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Well, I’ve kind of finished (in my head anyway)
In so far as I ordered 24 weeks but think I could have gotten away with 12 (sof/ dac)
So I hardly even think about it anymore (week 14 now)
I just take my pills in the morning like a vitamin and just go about things as usualI had a bit of a low feeling around Xmas but that is not unusual as it is a ‘family time’
It was the double whammy of having hep on my mind that led me to dwell on past family experiences that I feel contributed to my drug use and self loathing which led to my hep
But with a holiday i felt heaps better and back to not giving the whole hep or family thing much thought at all – a much better state of mindI have been virus undetected since week 4 but have felt no different during the treatment at all
I can honestly say I feel no better or no worse than before i started – I was even worried they were placebos initially lol except for the taste
I originally was taking them at night as I thought they could make me nauseous
As they didn’t i changed to mornings so I could drink more water after taking them (a bit dehydrating)I guess my biggest reflection has been the belief that the hep has overall been a positive in my life
It has forced me to concentrate a lot on my health and wellbeing
i have never actively thought about the complications, only about what i can do to lead a normal healthy life
The only time I have actively thought about a hep death is during tx when i researched how to get my hands on Nembutal in case I do ever need to die on my terms rather than some medical practitionersI’ve seen a few people die, and some quite young, some quite unexpected
Go into any high care facility and look at all the living corpses that aren’t allowed to die – it’s a fate worse than death
Death can happen anytime and anywhere so I’m not going to give it any more thought than ‘what will be will be or pass me the Nembutal’And lastly…when I first read about the buyers club and Dr Freeman it all sounded too good to be true – I am extremely cynical about such things
I swore that after the last tx debacle i would never do tx again unless i could be guaranteed the sides were insignificant enough to warrant it
I went straight to this website and checked it out – it seemed legit with lots of people undertaking tx with little or no sidesNot having given any thought to my hep for 12 years i had no info or blood tests and didn’t know where to start
I finally spoke to the doc who said, doesn’t matter G1 or G3,, liver damage, or VL – start immediately and get yourself cured – here’s a script and what to do to get it filled
i had not previously, and probably will never again hear such practical advice from someone with Dr in front of their name
How lucky am I/ we that we have the monetary and practical means to cure ourselves on our terms – it’s incredible reallyAnyhoo, as I’ve been scorned for before, I do like a drink and it’s fast approaching beer o clock
So if you excuse me i’m going to smoke a reefer to get the thirst goingLove to all
Sure are some great people on this site and behind the scenes so thanks for everything!
52 y.o. G3a for about 30 years
Previous tx 2004 interferon/ ribavarin
2004: ALT 624 AST 263Pre tx test 23/10/15: ALT 153 AST 128 VL 11 849 493
6/11/15: Sof/ dac started
26/11/15: ALT 41 AST 41
7/12/15: ALT 36 AST 30 Virus undetected2004 biopsy F3
Fibroscan appt Jan 11 2016.A.L. wrote:I thought this site was very keen on sticking to the letter of the law in order to continue doing its good work unhindered and maintaining its reputation.
Is asking for advice about the commission of fraud acting in this site’s best interests?
if you’re drunk, it’s doing you no good
If you’re not drunk, it’s time to start
If you’re in the medical profession, then I understand entirely (you’re used to wagging your finger and spouting holier than thou platitudes)To the op, forget the real frauds that are littered throughout the medical system
And if you have the dough, get some generics and get cured
52 y.o. G3a for about 30 years
Previous tx 2004 interferon/ ribavarin
2004: ALT 624 AST 263Pre tx test 23/10/15: ALT 153 AST 128 VL 11 849 493
6/11/15: Sof/ dac started
26/11/15: ALT 41 AST 41
7/12/15: ALT 36 AST 30 Virus undetected2004 biopsy F3
Fibroscan appt Jan 11 2016.The new meds are all but symptom free and work a treat Frankie
I’m 4 days away from 12 weeks sof/ dac and it’s been pretty easy really
You’ll be back to normal before you know it
52 y.o. G3a for about 30 years
Previous tx 2004 interferon/ ribavarin
2004: ALT 624 AST 263Pre tx test 23/10/15: ALT 153 AST 128 VL 11 849 493
6/11/15: Sof/ dac started
26/11/15: ALT 41 AST 41
7/12/15: ALT 36 AST 30 Virus undetected2004 biopsy F3
Fibroscan appt Jan 11 2016.”James-Freeman-facebook” wrote:Bloot, you are cheating by treating!
