luck Bloot. You’ve made the first, most important move. It gets easier from there.

    in reply to: Reorganising the discussion forum #2233
    Avatar photoAlsdad
    • Guardian Angel
    • ★★★★★
    @alsdad

    The fixhepc.com forum is far and away the best hepc resource on the www. Notwithstanding all the great info and discussion about generics, this place (and particularly Dr Freeman) cuts through all the bs surrounding pharmaceuticals and medicine that is created by Big Pharma and the big healthcare providers that is in turn worshipped on most of the hepc-related www.

    The forum needed tidying up and re-organising because it has grown so quickly, and that is now happening. Any and all suggestions regarding this are most welcome for consideration.

    The ‘fixhepc franchise’. Could be a money-spinner Doc. :lol: The thing is, we need to spread and diversify to really make this thing grow and work. More forums, blogs, Facebook pages, Twitter accounts, Google groups and more are all needed (and all cross-referencing and working with each other) to make it impossible to suppress/marginalise info about what is out there and what we can do.

    in reply to: Reorganising the discussion forum #2173
    Avatar photoAlsdad
    • Guardian Angel
    • ★★★★★
    @alsdad

    Wow…..Gee folks…..what can I say…..first of all I’d like to thank….. :lol:

    I’ll get my head around this later this afternoon, have a chat with the other mods, and start work from there.

    in reply to: Nadia’s journey #2166
    Avatar photoAlsdad
    • Guardian Angel
    • ★★★★★
    @alsdad
    Vicki wrote:

    Hi Nadia,
    I’m on Day 18 of Sof/Dac.
    I also have a cold but there are a lot of colds going around at present. My husband has one.
    I had a migraine on Saturday which I have I have not had in a while too.
    Feeling like i’m on the mend now.
    I can feel my liver stinging a bit. My imagination? Doing deep forward bends in yoga, it really felt swollen.
    Undeniably there is also a big stress factor taking this on. Not entirely in a negative way, I guess we have to factor this in.
    The journey so far has been a bit of a roller coaster for me.
    I’m starting to feel a bit more settled now with the routine of it.
    I’m trying to take some time to relax, breath and stretch.
    all the best

    Headache seems to come with the cold bug that’s going around Vicki. My wife and son also have colds, and they both keep complaining about headaches. We had to come home early from a day out yesterday because my son was struggling with this. Like I say to everyone, the results of your first blood tests will make you feel much better.

    in reply to: Reorganising the discussion forum #2163
    Avatar photoAlsdad
    • Guardian Angel
    • ★★★★★
    @alsdad

    Klhilde’s suggestion is an excellent one, and should be the first change imo. At least it will give people arriving at the forum an indication of the proper structure of the forum. Wrt individual threads, any posts deemed sufficiently relevant and useful long-term should be made into stickys. If it’s a paticularly important post, as many of Dr Freeman’s are (most of which are all over the place and not easily found at the mo), either a ‘reports of distinction’ type of section, or into the FAQ’s.

    I know it’s easy for me to say, me not being a mod who has to do it all, but a general tidy up of the threads wouldn’t be a bad thing. All of us regs have been guilty of going offtopic/posting in the wrong threads. On the other hand, as others have pointed out, we want to keep the friendly and ‘human’ aspects of the forum. Some unrelated forums I’m involved with are over-moderated. Little Hitler syndrome springs to mind :lol: .

    in reply to: Security Breach Regarding Redacted PDF attachments #2135
    Avatar photoAlsdad
    • Guardian Angel
    • ★★★★★
    @alsdad

    I found this:

    Exposing poorly redacted PDFs

    It’s difficult to know why this might have happened. The www is full of malicious hackers trawling sites and looking for opportunities simply because they can.

    I think the important thing is that we should be ultra-careful with personal info on places such as this if we want to retain anonymity. Obviously, there has to be a balance, otherwise there would be a lot of useful info that we wouldn’t share. Anyone with the will, a large budget and prepared to put in physical detective work can have a good chance to track down someone from snippets of general personal info that person has put online. But, as I said, that would take a major effort.

    Just think twice about what info you are posting. I certainly will.

