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Viewing 15 posts - 271 through 285 (of 750 total)
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  • 28 July 2016 at 10:52 am in reply to: G1a relapse #21528
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    • Guardian Angel
    • ★★★★★
    @beaches

    Thanks Coral, and apologies for hijacking your post, I didn’t mean to be insensitive

    Genotype 1a
    Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
    Harvoni treatment, started 19 March 2016
    4 week results Bilirubin 12 down from 14 pre treatment,
    Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
    VL <15 down from a lazy 6 million or so

    EOT Results
    Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

    12 Weeks post EOT
    Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
    Cured baby

    28 July 2016 at 2:29 am in reply to: G1a relapse #21509
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    • Guardian Angel
    • ★★★★★
    @beaches

    Is it normal to feel stressed coming up to 12 weeks post EOT?
    Every little twinge, cramp, night time waking is getting me thinking maybe it hasn’t worked. :unsure:
    No point getting tested now as it wouldn’t impact any treatment decisions. I know a Yoga sequence for emotional stability, I’ll just practice it often.

    Genotype 1a
    Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
    Harvoni treatment, started 19 March 2016
    4 week results Bilirubin 12 down from 14 pre treatment,
    Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
    VL <15 down from a lazy 6 million or so

    EOT Results
    Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

    12 Weeks post EOT
    Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
    Cured baby

    27 July 2016 at 11:10 pm in reply to: G1a relapse #21492
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    • Guardian Angel
    • ★★★★★
    @beaches

    Thanks for keeping it real, Coral

    Genotype 1a
    Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
    Harvoni treatment, started 19 March 2016
    4 week results Bilirubin 12 down from 14 pre treatment,
    Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
    VL <15 down from a lazy 6 million or so

    EOT Results
    Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

    12 Weeks post EOT
    Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
    Cured baby

    27 July 2016 at 8:27 am in reply to: FixHepC – Party Playlist #21457
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    • Guardian Angel
    • ★★★★★
    @beaches

    Jazzfest today

    Genotype 1a
    Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
    Harvoni treatment, started 19 March 2016
    4 week results Bilirubin 12 down from 14 pre treatment,
    Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
    VL <15 down from a lazy 6 million or so

    EOT Results
    Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

    12 Weeks post EOT
    Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
    Cured baby

    27 July 2016 at 8:25 am in reply to: Using Milk Thistle whilst on treatment. #21456
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    • Guardian Angel
    • ★★★★★
    @beaches

    Thanks TM
    Sorry for expecting everyone to be a mind reader.
    What I meant was, if your liver functions are normal and your VL is UND, will liver supplement be helpful for you?
    If not I have an almost full bottle……..

    Genotype 1a
    Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
    Harvoni treatment, started 19 March 2016
    4 week results Bilirubin 12 down from 14 pre treatment,
    Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
    VL <15 down from a lazy 6 million or so

    EOT Results
    Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

    12 Weeks post EOT
    Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
    Cured baby

    27 July 2016 at 7:51 am in reply to: Using Milk Thistle whilst on treatment. #21452
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    • Guardian Angel
    • ★★★★★
    @beaches

    If your liver functions are normal, is there any point in taking milk thistle?

    Genotype 1a
    Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
    Harvoni treatment, started 19 March 2016
    4 week results Bilirubin 12 down from 14 pre treatment,
    Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
    VL <15 down from a lazy 6 million or so

    EOT Results
    Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

    12 Weeks post EOT
    Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
    Cured baby

    27 July 2016 at 7:13 am in reply to: Chlorcyclizine #21448
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    • Guardian Angel
    • ★★★★★
    @beaches

    Just a quick one about vitamin B12
    If you are vegan, you need to find a way to supplement, as I believe B12 is only available in animal products.
    I’d be curious to know how people who are vegan for ethical reasons get their B12 – not being cynical or inflammatory, just curious

    Genotype 1a
    Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
    Harvoni treatment, started 19 March 2016
    4 week results Bilirubin 12 down from 14 pre treatment,
    Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
    VL <15 down from a lazy 6 million or so

    EOT Results
    Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

    12 Weeks post EOT
    Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
    Cured baby

    27 July 2016 at 6:56 am in reply to: Red skin #21444
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    • Guardian Angel
    • ★★★★★
    @beaches

    Hey FF

    I didn’t mean to rub it in and if that was the impact of my post I’m sorry.

    The vast majority of forum members are not doctors and while they might have compassion they don’t have answers unfortunately. Conjecture and guesses, but you don’t need that.

    Why don’t you send a PM to Doctor James or make an appointment with GP2U? I know what you mean about doctors who look at you like you’re crazy and that shits me to tears as well, but I don’t think you will get that from Doctor James or anyone at GP2U.

    I hope that these issues will resolve soon and that all your HCV woes will disappear and you too can dance in the sunshine and rainbows.