Fibrosis does improve post treatment:
http://fixhepc.com/forum/experts-corner/106-liver-cirrhosis-does-not-disappear-in-12-weeks.html
The fibrosis seems to be mediated by LOXL2
http://fixhepc.com/forum/media-news/338-good-news-for-cirrhotic-patients.html
That’s interesting
I was tested at week 9-10 as it was the earliest I could get one done
It seems likely that the no virus detected at week 4 could be part of the story of the reduction in F score
52 y.o. G3a for about 30 years
Previous tx 2004 interferon/ ribavarin
2004: ALT 624 AST 263Pre tx test 23/10/15: ALT 153 AST 128 VL 11 849 493
6/11/15: Sof/ dac started
26/11/15: ALT 41 AST 41
7/12/15: ALT 36 AST 30 Virus undetected2004 biopsy F3
Fibroscan appt Jan 11 2016.Thanks for the good feedback everybody
i guess the message is be pleased with my results but don’t take them as difinitiveI can confidently say though that my liver is not chirrotic which was my primary concern (my blood count has always been good)
I’m lucky I kicked the death wish with enough time to recover from much of the damage doneIt’s been an odd process this treatment as it constantly leads me to think a lot about life and death and choices made
The nurse at Nepean said that being a previous F3 it’s likely I will need yearly cancer screening
If I get cancer I will not partake in sickness prolonging procedures and so reasearched getting some Nembutal as an insurance policy
As an F1 she says the testing is not necessary and the Nembutal can remain in the back of my mind hopefully foreverI’m almost half way through the 24 weeks and while the physical symptoms are minor I will be glad when it’s over for the emotional toll
While I’m on the tx I find it hard to just get on with life as before because of the regular hospital visits and discussions about it
I might even get an appt with Dr F and see if there are any negatives to continuing tx for 24 weeks given my fibro and blood test resultsAnyhoo, I’m rabbiting again and it’s the weekend
It helps (I think) to write this stuff down and get it out of my head so thanks to this forum as it’s the only place I canCheers
52 y.o. G3a for about 30 years
Previous tx 2004 interferon/ ribavarin
2004: ALT 624 AST 263Pre tx test 23/10/15: ALT 153 AST 128 VL 11 849 493
6/11/15: Sof/ dac started
26/11/15: ALT 41 AST 41
7/12/15: ALT 36 AST 30 Virus undetected2004 biopsy F3
Fibroscan appt Jan 11 2016.Woh, hardtail to a Nomad! Now that’s living!