    Btw, good advice from Em about making a copy of documents you want to upload, and physically obliterating personal info before uploading.

    in reply to: Emilio’s Place #2123
    Avatar photoAlsdad
    • Guardian Angel
    • ★★★★★
    @alsdad

    Good news with the sides Em.

    in reply to: Mesochem again #2101
    Avatar photoAlsdad
    • Guardian Angel
    • ★★★★★
    @alsdad

    Greg’s posted an update on Mesochem company policy on his blog. It’s the October 10 post:

    http://hepatitisctreatment.homestead.com/generic-daclatasvir.html

    in reply to: compounding Sofosbivur (& Daclatasvir) by oneself #2047
    Avatar photoAlsdad
    • Guardian Angel
    • ★★★★★
    @alsdad
    Life wrote:

    Gary, I just ordered capsules overhere, size 0, what did you mean about enteric coated.
    I just bought gelatine capsules…

    I think that question was meant for me? Enteric coated capsules dissolve in the gut. If you bought normal gelatin ones that’s fine. They dissolve in the stomach, where this medicine is supposed to be released.

    in reply to: Why would pharma eradicate Hep C? #2046
    Avatar photoAlsdad
    • Guardian Angel
    • ★★★★★
    @alsdad

    Fascinating stuff about Benitec.

    On the subject of Big Pharma, I’m reminded of the opening lines of William Burroughs’ sci-fi novel Nova Express, written over 50 years ago, and quite prophetic:

    “Listen to my last words anywhere. Listen to my last words any world. Listen all you boards syndicates and governments of the earth. And you powers behind what filth deals consummated in what lavatory to take what is not yours. To sell the ground from unborn feet forever –

    “Don’t let them see us. Don’t tell them what we are doing –”

    “Not The Cancer Deal with The Venusians –”

    “Not the Green Deal – Don’t show them that –”

    “Not the Orgasm Death –”

    “Not the ovens –”

    Listen: I call you all. Show your cards all players. Pay it all pay it all pay it all back. Play it all pay it all play it all back. For all to see. In Times Square. In Piccadilly.

    “Premature. Premature. Give us a little more time.”

    Time for what? More lies? Premature? Premature for who? I say to all these words are not premature. These words may be too late. Minutes to go. Minutes to foe goal –

    “Top Secret – Classified – For The Board – The Elite – The Initiates – ”

    Are these the words of the all-powerful boards and syndicates of the earth? These are the words of liars cowards collaborators traitors. Liars who want time for more lies, Cowards who can not face your “dogs” your “gooks” your “errand boys” your “human animals” with the truth”

    Fact is, Big Pharma views us as cash cows. Literally. We’re all just expendable “human animals” to them. The same goes with big business in general. You get to see it in a more open and feral way in third world countries where they don’t really care who knows. In our first world countries it’s all put behind a veneer of respectability, but it’s uglier because it happens on a so much bigger scale.

    UGH!!!

    in reply to: Nadia’s journey #2039
    Avatar photoAlsdad
    • Guardian Angel
    • ★★★★★
    @alsdad

    :lol:

    I was the same. Two weeks was long enough for me to wait, so I had a vl test (which the clinic messed up and had to re-do) and GGT (my only high liver reading on the base line tests). GGT result came back the next day and had dropped massively. The meds were working!

    in reply to: Side effects for sofosbuvir/Daclatasvir combo. #2038
    Avatar photoAlsdad
    • Guardian Angel
    • ★★★★★
    @alsdad
    LondonGirl wrote:

    I believe there are many in the medical profession who believe they need to be ‘cruel to be kind’ thinking that we may ‘learn our lesson’ if they are cruel to us. It is shocking. Some maybe think we will not ‘endanger’ ourselves again if they make our experience as difficult as possible. Some think it’s our own fault and we are wasting medical resources. Seems to me, many of us are over 50, this has been my experience since diagnosis, they would prefer to have us labelled junkies out of a ‘life-style choice’ I think. It keeps public opinion on the side of no funds for treatment. They also seem to overstate the cost of treatments in the press. Well, English Health Authority do anyway. It’s handy for them to blame NICE.
    Johnboy – The blood test thing is interesting ….sorry you had to experience that.
    I believe HepC patients all over, are discriminated against.
    My personal experience of the medical profession in England regarding this illness has been, in a word, bad.
    LG

    It’s one of the first questions they always ask. I always tell them it’s probably from sharing a toothbrush/razor with my brother, who’s been registered as a heroin addict since he was 21, and who had a hepC-related liver transplant last year. Their attitude always noticably improves. But my interactions with the NHS on this have still been mostly sh1t, my GP practice notwithstanding.

Viewing 15 posts - 226 through 240 (of 317 total)