Anne - FixHepC

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20 March 2016 at 9:44 am in reply to: any one else have a co-infection with HVB? #14253
beaches
- Topics: 10
- Replies: 750
- Total: 760
- Guardian Angel
@beaches
Hey Suzy,
I contracted Hep B a couple of years after you (approx 1975) and it hasn’t been a barrier to my starting on Harvoni treatment. Hope this helps

Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
20 March 2016 at 4:22 am in reply to: Beaches Treatment – Harvoni (Aus PBS) #14243
beaches
- Topics: 10
- Replies: 750
- Total: 760
- Guardian Angel
@beaches
Hi Gaj and Ariel

I just posted in another thread (PBS pricing – take a deep breath) explaining my journey to Harvoni.

I think it was a combination of luck and ar$e.

I was in there on Friday and it’s very clear the staff are working VERY hard. I haven’t ever seen that many doctors there at once. Everyone wants the meds.

But they still make time to answer questions and deal with the emotions that come up (laughing and crying at the same time for example). Given their resource restrictions these dedicated individuals are doing an amazing job.

Day 2 of treatment. Feeling pretty much like I always do.So it’s kind of like a lounge – sofa so good. Managed my regular swim and the exertion of going out and coming back in through a biggish swell.

Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
20 March 2016 at 4:11 am in reply to: Beaches Treatment – Harvoni (Aus PBS) #14242
beaches
- Topics: 10
- Replies: 750
- Total: 760
- Guardian Angel
@beaches
That was a deliberate if poor attempt at politeness

Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
20 March 2016 at 4:10 am in reply to: PBS Pricing – Take a deep breath… #14241
beaches
- Topics: 10
- Replies: 750
- Total: 760
- Guardian Angel
@beaches
My GP is into integrative medicine. He ‘inherited’ me as a patient from another GP who is awesome but went bush to do locum work. He knows very little about liver issues which is why I took myself to RPA. I doubt very much that he would have given me a script for Harvoni.

Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
20 March 2016 at 4:02 am in reply to: PBS Pricing – Take a deep breath… #14238
beaches
- Topics: 10
- Replies: 750
- Total: 760
- Guardian Angel
@beaches
I can tell you what happened with me.

First of, I received my Harvoni yesterday and popped the first pill pretty much immediately
However, if I hadn’t gone to RPA in October, informed them I’d decided to buy generics and asked them for a script or at least to tell me what they WOULD be prescribing me if the drugs were available here, it wouldn’t have happened as quickly.

My Dr told me the main reason the hospitals aren’t stocking the drugs is funding, followed by red tape.

My pharmacist told me how much it was costing her to get me Harvoni. She will get the bulk of it back from the PBS but still…..

The govt is paying around $74 a tablet. Do you think that’s a good deal?

The other question is where is that money coming from? Unfortunately funding for Harvoni etc is being taken away from other treatments to fund ours.

I am fully aware that my treatment comes at the expense of people with other conditions, and they also need treatment. I’m doing exactly what the doctors and nurses at RPA tell me. To the letter

Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
19 March 2016 at 12:53 pm in reply to: Beaches Treatment – Harvoni (Aus PBS) #14191
beaches
- Topics: 10
- Replies: 750
- Total: 760
- Guardian Angel
@beaches
Yep that is it, the very same. Cost me $38 (not the $28 I formerly said) but the pharmacist had to shell out $22,000 up front.

It’s been on the PBS since 05 March

Thanks for the good wishes. I have a slight headache but anything could have caused it, even the change in the weather.

Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
19 March 2016 at 11:14 am in reply to: Beaches Treatment – Harvoni (Aus PBS) #14176
beaches
- Topics: 10
- Replies: 750
- Total: 760
- Guardian Angel
@beaches
Why thank you

Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
19 March 2016 at 11:14 am in reply to: Beaches Treatment – Harvoni (Aus PBS) #14175
beaches
- Topics: 10
- Replies: 750
- Total: 760
- Guardian Angel
@beaches
BAHAHAHAHAHAHA!

Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
19 March 2016 at 11:09 am in reply to: Beaches Treatment – Harvoni (Aus PBS) #14172
beaches
- Topics: 10
- Replies: 750
- Total: 760
- Guardian Angel
@beaches
I’m fully expecting a slap on the wrist from an admin

Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
19 March 2016 at 10:53 am in reply to: Beaches Treatment – Harvoni (Aus PBS) #14169
beaches
- Topics: 10
- Replies: 750
- Total: 760
- Guardian Angel
@beaches
Oh LondonGirl, that sucks.
Hope you get yours really soon

Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
19 March 2016 at 10:52 am in reply to: Beaches Treatment – Harvoni (Aus PBS) #14168
beaches
- Topics: 10
- Replies: 750
- Total: 760
- Guardian Angel
@beaches
Picked my by meds today and took the first pill right away.
It begins.
Apologies in advance

Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
18 March 2016 at 3:09 pm in reply to: FixHepC – Party Playlist #14117
beaches
- Topics: 10
- Replies: 750
- Total: 760
- Guardian Angel
@beaches
Massive fan of this artist

https://www.youtube.com/watch?v=UtEJuhHWRwc

Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
18 March 2016 at 2:58 pm in reply to: FixHepC – Party Playlist #14115
beaches
- Topics: 10
- Replies: 750
- Total: 760
- Guardian Angel
@beaches
Awesome, I wanted to post that song

Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
18 March 2016 at 12:33 pm in reply to: FixHepC – Party Playlist #14103
beaches
- Topics: 10
- Replies: 750
- Total: 760
- Guardian Angel
@beaches
Sorry, just one more. For the mermaids among us especially
https://www.youtube.com/watch?v=FUNvtOE96Bg

Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
18 March 2016 at 12:20 pm in reply to: Ariel takes the Plunge #14101
beaches
- Topics: 10
- Replies: 750
- Total: 760
- Guardian Angel
@beaches
Hi Gaj,
I went to my local pharmacy. They are good people.They are getting it for me. In fact they went above and beyond with a bit of begging on account of I missed the supplier’s midday cut-off

Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
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