A Nomad or a Bronson with my own build would be a dream, and it will probably stay that way
I spend way too much money on bikes as it is hmy: I’m a bit of a bike geekI’m pretty clean at the moment – probably why I feel so down lol
You’re lucky with the low score – when I got the F3 12 years ago I was shocked
But after i thought about it, it was hardly a surprise really – it was a near death hangover that alerted me to something being wrong
I look back on all the things I’ve done to myself as a young feller, and while I can see why, it still shocks me – such a wasteMy wife saw that I was on the forum and asked how things in the hep world were going
I fessed up that I’ve been feeling pretty low – like why did I bother trying to prolong my life rather than just let it be
I’ve previously been pretty happy and generally healthy and fit, but now when I should be feeling great, I feel low and unmotivated
She feels it’s because it is all in my face now – again. I’ve dealt with my demons previous to this and moved on, but now they seem to be back
I’ve been thinking a lot about my life which never helps, and while i love this forum, I’m not sure how good it is for my head
I read about how peeps have suffered with the hep, but the meds have given them a new lease on life
This is pretty much the exact opposite to how I feelMaybe it’s just Christmas and I have to spend time with my zombie mother in a high care home and watch her dribble and ramble
Everyone thinks I’m a hard bastard and should feel some compassion, but I find it difficult.to muster any beyond just a show
I would have nothing to do with her except for my alien like brother and I had a massive argument and I conceded to help on my terms
So she has remained an emotional burden pretty much my whole life – a real piece of work
And here i am at 52 on hep treatment again, and I’m supposed to feel sorry for her! Sorry, no can doAnyway, I’m starting to ramble on about myself and i need to stop throwing my baggage around
I don’t really have anywhere else to vent, so thanks for giving me the space to do itBy the way, I’ve had a hell of a lot of counselling and don’t need more – i actually think that would be counterproductive
I just need to see the tx out, get the focus off myself and get on with life like beforeRide on! Bloot out
52 y.o. G3a for about 30 years
Previous tx 2004 interferon/ ribavarin
2004: ALT 624 AST 263Pre tx test 23/10/15: ALT 153 AST 128 VL 11 849 493
6/11/15: Sof/ dac started
26/11/15: ALT 41 AST 41
7/12/15: ALT 36 AST 30 Virus undetected2004 biopsy F3
Fibroscan appt Jan 11 2016.I don’t get a notification of PM’s
Answered you now – good luck with everything!!
52 y.o. G3a for about 30 years
Previous tx 2004 interferon/ ribavarin
2004: ALT 624 AST 263Pre tx test 23/10/15: ALT 153 AST 128 VL 11 849 493
6/11/15: Sof/ dac started
26/11/15: ALT 41 AST 41
7/12/15: ALT 36 AST 30 Virus undetected2004 biopsy F3
Fibroscan appt Jan 11 2016.Hey Life
Well, I definitely don’t feel better
I’m very happy that I am VMD at 4 weeks and all is on track so I’m not complaining at all
I’m just a bit, I don’t know, perplexed as to how I feel no better and if anything I feel worseAny symptoms I do have are subtle
My guess is that my symptoms previously were less than the symptoms of the meds
Others who had bad symptoms, the meds help to alleviate those and any med symptoms are not noticeableAnyhoo, it doesn’t really matter as I know I’ve done the right thing and grateful for it
And hoping for SVR24 and get back to feeling at least as good as I did previously, if not betterMerry hep free Xmas everybody
52 y.o. G3a for about 30 years
Previous tx 2004 interferon/ ribavarin
2004: ALT 624 AST 263Pre tx test 23/10/15: ALT 153 AST 128 VL 11 849 493
6/11/15: Sof/ dac started
26/11/15: ALT 41 AST 41
7/12/15: ALT 36 AST 30 Virus undetected2004 biopsy F3
Fibroscan appt Jan 11 2016.Thanks Sabrecat
Dr Freeman is up there with Dr Nitschke
Doctors who think outside the box and use common sense, guided by what is best for the person rather than sticking doggedly to rulesWhat I particularly like about the buyers club is that you are your own ‘man’ (person)
It’s up to you how you want to do it, hence the conjecture over combo’s and duration (plus the evidence is limited being so new)
It’s not ‘you’ll do 12 weeks on this combo’ end of story
I hate being told what to do unless it is explained to me why I have to do it and why that particular way
That is why the Buyers Club sounded too good to be true when I first read about it