    #flower #duck

    Genotype 1a
    Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
    Harvoni treatment, started 19 March 2016
    4 week results Bilirubin 12 down from 14 pre treatment,
    Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
    VL <15 down from a lazy 6 million or so

    EOT Results
    Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

    12 Weeks post EOT
    Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
    Cured baby

    27 July 2016 at 5:31 am in reply to: FixHepC – Party Playlist #21439
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    • Guardian Angel
    • ★★★★★
    @beaches

    No hidden mesages. I just love this song and just happened on this version – Billie freakinawesome Holliday

    https://www.youtube.com/watch?v=zDlKb2cBAqU

    Genotype 1a
    Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
    Harvoni treatment, started 19 March 2016
    4 week results Bilirubin 12 down from 14 pre treatment,
    Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
    VL <15 down from a lazy 6 million or so

    EOT Results
    Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

    12 Weeks post EOT
    Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
    Cured baby

    27 July 2016 at 5:21 am in reply to: FixHepC – Party Playlist #21438
    Avatar photobeaches
    • Guardian Angel
    • ★★★★★
    @beaches

    https://www.youtube.com/watch?v=lAeSiM4YTFM

    Genotype 1a
    Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
    Harvoni treatment, started 19 March 2016
    4 week results Bilirubin 12 down from 14 pre treatment,
    Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
    VL <15 down from a lazy 6 million or so

    EOT Results
    Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

    12 Weeks post EOT
    Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
    Cured baby

    27 July 2016 at 5:13 am in reply to: Red skin #21437
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    • Guardian Angel
    • ★★★★★
    @beaches

    Thank you Gaj for your very measured and considered reply.

    We also need to remember that this is all relative (I mean relative to not having treatment or our only options being peginf which is no option at all), and also that the DAAs have been used for a relatively short time and no one knows what will happen 10 or 20 years down the track.

    However…..
    For many of us, access to the DAAs means that we DO have those 10 or 20 years and I’ll take that any day.

    Years I can spend with my family, and who knows, grandkids maybe.
    Years I can spend working in my paid and unpaid work
    Years of being a bold mermaid
    Years of sitting around chewing the fat with my friends
    Years of travelling the world and marvelling at the beauty and wonder of this rock in space
    And much more besides

    Anyone who has not spent many years staring down the barrel of greatly reduced quality of life and ultimately an early death by liver failure or a host of related complications cannot possibly understand what a gift these DAAs are.

    We don’t need any horsemen (or women) of the apocalypse trying to scare us with medical mumbo jumbo thanks very much.

    Genotype 1a
    Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
    Harvoni treatment, started 19 March 2016
    4 week results Bilirubin 12 down from 14 pre treatment,
    Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
    VL <15 down from a lazy 6 million or so

    EOT Results
    Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

    12 Weeks post EOT
    Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
    Cured baby

    26 July 2016 at 9:26 am in reply to: G1a relapse #21403
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    • Guardian Angel
    • ★★★★★
    @beaches

    O mate that sucks, so sorry to hear. We are living in good times for permanent resolution of HCV though, so I’m sure you have many options. Best wishes for permanently awesome health

    Genotype 1a
    Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
    Harvoni treatment, started 19 March 2016
    4 week results Bilirubin 12 down from 14 pre treatment,
    Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
    VL <15 down from a lazy 6 million or so

    EOT Results
    Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

    12 Weeks post EOT
    Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
    Cured baby

    26 July 2016 at 4:27 am in reply to: Red skin #21396
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    • Guardian Angel
    • ★★★★★
    @beaches

    I’m questioning the value of your post, Price.
    Your quote is very selective. Professor Ponzetto whom you are quoting says that the side effects are more likely in a certain compromised subset of individuals. He also says its a 5-FU like (as in similar to) compound with far lower side effects.
    Enough of the scare mongering. Please. :angry:

    Genotype 1a
    Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
    Harvoni treatment, started 19 March 2016
    4 week results Bilirubin 12 down from 14 pre treatment,
    Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
    VL <15 down from a lazy 6 million or so

    EOT Results
    Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

    12 Weeks post EOT
    Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
    Cured baby

    25 July 2016 at 4:54 pm in reply to: Red skin #21389
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    • Guardian Angel
    • ★★★★★
    @beaches

    I started branded Harvoni treatment in the middle of March this year in Sydney Australia. Early autumn. I swim outdoors (in the ocean) in the early morning, early enough to not apply sunblock at that time of year (7am)
    Did not experience any skin redness during my treatment

    Genotype 1a
    Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
    Harvoni treatment, started 19 March 2016
    4 week results Bilirubin 12 down from 14 pre treatment,
    Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
    VL <15 down from a lazy 6 million or so

    EOT Results
    Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

    12 Weeks post EOT
    Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
    Cured baby

    25 July 2016 at 10:33 am in reply to: Activism #21369
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    • Guardian Angel
    • ★★★★★
    @beaches

    Gilead – dealers in death.
    Does anyone find these words offensive?
    I find the actions unspeakably offensive, pernicious and odious

    Genotype 1a
    Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
    Harvoni treatment, started 19 March 2016
    4 week results Bilirubin 12 down from 14 pre treatment,
    Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
    VL <15 down from a lazy 6 million or so

    EOT Results
    Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

    12 Weeks post EOT
    Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
    Cured baby

  • Author
    Posts
Viewing 15 posts - 271 through 285 (of 750 total)
1 2 3 … 18 19 20 … 48 49 50