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21 August 2019 at 12:22 am in reply to: Cirrhosis and Resistant Hep C – New Symptoms are they serious? #29394
Hi Mar. If you have the time to check for me would be grateful. That way I know that someone with a bit more experience and knowledge can give me a better idea that I can start to think over and talk to my Doctor about to see what he says.
Although its not certain whether I will definitely get the treatment this is what is proposed – Mayvret and Sosfosbuvir. My daily meds are:
Morning:
Enlafax (venlafaxine) 150mg
Concerta (methylphenidate) 54mg
Afternoon:
Rubifen 20mg
Night:
Seroquel 100mgI also have (when needed):
Norflex 100mg
Respigen inhalerThank you again for your help. I appreciate it more than you can know.
Take care
g
20 August 2019 at 2:17 pm in reply to: Cirrhosis and Resistant Hep C – New Symptoms are they serious? #29391I remember the first treatment I was given (Viekera?), required me to alter one or two of my prescribed medications by lowering their dose or switching to an alternative drug. I had to prepare and slowly step down week by week to a lower dose. Is that something I should be preparing for now or will it be different if i am allowed to have the treatment proposed for my second try?
Also, regardless of whether I win or lose this time round will the course of treatment further damage my liver and other organs regardless?
If I am offered the treatment I will grab the opportunity with both hands and with grace, but what worries me is that since my detox and rehab over 2 years ago and being told I am cirrhotic and host the Hep C demon, I still feel like I have no idea whats happening inside me and just how serious my overall condition is. My questions to my specialists have thus gone from trying to understand this situation and become knowledgeable of where my health is, all the way to the frame of mind that I find myself in over two years later: a general acceptance that I have a bad liver and a bug which is trying to destroy it while its down. No one wants to tell me how fast I am declining (because surely without any targeted medication I cant be getting healthier day by day?)!
g19 August 2019 at 4:44 pm in reply to: Cirrhosis and Resistant Hep C – New Symptoms are they serious? #29382Thank you all so much!
respect…
take care
g
ps – a pic of my sidekick Holly is attached
19 August 2019 at 5:57 am in reply to: Cirrhosis and Resistant Hep C – New Symptoms are they serious? #29376Thank you Dr James. Ill send the email and hopefully Javascript is enabled. Can you confirm with a reply to this post whether you have received it or not please? Ill reply today so let me know if it arrives.
Thanks again
Respect
g
18 August 2019 at 7:00 am in reply to: Cirrhosis and Resistant Hep C – New Symptoms are they serious? #29372Hi Dr James.
Sorry to respond this late but I dont use the internet much and I tend to miss things or not getting round to logging on for days. This is also my first experience of a forum which has been challenging and confusing!
To answer your questions, I had a 12 week course of Viekira (?), which was funded but it didnt kill the virus.I have suffered with depression and anxiety for about 30 years but with trial and error with different meds over the years I can now keep it manageable. However, by the end of the Viekira a different type of depression had built up hat I had never felt before, and the day of my last dose I was glad to see the back of the treatment as I was in a very dark place. Did the test 3months later and the Hep was still merrily waging war with my concrete liver unfazed.
The last funded drug that came out early this year, Maviret, but I didnt qualify for funded access to it. They have me now on a six monthly appointment whereas I was previously on a three. I can read between he lines on that and its not their fault, they simply cant do anything for me at present. Buying my own meds is just not an option for myself or my elderly mother or sister if I dared to ask them which I wouldn’t.
I live in New Zealand sorry I didnt mention that. I will get someone to help me put the outcome of my appointment (end of Sept) along with the hieroglyphic numbers and letters from my blood test on here for you to decipher if you get a chance.
Thank you for your reply and apologies for my shockingly tardy reply Doctor James
Take care
g17 August 2019 at 11:41 pm in reply to: Cirrhosis and Resistant Hep C – New Symptoms are they serious? #29370Thank you for your advice. I have my next 6 monthly catch up with the nurse next month so I will share the results when I get them. To me they’re hieroglyphics and I’m finding it increasingly harder to retain the info let alone remember what it all means! I definitely notice that I’m feeling less “intelligent” as time goes on if that’s the right way to put it.
As for the diet you have detailed in your post, I don’t have the monetary capacity to buy groceries every week and I have to just eat what I can to get something in my stomach. I do have access to leftovers and whatever is knocking around work on a daily basis which gives my body something to run on. I do however have a roof over my head and I’m warm at nights so I can’t complain too much.
Again, your advice and guidance is really appreciated and helpful but unfortunately its about as likely as me being Batman for the foreseeable future.
I’m trying to be philosophical and accepting of the fact I began sowing the seeds of this situation nearly thirty years ago and now I’m harvesting the rotten fruit from that declining orchard.
I would however really like to have one more bite of the pie to see if I can kill this virus. If that is unsuccessful then at least I can say I did my best and had a couple of good attempts at it.
Thanks again for the reply, I appreciate the fact that you took the time to write all that to help me.
When I get the next hieroglyphic filled papyrus’s from my appointment next month Ill have a go at getting them onto this space (haven’t fully embraced the internet yet – old school!).
Take care
g -
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