It is thankfully the exception that proves the rule ‘if it sounds too good to be true, then it usually is’Good luck with the 24 weeks mate
Believe me, for the last 12 years I’ve not treated my liver with kid gloves, yet it seems I’m still not cirrhotic (F4)
So you may find you are still F3 – anyhoo, good luck yourself and hope to hear positive news of a negative result for you
52 y.o. G3a for about 30 years
Previous tx 2004 interferon/ ribavarin
2004: ALT 624 AST 263Pre tx test 23/10/15: ALT 153 AST 128 VL 11 849 493
6/11/15: Sof/ dac started
26/11/15: ALT 41 AST 41
7/12/15: ALT 36 AST 30 Virus undetected2004 biopsy F3
Fibroscan appt Jan 11 2016.Nice one Irma and Neilo
Santy came early this year for you
The doc must have more grateful peeps than any other doctor out there
52 y.o. G3a for about 30 years
Previous tx 2004 interferon/ ribavarin
2004: ALT 624 AST 263Pre tx test 23/10/15: ALT 153 AST 128 VL 11 849 493
6/11/15: Sof/ dac started
26/11/15: ALT 41 AST 41
7/12/15: ALT 36 AST 30 Virus undetected2004 biopsy F3
Fibroscan appt Jan 11 2016.G3a here as well
I was F3 from a pre tx biopsy in 2004
Due to my lifestyle since, I committed to 24 weeks sof/ dac and even contemplated Riba
However all blood tests indicate that I am not cirrhotic – FBC was normal, even good pre tx
For this reason, and other info on this site I decided not to go with the RibaI did need to make the decision on ordering the next 12 weeks before my Fibroscan in January
As i showed virus undetected at week 4, I am going to wait and see my fibro results before deciding on how long to continue tx
At this stage i am considering 16 weeks rather than 24It’s funny/ odd that I feel I have few, if any symptoms from the hep
But feel no better, actually feel worse, since being virus undetected
I feel quite down and, during exercise get out of breath in a different way than previous
Anyway, I’m keen to do tx for as few weeks as I can get away with
So I may have some weeks of sof/dac hanging around for anyone who wants to ‘top up’
52 y.o. G3a for about 30 years
Previous tx 2004 interferon/ ribavarin
2004: ALT 624 AST 263Pre tx test 23/10/15: ALT 153 AST 128 VL 11 849 493
6/11/15: Sof/ dac started
26/11/15: ALT 41 AST 41
7/12/15: ALT 36 AST 30 Virus undetected2004 biopsy F3
Fibroscan appt Jan 11 2016.Nice work Bro!
52 y.o. G3a for about 30 years
Previous tx 2004 interferon/ ribavarin
2004: ALT 624 AST 263Pre tx test 23/10/15: ALT 153 AST 128 VL 11 849 493
6/11/15: Sof/ dac started
26/11/15: ALT 41 AST 41
7/12/15: ALT 36 AST 30 Virus undetected2004 biopsy F3
Fibroscan appt Jan 11 2016.I still have a very bad memory of the hangover that led to my hep diagnosis. This was about 15 years ago. Allow me to share.
Biggest party ever and I went completely overboard with pingers and alcohol + a big reefer on the walk home
As soon as my eyes opened after a pass out sleep I knew I was in troubleThe violent convulsive heaving was so extreme my face would go purple as I almost choked from lack of air
It was like my stomach was trying to force itself out through my mouth in the most violent way possible
Once the worst of the convulsions passed i slumped on the tiles (I was driving the porcelain bus)
Minor convulsions had me sounding like a walrus as i lay there heaving, swearing and groaning at the severity of it
I was sweating profusely but freezing cold but my forehead was burning up
My head felt as though a hammer drill was driving between my eyes, while my eyes felt like they were being squeezed in a viceThe pain was relentless, but lying in bed the fear would rise as a slight, horrible gurgle in the pit of my stomach started
No please, no. Not again. Please no. I was pleading – probably how my liver was pleading with me the night before. it was pay back time!
The gurgle would intensify as my mouth filled with saliva. I would hold off as long as I could because I knew what was coming
Just as the first convulsion started I would leap out of bed and plunge my head in the bowl as the whole sorry process started againThis kept up for the best part of 15 hours. My partner wanted to call an ambulance but I wouldn’t hear of it. Best to ride it out. Idiot (me not her)
Well into the next morning i started feeling a little better and the convulsions stopped
After some more hours i was able to keep down a pain killer and finally get some sleep once the intense migraine in my head went
Into the night I was able to get out of bed and watch some TV. A few more hours and I could eat a little.
I felt sick for the rest of the week and couldn’t stand the thought of alcohol for over 6 months. Just the thought of the taste made me feel sick.I was pretty fit and otherwise healthy at the time, surfing 5 days a week and working out as well
I knew it wasn’t food poisoning or similar as I’d always suffered from over the top hangovers – just nowhere near this bad
i was always perplexed that my mates could drink more than me and feel relatively OK
I had been drinking since about 16, and a lot, but couldn’t seem to have a big drink without being bed ridden the next dayI went to see a naturopath who said that key factors led to my liver being compromised. She also had a medical degree and sent me for blood tests
I have to admit I was floored when the positive result came back
It reminded me that I used to hit up with people I knew had hep
But at the time I just thought hep was something you got from eating dodgy food overseasAnyhoo, just a little story that came to my mind reading this thread
I have had 2 bed ridden hangovers since but the last was 3 years ago
I’m confident that I will never have another again as i am far more careful, if not sensible, these days lolI actually consider that in many ways my hep has been a positive in my life
I really cleaned up the drinking and drugging and did a naturopothy degree as I wanted to focus on natural health
I kind of wanted to say sorry to my body for all the shit and disrespect I had shown it for a long time
It has shaped my life as far as working from home and concentrating on exercise and rest rather than income
I can honestly say until now (apart from my previous tx) that it really hasn’t shown me too many negatives that I can think of
i think because of it I am fitter and healthier than i would have been otherwise
I don’t know this for a fact, but if I think it’s true, then that becomes the reality doesn’t itI know that the eventual consequences can be dire, but the eventual consequences of life can be dire anyway
I know many people for whom that is, or in some cases was, true – and through no fault of their own necessarilyAnyhoo, I’ve thought about this virus more in the past 4 months than I have in the past 12 years
So I get to musing about things and like to have a whinge, nag, prattle on etc
And what better place to do it than with the wonderful people on herePeace love and happy apples to all
52 y.o. G3a for about 30 years
Previous tx 2004 interferon/ ribavarin
2004: ALT 624 AST 263Pre tx test 23/10/15: ALT 153 AST 128 VL 11 849 493
6/11/15: Sof/ dac started
26/11/15: ALT 41 AST 41
7/12/15: ALT 36 AST 30 Virus undetected2004 biopsy F3
Fibroscan appt Jan 11 2016.Chester wrote:I did the same thing bloot and my initial reading was the same. But then looking at it more closely I think that <1 is just indicating the range of what is considered a negative result. Depending on the test, I think if it was above 1 but under the relevant value in the hcvadvocate article he would need more sensitive testing done. Above the relevant value, he's just had HVC some time but not necessarily currently active disease. If my interpretation is right, all of us will always test positive to that particular test even after cure. In other words, it looks like they've not only failed to do a VL but done the most useless frickin' test they could come up with.
And it's a bit of a bloody joke joke that we're left deliberating over the results on a hep forum
Rather than the doctor telling 2b what the hell it means
52 y.o. G3a for about 30 years
Previous tx 2004 interferon/ ribavarin
2004: ALT 624 AST 263Pre tx test 23/10/15: ALT 153 AST 128 VL 11 849 493
6/11/15: Sof/ dac started
26/11/15: ALT 41 AST 41
7/12/15: ALT 36 AST 30 Virus undetected2004 biopsy F3
Fibroscan appt Jan 11 2016.Sorry for the bum steer 2b
I know what you’re saying Chester
But i’m over arguing with these people or trying to find another clinic
They are doing my Fibroscan and bloods at the same time on Jan 11
I’m going to get my VL at 8 weeks through Dr F at GP2U and have a chat to him at the same time
i’m more exhausted now going through all this than I ever have been in my life
I hope the results will be positive with a negativeGood luck 2b
52 y.o. G3a for about 30 years
Previous tx 2004 interferon/ ribavarin
2004: ALT 624 AST 263Pre tx test 23/10/15: ALT 153 AST 128 VL 11 849 493
6/11/15: Sof/ dac started
26/11/15: ALT 41 AST 41
7/12/15: ALT 36 AST 30 Virus undetected2004 biopsy F3
Fibroscan appt Jan 11 2016. -
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